I am often asked why I break traditional protocol when I write about Migraine and other health conditions by capitalizing the first letter in the name of the disease. My answer is a deeply personal one…
Writers follow a *protocol* called a style guide. This style guide is like a little rule book that tells us how to address certain issues when we write. Part of the reason is because it is easier for the reader to go from author to author when everything is consistent, while other rules are there and nobody seems really sure why. The style guide keeps us neat and consistent, and there are reasons why each of the rules is present in this guide.
Current style guide protocol says that we are not supposed to capitalize the first letter of a disease or condition unless it is named after a person. Two examples of diseases named after a person are Alzheimer’s Disease and Sjogren’s Syndrome. Both of these diseases are named after the doctors that discovered them.
Capitalizing the first letter in the traditional sense is a show of respect for those physicians – and rightly so. They changed the world with their work, and with that the lives of countless people.
However…
My capital M is a bit like sticking my fist into the air to show I’m fighting.
I made a decision a long time ago that the word Migraine is at least as important in my world as any single person’s name. When I write the word Migraine it doesn’t just represent one single person, it represents an entire population of people who are suffering. I consciously think about all of my Migraine friends when I hit the button on my computer that capitalizes the M. It is my show of respect for the daily struggles of other Migraineurs all over the world, and their strength to overcome those struggles and live their lives despite this enormous challenge. They deserve that capital M.
Personally I can’t think of a better reason than that.
It is an advocacy issue for me.
Yes, I’m theoretically wrong in doing it, but I won’t change what I’m doing. Some people agree with me, others do not.
As long as you see me write about health conditions in which a population of people suffer and struggle to live their lives despite their diagnosis, you will see me capitalize the name of that health condition… and proudly so.
This is a conscious decision, not a mistake.
This is another way for me to create awareness.
This is another way for me to acknowledge patients.
This is how I stand up for you.
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"I had my first migraine when I was 12. I thought I was going blind, the spots in my vision all grouped together and everything went black. The pain was intense and felt like my head would crack open above my right eye."
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