Barriers to Migraine Care: Share Your Thoughts and Experiences

We’ve all experienced problems with Migraine care on one form or another. Whether it’s been doctors who don’t understand Migraine, emergency personnel who thought we were “drug seekers,” or other problems. Now, we have an opportunity to not only speak to these issues, but to do so by invitation.

Dr. Elizabeth Loder, a wonderful Migraine specialist and researcher, brought this opportunity to my attention, and said,

“We are especially interested in hearing about difficulties headache patients may encounter accessing treatment, their perceptions of the attitudes of healthcare providers to pain (in the emergency department, for example). They should also feel free to comment on any other pain topic or aspect of headache care.”

The Department of Health and Human Services, National Institutes of Health has requested that the Institute of Medicine address the current state of the science with respect to pain research, care, and education; and explore approaches to advance the field. Specifically, the committee will:

  • Review and quantify the public health significance of pain, including the adequacy of assessment, diagnosis, treatment and management of acute and chronic pain in the United States. This effort will take a comprehensive view of chronic pain as a biological, biobehavioral, and societal condition.
  • Identify barriers to appropriate pain care and strategies to reduce such barriers, including exploring the importance of individualized approaches to diagnosis and treatment of pain.
  • Identify demographic groups and special populations, including older adults, individuals with co-morbidities, and cognitive impairment, that may be disparately undertreated for pain, and discuss related research needs, barriers particularly associated with these demographic groups, and opportunities to reduce such barriers.
  • Identify and discuss what scientific tools and technologies are available, what strategies can be employed to enhance training of pain researchers, and what interdisciplinary research approaches will be necessary in the short- and long-term to advance basic, translational, and clinical pain research and improve the assessment, diagnosis, treatment and management of pain.
  • Discuss opportunities for public-private partnerships in the support and conduct of pain research, care, and education.

The committee would like comments from the public about the its charge. Please let us know what you think about barriers to pain care, opportunities to improve pain care, and groups that may not be adequately treated for pain. The committee would also like to hear from individuals about their experiences seeking pain care or experiences providing pain care.

This is a great opportunity for us to affect change in the future of care for people with Migraine, headache, and other pain issues. I hope you’ll take a few minutes to share your experiences by posting to their online public comment form.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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