Comments for Migraine.com http://migraine.com Migraine.com Wed, 22 Feb 2012 15:31:21 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Migraine Basics by Does it really? « a bittersweet bilis http://migraine.com/migraine-basics/comment-page-1/#comment-2415 Does it really? « a bittersweet bilis Wed, 22 Feb 2012 15:31:21 +0000 http://migraine.com/wordpress/?page_id=2#comment-2415 [...] Basic knowledge on migraine [...] [...] Basic knowledge on migraine [...]

]]> Comment on Understanding Migraine Symptoms by hangingbyathread http://migraine.com/blog/special-report/understanding-migraine-symptoms/comment-page-1/#comment-2404 hangingbyathread Fri, 17 Feb 2012 21:31:32 +0000 http://migraine.com/?p=37642#comment-2404 I just went through a real whopper migraine one that did not seem to have any phases at all. I had some auras - not too many (for me they are flashing lights and usually I have more than I had this time) the day before. The night before I ate some soy dip which I ate on crackers for dinner, and by 1 am Thursday night I had a migraine that had gone from 0-80 in about 5 minutes flat. There was no gentle lead up, no time to decide - is this going to be a bad one or can I stop it with ice if I can get to sleep, nothing like that. It was 0, and then a #8. I did not bother with the only triptan I have left that works for me, Axert, and took on nostril spray of Stadol. I then tried to go back to sleep. By morning I had had very little sleep, and the Stadol had not touched the migraine. Around 1:15 pm I took another spray of Stadol, and that knocked me out completely for about 5 hours. I don't like Stadol because often when I wake up I don't know where or who I am, as happened this time and it took about an hour to get my bearings. I even had a couple phone calls for which I have no memory at all. The migraine continued with no abatement, and by the next day I looked in my calendar to see how long it was since I took the last Axert. It had been 1 full week, and I knew if I took more Stadol it probably would bring on MOH, so I tried the Axert. After about 8 hours, the migraine came down to a level 4 which I can tolerate. I got up, walked my dog, got something to eat, and was feeling better, but by evening, the migraine was back to a #8, and I was out of options. I was now at hour #36 and counting. I got all the ice I had in the freezer, put it in an ice bag and went to bed. One of my neighbors walked my dog the next day, and I managed to take a 2nd Axert in the morning. That helped after another 8 hours and I ate, and sat up for a while, with the migraine now at a level #4, but it only lasted for 2 hours this time, and went right back to a #8. This went on for another 2 days +, until I was at hour # 60, and I thought I was headed for the hospital because I was so exhausted from the pain, and was heading toward the 72 hr mark, but it finally subsided around hr. 66, and I went to sleep, and woke up and stayed in bed all day. I don't know what caused it. Was it the bad storm that we had for 2 days at the same time? Was it what I ate? What was it? I have been having a lot of stomach problems lately, and where I used to be able to take strong opiates, wipe out the pain and go to work, now just the smallest amount of painkiller knocks me out. My body has gotten so sensitive to everything from 43 years of medications and pushing so hard to be normal, I think my insides are giving up, even though my mind is telling all my systems to keep going. I don't even know where to go to find out what is happening to me. Do I go to a place like the Jefferson Clinic, or the Michigan Clinic? Or do I go to an alternative place that tests for food and environmental allergies? Worse yet, I am on disability, have limited savings, and I have no idea what Medicare will pay for. I am on the list for a new migraine specialist but do not have a specific app't yet. I am not expecting much from the app't because I have already seen the best in the country, but would like to have someone overseeing my refractory, intractable case. Right now I feel like I need to change my name from "Tired of Head Pain" to "Confused." I just went through a real whopper migraine one that did not seem to have any phases at all. I had some auras – not too many (for me they are flashing lights and usually I have more than I had this time) the day before. The night before I ate some soy dip which I ate on crackers for dinner, and by 1 am Thursday night I had a migraine that had gone from 0-80 in about 5 minutes flat. There was no gentle lead up, no time to decide – is this going to be a bad one or can I stop it with ice if I can get to sleep, nothing like that. It was 0, and then a #8. I did not bother with the only triptan I have left that works for me, Axert, and took on nostril spray of Stadol. I then tried to go back to sleep. By morning I had had very little sleep, and the Stadol had not touched the migraine. Around 1:15 pm I took another spray of Stadol, and that knocked me out completely for about 5 hours. I don’t like Stadol because often when I wake up I don’t know where or who I am, as happened this time and it took about an hour to get my bearings. I even had a couple phone calls for which I have no memory at all.

