This topic contains 20 replies, has 12 voices, and was last updated by 
Brenna 2 years, 1 month ago.
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Welcome to the Migraine Journal Forum
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I am glad to have finally found a site where there are those that can relate to what i’m going through! People that don’t experience migraines don’t understand.
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Hi tonja – we’re so glad you’ve found us here at Migraine.com
Yes it’s true – you are not alone, and this is a great place to meet others who understand first-hand what it is like to experience Migraine attacks.Have you had any experience using a Migraine Journal?
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Hi, does anyone know if there is a group that is working with employers to educate them on this disease? I am wanting to start a program here in Texas to work with employers to help them understand that their employees have a disease and that they should make accommodations for the employee who is sufferring from a migraine. I am dealing with an employer who is punishing me for missing work due to my severe migraines and it has me wanting to start an advocacy program.
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ladykricket: The National Organization on Disability does this kind of work: http://www.nod.org/. They would be a natural fit for your efforts, but an organization focused on migraines would be awesome. I have written about accommodation issues in the past on my personal blog: http://somebodyhealme.dianalee.net/2008/06/ada-accommodations-making-workplace.html
I hope this helps!
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ladykricket: We’ve just posted Diana’s latest article on ADA Accommodations & Migraine Triggers in the workplace here:
http://migraine.com/blog/ada-accommodations-migraine-triggers-making-the-workplace-work-for-you/
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Hi, I’m new to this site & forum. Although I’ve suffered migraines for about 30 years and each AM Migraine has been debilitating, taking my day away, it has only in the last year that they have come to be Chronic Migraines (non Medication Overuse). I couldn’t make it to work in the AM, or the early afternoon as the migraines weren’t over and/or I’d have side effects from them & meds…My employer will not accomodate me with a later shift stating it would disrupt the workflow of the department I work in. Having many skills I suggested that I could be a ‘fill-in’ or work ‘overflow’ where needed, also a NO, three requests per ADA Laws have been denied and I am being let go. Bye Bye Do I have anywhere to go to have a say about this? So that I may be a productive member of society and have equal enjoyment of the priveledge or right to employment?
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It boils my blood when I have to call in with a migraine that is so bad I can’t drive etc. Then the boss says “Oh you have a headache”!
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My simplexity, have you considered a drug holiday and just tough it out? I know how hard it is but I’ve had to do it to break those cycles.
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Barbrn, Thanks for your input!
Yes, I most often just “tough it out”, I have no choice many times as I awake with a full-blown migraine and the rescue meds won’t work anyway. And I can’t tolerate any of the preventatives! I use ice,heat peppermint oil, anything natural.along with quiet dark room and focusing my thoughts elsewher to help ease me into a place where I can sleep it off. For migraines I get with the warning aura in the afternoon or evening, I will take rescue meds, and I keep track of what I’ve used in my Journal and try to alternate.You must be logged in to reply to this topic. -
@ Ladykricket: Hi! That is so wrong to be punished by your employer and I wanted to tell you that this happened to me as well!!! After using up my FMLA Hours via intermittent absences the HR Manager told me that I couldn’t miss any more time and if I did I would be ‘disciplined’. That was very stressful. Explaining to them that Migraines just don’t disappear because my FMLA ran out did not compute with them and I’ve been let go as they claim there are NO accomadations for me.
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My Simplexity, I understand exactly as I am facing the same thing. I have had a migraine for 3 months now and am running out of FMLA time. I am very aware that I am facing losing my job but what can I do when every 2 days my migraine is so bad that I can not even get out of bed?
I am sorry that you were let go but you said that you put in an ADA request and they said no? I thought that employers had to at least review the request. I know that my boss kept denying my request so I went to HR and they have agreed to work with me. Of course that was before my FMLA ran out so I don’t think that will happen now. I would check with someone who knows more about ADA requests.
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Hello! I’m new in this forum (indeed, this is the first forum I participate in) and really, I’m so glad to find you!!! I’ve started to experience severe photosensitivity during my migraines and I would really be grateful if anyone could tell me what to do when I need do use sunglasses indoors (I mean, I would like to find a less weird solution…)
Thank you!
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Hello!
A friend of mine suggested that, besides writing a migraine journal, I could start measuring my blood pressure regularly and write it in my migraine journal as well, to see if it has some sort of connection with my migraines, either as a consequence or as a cause.
Has anyone tried it? Do you think it is a good idea?You must be logged in to reply to this topic. -
Actually Maria, using my prescrition sunglasses indoors at work where there are lots of fluorescents is helpful, wierd or not.
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Like Gregory I just wear my sunglasses indoors and go about my business. It helps enough that I couldn’t care less what anyone thinks!
It certainly couldn’t hurt to keep track of your blood pressure to make sure it isn’t high, but I don’t know that there is a significant correlation between high blood pressure and migraine. It is common for people experiencing pain to have elevated blood pressure, though.
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