Finding the Right Migraine Preventive Medication is Complicated, Frustrating

When you live with chronic migraine finding the appropriate preventive medication for your unique situation and characteristics can be incredibly complicated.

Almost no one knows better than me how frustrating it can be to try what feels like a zillion medications and fail every single one. But what can be even more difficult are the unexpected, rare side effects that take an otherwise helpful medication completely out of the running.

In the eight years I’ve been dealing with chronic migraine I have taken somewhere in the neighborhood of 25-30 preventive medications. Until recently, not a single one of these medications did anything to reduce the frequency or intensity of my migraine attacks. Luckily, most of them didn’t have any serious or intolerable side effects for me, either. Unfortunately that wasn’t the case with a medication called Topamax.

It made me constantly nauseated, stupid, slow, tired and depressed. I stayed on it way longer than I should have because I didn’t realize the medication was responsible for those symptoms and because my doctor at the time was a big fan of treating side effects with additional medications. The decision to go off it was easy because it wasn’t doing anything to help my migraines, but the decision isn’t always that straightforward. Knowing what I do now I’d never let things go on that long again, but I think I had to go through it to learn more about what to expect, what to tolerate and when to question the experts.

In the time since I stopped taking Topamax I’ve tried a bunch of other preventive options, and though none of them improved the frequency or intensity of my migraine attacks, none of them caused any side effects either. Nothing serious or even mildly annoying. I’d been very lucky until this spring.

In April I started a new medication for migraine prevention called Savella. This medication is not FDA approved for migraine prevention, but has been FDA approved for fibromyalgia, so some doctors theorize it might help with migraine prevention, too. As I began slowly, steadily increasing my dose of Savella I noticed I was feeling more energetic and less moody. I wasn’t needing as many naps to make it through the day and even though I was in a similar amount of pain, I was able to do a bit more around the house, such as cooking dinner more often. Unfortunately Savella turned out to be a less than ideal for for other reasons. It turns out Savella has been making my otherwise healthy blood pressure sky high. Like, in danger of having a stroke, high.

I was so bummed out when I realized I’d have to back way off the Savella dose and maybe even stop taking it altogether. It has been so rare for me to find any preventive medication that offers me even a slightly better quality of life or increased stamina. And now because of some rare side effect I have to go off it and lose all the gains I was enjoying so much. It’s frustrating. It’s also a really good reminder of how many factors come into play in trying to find the right preventive medication for your particular body, symptoms and needs. Once again it’s back to the drawing board for me.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (60)
  • Angela Harris
    5 years ago

    I’m sorry that Topamax wasn’t a good thing for you. It has been a lifesaver for me. I’ve been on it for over five years now with the exception of the time I spent being pregnant, and it has been the first medication in my life that has both worked, had very tolerable side effects to no side effects, and that I’ve not gotten tolerant to. I’ve gone from having between 12-15 migraines/month (averaging 1 in three days pain free when all was said and done with length of attack) to maybe having one or even sometimes less.

    I do understand your frustrations though. My neurologist freely admits that I tolerate it better than almost all of his other patients who have tried it. So, I know that most people have a really tough time with it. Still, when it works for you, it apparently works very well.

  • Diana-Lee author
    5 years ago

    That’s awesome! I’m so glad for you it has been so life changing. 🙂

  • Charlotte Haviland Parkins
    7 years ago

    I really enjoyed reading this article. I have been on Topamax for I think 4yrs now. Other than the initial weight loss I got from when I first started taking it, which is all back now lol, I actually don’t think it helped all that much. My Neurologist has even increased my dosage. In reading your testimony about Topamax not working for you as well then it isn’t just me. Especially since I am still refilling my 18ct rx monthly clearly shows me it isn’t working as effectively as I would like. I am constantly tired all the time now and I can’t seem to sleep. I will have to see about trying something else. Thank you.

  • Charlotte Haviland Parkins
    7 years ago

    Me too. They haven’t gotten any worse, but they haven’t gotten any better either. I’m so glad it worked for you. But I swear by the imittrex lol

  • Helena Robinson
    7 years ago

    Oh Charlotte…I sure wish Topamax had worked for you. I am convinced it saved my life….it was a looooong struggle to get the dosage right, but now I have been on it for several years and I rarely get a migraine. I did have problems with sleep…so the doc put me on Elavil as well and I sleep like a baby. I went from paralyzing migraines every couple days to being almost pain free…life is good. (Unless I forget to turn in my refill…yep…I work at a drug store and I forget….then boom…I get a headache. Needless to say, I don’t forget anymore. Lol)

  • Brooke Steward Pitts
    7 years ago

    I have tried almost all the preventative medications for migraines and most have had bad side effects that out weighed any benefit…which there really wasn’t any benefit that I noticed. I have realized one thing and that is that you know your body and what it can and can’t handle. I am now waiting to see if my insurance will aprove me for botox injections…fingers crossed because I hate taking medicine.

  • Kelly Ryan
    7 years ago

    I have been on topamax too, and it caused 3 kidney infections in a short time, and put me in the hospital for IV antibiotics. I have tried so many meds, ocipital nerve blocks, botox, nothing works, I have 30 migraines a month. It is so frustrating. It’s nice to read others are experiencing the same thing.