The migraine continued with no abatement, and by the next day I looked in my calendar to see how long it was since I took the last Axert. It had been 1 full week, and I knew if I took more Stadol it probably would bring on MOH, so I tried the Axert. After about 8 hours, the migraine came down to a level 4 which I can tolerate. I got up, walked my dog, got something to eat, and was feeling better, but by evening, the migraine was back to a #8, and I was out of options. I was now at hour #36 and counting.

I got all the ice I had in the freezer, put it in an ice bag and went to bed. One of my neighbors walked my dog the next day, and I managed to take a 2nd Axert in the morning. That helped after another 8 hours and I ate, and sat up for a while, with the migraine now at a level #4, but it only lasted for 2 hours this time, and went right back to a #8. This went on for another 2 days +, until I was at hour # 60, and I thought I was headed for the hospital because I was so exhausted from the pain, and was heading toward the 72 hr mark, but it finally subsided around hr. 66, and I went to sleep, and woke up and stayed in bed all day.

I don’t know what caused it. Was it the bad storm that we had for 2 days at the same time? Was it what I ate? What was it? I have been having a lot of stomach problems lately, and where I used to be able to take strong opiates, wipe out the pain and go to work, now just the smallest amount of painkiller knocks me out. My body has gotten so sensitive to everything from 43 years of medications and pushing so hard to be normal, I think my insides are giving up, even though my mind is telling all my systems to keep going. I don’t even know where to go to find out what is happening to me. Do I go to a place like the Jefferson Clinic, or the Michigan Clinic? Or do I go to an alternative place that tests for food and environmental allergies? Worse yet, I am on disability, have limited savings, and I have no idea what Medicare will pay for.

I am on the list for a new migraine specialist but do not have a specific app’t yet. I am not expecting much from the app’t because I have already seen the best in the country, but would like to have someone overseeing my refractory, intractable case.

Right now I feel like I need to change my name from “Tired of Head Pain” to “Confused.”

]]> Comment on Migraine and Brain Fog Tips and Tricks by Brain Fog: 20 Ways to Deal | Vitamin B12 Patch http://migraine.com/blog/living-with-migraine/migraine-and-brain-fog-tips-and-tricks/comment-page-1/#comment-2379 Brain Fog: 20 Ways to Deal | Vitamin B12 Patch Fri, 10 Feb 2012 10:24:18 +0000 http://migraine.com/?p=37431#comment-2379 [...] Migraine and Brain Fog Tips and Tricks [...] [...] Migraine and Brain Fog Tips and Tricks [...]

]]> Comment on Nationwide Medication Shortage – Diazepam Injectable by Shocking Medication Shortages – A Migraineurs List | iGlobal Pharmacy http://migraine.com/blog/news/nationwide-medication-shortage-%e2%80%93-diazepam-injectable/comment-page-1/#comment-2377 Shocking Medication Shortages – A Migraineurs List | iGlobal Pharmacy Thu, 09 Feb 2012 13:56:56 +0000 http://migraine.com/?p=37618#comment-2377 [...] Diazepam Injection (Valium)updated 2/7/2012 [...] [...] Diazepam Injection (Valium)updated 2/7/2012 [...]

]]> Comment on Migraine and Brain Fog Tips and Tricks by Brain Fog: 20 Causes and Symptoms | Vitamin B12 Patch http://migraine.com/blog/living-with-migraine/migraine-and-brain-fog-tips-and-tricks/comment-page-1/#comment-2376 Brain Fog: 20 Causes and Symptoms | Vitamin B12 Patch Thu, 09 Feb 2012 10:37:18 +0000 http://migraine.com/?p=37431#comment-2376 [...] Migraine and Brain Fog Tips and Tricks [...] [...] Migraine and Brain Fog Tips and Tricks [...]

