stories
By Ang44 - August 21, 2013
... condition is as debilitating as I say. I have to depend on her to watch the kids when things happen so I can’t just tell her where to go. I would really like her support and understanding. I sent her the migraine... visualization. Maybe that will open up her eyes. Thankfully, I have friends and my ex get it and are very understanding and supportive. Another good point is that medicaid has started covering sumitriptan tablets every nine days so...

living
By Lisa Robin Benson - November 29, 2016
... with the pain and discomfort without any clear reason or purpose, and the daily struggle is often invisible –  so who would cheer us on? Depending on our support networks, many of us do have people who are rooting for us. I’ve... story). Even our closest family and friends can struggle to always show support. Migraine is a chronic condition, and though the pain and challenge can be much worse than a 30 kilometer hike, it becomes the new normal for many...

living
By Tammy Rome - August 10, 2016
...Online support groups can be a life-saver for many with migraine who are too sick to socialize any other way. Having the support of others who understand what you are going through is priceless. I’ve participated in several... from being human. Our support groups are vulnerable to the same challenges as any group of people. We can be a source of uplifting encouragement to each other. We can also be petty, small-minded, and territorial. It hurts...

living
By Amanda Workman - April 10, 2018
...There is a challenge within in household when one party is chronic and one party is episodic. I know for most of you, the idea of having a spouse who is episodic while you are chronic seems like an amazing idea, but it’s not all it is cracked up to be all of the time. At times it can be very helpful, such as when I am in a ton of pain and he can see that I need to lay down. But it can also be a disadvantage because he is so used to me being...

living
By #purpleproject - March 12, 2018
...I’ve used Amazon pantry before, but to be honest, it’s tedious, takes time and the boxes they send are massive. I LOVE me some Amazon prime, but after trying pantry three times, I’ve decided to go another route. (In our area we don’t have anything like Amazon Prime Now). Grocery delivery for days you’re out of commission Whatever genius thought of grocery delivery is a genius. You have no idea how much you’ve...

living
By Sarah Hackley - April 16, 2018
...Sometimes, I forget I’m an advocate. More precisely, there are times I forget I need to advocate. For others, for my family, for myself. Surrounded by a supportive community Sometimes, when surrounded as I am by a community...) with amazing writers, advocates, and companies who do understand invisible chronic illness. I also have the most supportive spouse I could possibly envision. These are incredible blessings, and I never forget them for a moment...

living
By Holly Baddour - December 20, 2017
...It has been seven years since I had a dog. In that time, I have stopped working due to Chronic Migraine. Sidelined from my career due to pain, there are times I spend days in bed, struggling with severe nausea and vomiting. However, I am also a seriously major dog person. I love dogs. They bring me great joy. My teenage sons have badgered us for a dog nearly every day of these past seven years. They also are dog lovers. We have two elderly cats...

living
By Holly Baddour - December 14, 2017
... The fallout of this dynamic is the risk of shrinking the size of our lives, leaving us emotionally malnourished. Little to no time with family and friends means limited support, leading to a decrease in social or intellectual...

living
By Sarah Hackley - December 21, 2014
...I was recently talking to someone about the myriad ways in which migraines have affected my life. Most of it she’d heard before: the not being able to be around bright lights or loud noises during an attack, the trying to avoid strong smells, the need to keep to a consistent schedule. When I started talking about other, bigger picture things, however, I could tell I was saying things she hadn’t considered before. Living with chronic migraines has...

By Editorial Team - April 6, 2012
...Help your patients become more active in their migraine management and treatment. Migraine.com has the tools you need to keep your patients informed. The Migraine.com Weekly Help your patients stay up to date on the latest migraine news and information — recommend the Migraine.com Weekly. READ MORE Patient Guides Help your patients understand migraine with downloadable patient guides in PDF format. The guides can be easily printed or e-mailed...

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By Teri Robert - May 26, 2011
...A solid support system is essential to effective Migraine management. Even the best medical care and treatment will fall short in keeping a Migraineur going during periods of chronic or especially severe Migraines... if their support system is inadequate. In addition to the physical havoc Migraine wreaks on the body, it messes with our lives in other ways. Many aspects of life that are often taken for granted are impacted negatively: relationships...

living
By The Migraine Girl - April 12, 2018
...Written in late March 2018 As I type this, I’m on a plane thousands of feet above the earth, traveling to my home state of Georgia. I’ve just spent two days with a couple hundred colleagues in the patient advocacy/healthcare community field, and I am so grateful and happy I feel as if my heart could burst. The heart beat behind online communities Even people who’ve been visiting migraine.com for years may not realize that the beating heart behind...

living
By Steven Workman - March 20, 2018
...My wife and I have been together for the last seven years. In that time, I have learned what it truly means to be a caregiver to someone who suffers from chronic migraine. I have seen first-hand what she goes through on a daily basis to try to make it through another day. It has been an eye opening experience for me. Amanda is one of the most driven people I know. She graduated high school forty credits into a Bachelor’s degree. While she...

living
By Sarah Hackley - March 8, 2018
...What is an advocate if we don’t advocate for ourselves in addition to others? I’ve been a patient advocate for many years, and I’ve lived with chronic migraine for many more years than that. However, despite all that time and all of my experiences, I did something recently that I’d never done before: I asked for accommodations from a client. I won’t lie; it terrified me. In fact, it made me so anxious that at another time in my life I know I...

living
By Holly Baddour - February 15, 2018
... gatherings. So, the opportunities to connect in person are few and far between. Some people with other types of medical conditions may rely on support groups, but with regular meeting times, the difficulty in attending...

living
By Amanda Workman - February 12, 2018
...I made a list of seven questions and put my husband to the task of honestly answering them. He took the questions, answered them, and instantly worried it was too raw or harsh in some aspects. You may see some of his points that way yourself, but the key to remember is this is his opinion based on our experiences of living life with chronic migraine. Feeling powerless What is the hardest part about being a caregiver to someone with chronic...

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By The Migraine Girl - June 20, 2011
...Many of the people visiting Migraine.com are new to the online migraine community. Thankfully, I feel as if where they’re starting—this website (or the connected Facebook page)—is a really great resource. There is a LOT written about migraine and headache out there, but I advise you to tread cautiously—migraine is a complicated disease that is only just beginning to be understood. See Also   Get Involved Migraine.com Tools Getting Help...

living
By Elizabeth Roberts-Zibbel - February 7, 2018
... news journal despite my disability. I thought self-consciously of how every day that week I hadn’t been able to get out of bed before noon. Grateful for an accepting and supportive mom Once I had picked up Zo (school...

living
By Amanda Workman - February 2, 2018
... be supportive and helpful with my condition. As far as spouses go, I have seen enough in various support groups that I moderate to know beyond the shadow of a doubt that mine is by far better than the average spouse. Does this mean... enjoy. If they are simply frustrated and not overwhelmed by pain, maybe suggest that they try some yoga or mediation or something relaxing they enjoy. The extra support goes a long way Some of the suggestions may not seem...

living
By Amanda Workman - December 19, 2017
... to the hospital. Due to this, my thoughts on gifting a migraine stem from the extreme need of the migraine community to have a better support system and for others without migraine to have a better understanding of what we face. Where... a foundation for loved ones to at least begin to understand the true effects of a migraine. We need all the support we can get within the community. Do you like the idea of using technology such as virtual reality glasses...