  • Traci Lin Friend
    7 years ago

    I can relate, too. Been going to the doctor for migraines since 2004 and still haven’t found one that works for me. Right now I am in a break from trying new meds because I feel like last year was completely lost and wasted due to all of the bad side effects I experienced. I am ready to start trying again soon as I am hardly getting a break from the migraines these days. While I don’t want anyone else to suffer, it’s nice to know that I am not the only one struggling finding a med.

  • Catherine Charrett-Dykes
    7 years ago

    I can complete relate to this one too…and it is nothing to the drs to say try this and come back in a month…then during that month while you are trying to find that right level, the suffering continues…topamax was the first of many horrible meds I tried as well, I’ve had the best luck w/the nerve stim and botox.

  • Diana Lee
    7 years ago

    Thank you!

  • Janice Worden Lamb Clemens
    7 years ago

    I will ask my primary doc about Lamictal…Still have the daily migraine, but I keep plugging along, I read the above article about Savella and I was put on it and it caused my blood pressure to go up tremendously and also I couldn’t tolerate the nausea, The migraine nausea is bad enough and the Savella made it worse. But I am now on Topamax again , 100mg daily along with Coq-10, and tizanidine. It seems to help some but hte Coq-10 is very costly so I don’t know how long I can manage the cost of it in my budget as it is otc so of course not covered by my insurance.I am still working towards a treatment that works and am not giving up yet.

  • Laurie Case Vincent
    7 years ago

    Try the preventative medicine called Lamactil(Lamotrigine). I went from having 25 to 30 migraines each month to only one or two each month. I have been taking 3 25 mg twice a day for 5 1/2 years without any side effects. Good luck. 🙂

  • Laurie Case Vincent
    7 years ago

    3 25 mg tablets.

  • Beth Hoff
    7 years ago

    I would like to know if there are any any drugs out there that aren’t anti depressives. My partner who has a migraine every day can’t be on anti depressants because they interfere with her other meds. She has tried about 40 or so and now we are looking into Botox.

  • Danielle Turney
    7 years ago

    I so understand your pain and suffering. I have had migraines for 27 years and each year since the 1st one they get worse and more painful. When I was pregnant, I had a migraine everyday for my entire pregnancy.So for my health my doctors told me NO MORE babies. I can no longer work due to my migraines. I have never had a preventative medicine work and I have tried so many. One was making me sleep eat, I would wake up and there would be dishes in the sink and I didn’t remember getting up. I now suffer from short term memory loss, like with in a few minutes of something happening. I spend more days in bed then I do out. I have no social life because of my migraines. So all I can do now is get Botox every 3 months and in between I use a muscle relaxer and a ice bag, then lay in the dark to try and cope. Hope you find something that works.

  • Angela Reisinger
    7 years ago

    I have lost count of the preventative meds I have tried for migrianes. At one point I couldn’t get out of bed for nearly 6 months due to migraine.. that’s when I found Tomamax. The best and worst thing that ever happened to me. At first I felt great and even lost weight. After a while it began to lose its effect and even started to give me a personality change. My hair started falling out and my face twitches. ( that is not listed in the side effects ) I still haven’t changed meds because I’m not sure if I will go completely back into a migraine coma but my doc just keeps adding things. The side effects of this drug are not fun. When will we come up with somthing better?

  • Chester Lee
    7 years ago

    Take 5 topiramate 25mg /2 magnesium oxide 400mg / 1 vitamin b-2 100mg A DAY…

  • Davidiva Allen
    7 years ago

    It is the FDA and their partnership with PhrMa that is the problem with keeping the drugs that work on migraines off the market…allowing those of us who have taken Midrin and /or the generic forms of Midrin to seek other more expensive medications that do not alleviate the problem, nor do they do anything to prevent the headaches. The Pharmacology Industry pays a “user drug fee to the FDA” giving the FDA billions in revenue from these so called new drugs.

    Congress must repeal the the Drug User Fee enacted in 1992, that has been foisted upon The American People allowing Pharmaceutical Companies to determine which medicines is most profitable for them and ignoring what medicines actually work!

    I have suffered all my life with Migraines and the only med that constantly worked for my migraines was Midrin, and still be able to function and live a somewhat normal life…despite certain smells or weather for they are my triggers.

    The FDA is not here to protect us any more they are there to make billions of dollars from the Pharmaceutical Companies around the Globe.

  • Val Milo
    7 years ago

    Thanks for sharing, I also hate topomax. When I told my doctor (at the time) that I was having MORE headaches with it, he looked bewildered and said he had never heard of that before. Wow that’s really strange because it’s on every list of side effects there is! I had all the stupid too and dizzy and fell down a couple of times.

  • Beth Henshaw
    7 years ago

    I was on Savella for fibro/RA. I have a history of menstral migraines that I would treat with birth control pills. I would shorten my spacer pills. I weaned off of Savella, and I have had rebound migraines all this last month. Horrible. Like 7, with a constant feeling like that one was always on its way. Nausea, photosensitivity. Not to mention, very high blood pressure. I thought it was due to my RA medications. I think its the Savella. I’m now on antihypertensive medication. I wish I had NEVER listened to my rheumatologist and started that med.

