Barring a cure for migraine, what’s one change that would make your life easier?

I daydream. A lot.

I daydream about my work life, my romantic life, my next vacation. I daydream about totally mundane things, as well: what would the house be like if I moved the couch from one room to another? What should I order at dinner tonight?

Without really intending to, I daydream about my health a lot. Sometimes the dreams are negative ones and are not helpful to my mental health. During rough health patches, I wonder what life would be like if I never felt well again. I wonder what would happen if my triptans stopped working entirely. I imagine setting up a trigger-free home office from bed.

When I’m more optimistic, I daydream about other slim possibilities. I let my imagination run tame (ha, ha) and think about what I’d do to change things if I had the power.

Which brings me to this: barring the discovery of a cure for migraine (which is not likely for at least the near future), what one thing would I change to make life a little easier, health-wise or stress-wise?

The list could go on and on, especially if I’m feeling especially indulgent-slash-spoiled, but here’s what’s on it today:

  1. I’d love to have a second bathroom in the house so I could take long baths without the cat needing to access the litter box or the boyfriend needing to pee
  2. I want perfume, cologne, and other strongly-scented body products banned from planes.
  3. And, while we’re at it, let’s just ban all perfume and cologne that triggers any migraineur, anywhere.
  4. You know what else would be cool? If the moment I walked into a hotel room all the environmentally-friendly CFLs (compact fluorescent bulbs, or “squiggly light bulbs,” as my friend calls them) would magically morph into migraineur-friendly incandescent bulbs.
  5. What if I could give a card to people that said, “Janet is actually a very smart person, but she’s having a migraine right now, so that’s why she can’t seem to string two multisyllabic words together”?
  6. I’d love for well-meaning news sources to take a few minutes to learn more about migraine so they could report more accurately (main point I’d like for them to learn: migraine is a disease, not a headache).
  7. It would be really wonderful to be able to mute TVs and loudspeakers on airplanes, in airport terminals, in waiting rooms, and the like.
  8. As I said in a previous post that proved to be quite controversial, I wish everyone in the world would get just one migraine. Just one, so they could understand what it is like for us sufferers.

What health-related daydreams do you have, silly or otherwise? What simple (or utterly complicated and convoluted) changes would you like to see that would make your life as a migraineur easier?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (14)
  • Claire
    4 years ago

    One change that would make my life easier is not to have uncontrollable mood swings and periods of short term memory loss that upset my boyfriend as much as myself. I’ve dealt with pain all my life and the other parts of migraines but this is one thing that I just can’t live with myself for not being in control of it.

  • Sarah Hackley
    5 years ago

    Janet,

    I’m with you, especially regarding #2, #4, and #5! Thanks for writing this. It’s always nice to know others feel the same. 🙂

    – Sarah

  • tina gascon
    5 years ago

    I would like a magic invisible bubble that can block out all smells, air movement and sounds as well as keeping a constant perfect climate around me like a cacoon.

  • lschweiz
    5 years ago

    I dream of the day of having an understanding supervisor and boss. Of having people understand that this is a disease even though there are no open signs of it unless you really take the time to get to really know me and actually look at me to see that there are visible signs. I also dreams of having pain free live. Going to West Virginia again soon to rest and walk in the mountains.

  • bluebird
    5 years ago

    Perhaps living in a place where altitude and barometric stability combine with the myriad of unknowable environmental factors in such a way that my nervous system seeks balance naturally and that condition does not include Brainstem Migraine with Aura!!! and I don’t need to take any more RX.!!!
    (While I am dreaming, people are kind to each other and their animals. The food and water are plentiful, clean, and all beings are able to experience harmony.)

  • PaulaJan
    5 years ago

    I dream about being in a luxurious spa where I can rest and be taken care of … no phone or tv unless I feel like communicating and no demands on my time. I would like a massage every day, reflexology, yoga and healthy meals made for me. I am home much of the time suffering with migraine and fibromyalgia pain, and I find it nearly impossible to care about healthy food, exercise or anything else. I want to hide away in a dark, quiet, cool environment and would love to have a medication that gave relief for at least a day or so. I think I need a wife or a maid
    …and a doctor who realizes the enormity of the struggle I have daily…and alot more money so I could build a humungous spa for migraineurs!!!

  • bluebird
    5 years ago

    Yes!

  • BethBlue
    5 years ago

    We can’t change the behavior of others, so my wish is to have the means to be able to live in a place where I can better control the triggers to which I am subjected on a daily basis. I’m tired of being told that it’s unreasonable to expect others to change because I am ill. Really? People change all the time for disabled persons: deaf people, blind people, people in wheelchairs. Why not us? Because our illness is hidden? Because people believe we’re exaggerating or faking? There must be heightened awareness and education about chronic migraine, because those who are afflicted are dismissed far too often.

  • onehsancare
    5 years ago

    Yes! My doctor has written multiple letters to my employer saying that I need to work in a fragrance-free environment, but they are too wimpy to make a rule to accommodate my disability.

    I’m not having enough completely debilitating migraines that it feels worth it to go through the expense, stress, and long-term bad feelings (from the employer) that filing a lawsuit under the ADA would bring, but it’s getting close.

  • mrsbrimtown
    5 years ago

    I’d love to be able to afford to stay home and for my husband to be the sole bread winner.

    That way I could stay in the dark, quiet house instead of the loud, fluorescently lit factory during a migraine.

  • Kathy
    5 years ago

    I do this all the time…. I never knew this was a disease…. I have always been told it is just a headache…. I have asked three different doctor’s have u had a migraine….. you know they said NO so I had to tell them they dont understand…. but im so happy I found this page…. it helps so much….

  • Cindi
    5 years ago

    I’m with you. I’d like everyone to have a 3 day 10 point migraine. Because I think what change would help me is that my co-workers not only understand, but CARE. A text only takes a few minutes, if that. It never happens. And I work in a social services office! HA! Thanks for the article, as always!

  • marlenerossman
    5 years ago

    If more men (especially those who work in the medical industry) had migraines, there would already be a cure.

    When men had erectile dysfunction, Viagra was out in a flash.
    NO BODY knows what it feels like to have daily or regular migraines if they have not had one.

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