]]> Comment on Common Myths About Applying for Social Security Disability Benefits by Filing for Disability Requirements http://migraine.com/blog/living-with-migraine/common-myths-about-applying-for-social-security-disability-benefits/comment-page-1/#comment-2364 Filing for Disability Requirements Mon, 06 Feb 2012 20:16:21 +0000 http://migraine.com/?p=4970#comment-2364 [...] = '';} } applying for social security disability benefitsCommon Myths About Applying for Social Security Disability Benefits // function submitForm(formID) { document.getElementById(formID).submit(); } [...] [...] = '';} } applying for social security disability benefitsCommon Myths About Applying for Social Security Disability Benefits // function submitForm(formID) { document.getElementById(formID).submit(); } [...]

]]> Comment on Expert Answer: Blood Platelet Count & Migraines by The Disappointment of Failed Treatments & Rallying to Try Again | The Daily Headache http://migraine.com/blog/blood-platelet-count-and-migraines/comment-page-1/#comment-2356 The Disappointment of Failed Treatments & Rallying to Try Again | The Daily Headache Wed, 01 Feb 2012 13:41:13 +0000 http://migraine.com/?p=5212#comment-2356 [...] Platelets: I know so little about this that I’m a little reluctant to even mention it. Someone on the Migraine Research Foundation Facebook page said that her doctor told her of a patient whose migraines subsided when he donated platelets. I’ve also read anecdotal evidence of people’s migraine attacks stopping when they were on Plavix, a blood thinner. What I’ve learned is that some people have too many platelets, which can cause headaches, and also that platelets “tend to become sticky and release serotonin which is intimately involved in the mig....” [...] [...] Platelets: I know so little about this that I’m a little reluctant to even mention it. Someone on the Migraine Research Foundation Facebook page said that her doctor told her of a patient whose migraines subsided when he donated platelets. I’ve also read anecdotal evidence of people’s migraine attacks stopping when they were on Plavix, a blood thinner. What I’ve learned is that some people have too many platelets, which can cause headaches, and also that platelets “tend to become sticky and release serotonin which is intimately involved in the mig….” [...]

]]> Comment on Migraine Basics by On Liking Your Body When It Doesn’t Like You Back | Beauty Schooled http://migraine.com/migraine-basics/comment-page-1/#comment-2342 On Liking Your Body When It Doesn’t Like You Back | Beauty Schooled Tue, 24 Jan 2012 22:02:22 +0000 http://migraine.com/wordpress/?page_id=2#comment-2342 [...] the uninitiated, a migraine is not a headache. It’s a neurological disease where pain receptors in your brain are hyper-sensitive and sound [...] [...] the uninitiated, a migraine is not a headache. It’s a neurological disease where pain receptors in your brain are hyper-sensitive and sound [...]

]]> Comment on 10 Things You Should Know About Chronic Migraines and Applying for Social Security Disability by How to Cope with Chronic Migraines « http://migraine.com/blog/10-things-you-should-know-about-chronic-migraines-and-applying-for-social-security-disability/comment-page-1/#comment-2319 How to Cope with Chronic Migraines « Mon, 16 Jan 2012 18:52:24 +0000 http://migraine.com/?p=4969#comment-2319 [...] is some great information about applying for social security for chronic migraines:  10 Things You Should Know About Chronic Migraines and Applying for Social Security Disability Share this:TwitterFacebookLike this:LikeBe the first to like this post. from → Uncategorized [...] [...] is some great information about applying for social security for chronic migraines:  10 Things You Should Know About Chronic Migraines and Applying for Social Security Disability Share this:TwitterFacebookLike this:LikeBe the first to like this post. from → Uncategorized [...]

]]> Comment on Migraines From an ER Doctor’s Perspective by Migraines From an ER Doctor’s Perspective « The ACUTE CARE Blog: Non-Urban Emergency Medicine http://migraine.com/blog/expert-featured-article/guest-expert/migraines-from-an-er-doctor%e2%80%99s-perspective/comment-page-1/#comment-2318 Migraines From an ER Doctor’s Perspective « The ACUTE CARE Blog: Non-Urban Emergency Medicine Mon, 16 Jan 2012 17:54:37 +0000 http://migraine.com/?p=37510#comment-2318 [...] From Migraine: [...] [...] From Migraine: [...]

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