  • Victoria Saxton
    7 years ago

    Hello all, realise I come to this discussion about a year late but Diana has just re-posted this on Twitter and I’ve just written a blog post myself on my adventures with Topamax! I’ve suffered with chronic and episodic migraines for over 13 years and have also tried everything under the sun, from Botox to Beta-Blockers. My troubles started with a ‘minor’ car accident, so I have minor spine damage and I am also genetically predisposed.
    I do wonder if a lot of the trouble with Topamax is that people are started off on too high a dose? I started on 15mg and was told to increase at basically my own pace depending on side effects! So I’m still on a relatively low dose and don’t plan to increase till I feel comfy. I’ve heard horror stories of people being started on 50mg a day? I won’t go on here but you can read my Topamax drama here http://www.migrainemonologues.com/2012/03/getting-rich-skinny-off-migraine.html.
    I’d love to hear other’s story. My blog is relatively light hearted and I hope to bring a smile to other chronic sufferers. Thanks for this post Diana! x

  • Chandee Payne
    7 years ago

    I’ve tried so many preventative meds and not one has worked significantly and all had side effects. I’ve lost half my hair, I’ve had changes in facial structure, etc. thanks to these meds that don’t help. I’m done with preventative meds!

  • Diana Lee
    7 years ago

    Even though it’s frustrating, I think it helps to know we’re not alone in these experiences.

  • Becky Grant
    7 years ago

    I also suffer from 5-6 migraine days a week, have also tried 20-25 preventative meds. currently trying Lythium, but concerned because it requires a monthly blood test. All these meds we take can’t be good for us……. But what else can a person do.

  • Carolyn Frazier
    7 years ago

    I’m so sorry to hear that Savella didn’t work for you. I had the EXACT same experience on Topamax and it was very scary. I’ve been taking amitriptyline for over 5 years now. I’m not sure if it directly helps reduce my migraines but it helps me sleep each night – which helps me serotonin wise. It’s one of the oldest anti-depressants so I trust that it’s safe and the only negative side effect has been a slight weight gain.

  • Jennifer Guzman
    7 years ago

    Sorry to hear your story. I feel the way you do, and I have only tried four so far. The latest one is Topomil, which is a beta-blocker. It made me depressed, exhausted, irritable and I think it was actually giving me headaches. Back to the drawing board for me too. Good Luck to you!

  • Chastity Poindexter
    7 years ago

    Wow, I can completely relate to your frustrations. I also suffer from severe Migraines without any real relief in the end. I try so hard to deal with it, but that seems to get more difficult with each passing day. I have to hold on to the belief that someday it just won’t hurt, and I can have that happy brave face for real.

  • Becky Jo Curtis
    7 years ago

    I have gone through something similar. My days are a constant blur of headaches and migraines. I have had them since I was 11. I have tried multiple daily preventatives:verapimil, amitriptaline, beta blockers, topamax and a few more. My neurologist finally got my insurance to try a cortizone shot in my neck and back….so painful and no results. This last june I attempted the botox treatment. I had a horrible rebound headache for about 3 days, I am on the third month and am finally feeling it wearing off. I have gone over 7 days without migraines, no more daily pills, and if I take a maxalt or imitrex right when I am getting a migraine I can usually stop it. I am getting ready for my next botox treatment in two weeks. I highly recommend it.

  • Debora Cloutier
    7 years ago

    Multipule sufferer here to . I just am at my wits end. I have also suffered since I was 11 . I believe a concussion at that time started it . My grandmother was a daily sufferer as well and she died of a brain tumor at 44 . I am 45 . My husband is very understanding and I have not been able to work for over 25 years . It is a constant roller coaster .

  • Becky Jo Curtis
    7 years ago

    Anytime. I hope u find something that works. Its rough to try to get thrl
    rough days with nasty migraines. Anytime u have a question please feel free to ask

  • Chastity Poindexter
    7 years ago

    Thank you so much for your response and info. I will be sending thoughts and prayers your way. Mutual Migraine sufferer.

  • Becky Jo Curtis
    7 years ago

    I would wake up with a constant headache that would develop into migraine 3 to 5 days a week. Going 7 days and have a migraine was amazing. Its almost been 3 months and I have had only 4 awful migraines. This week I have been waking up with headaches. I have never had the pain I had for those three days, but its been worth it overall. I am doing my next treatment in 2 weeks and im off a daily. I have had to try lots of preventatives over the years and nothing has helped to this amount…love being so clear

  • Chastity Poindexter
    7 years ago

    Becky, is the 3 day rebound worth the pain? How much besides that 7 day stretch in 3 months have you been w/o migraines? I’m happy for your relief, just researching my options: not trying to offend.

  • Patty Ruffcorn Mayberry
    7 years ago

    Oh Beck that is so hard to read, take care!

  • Ingrid Olsen-young
    7 years ago

    So glad you are getting relief from your migraines!

  • Janice Worden Lamb Clemens
    7 years ago

    my neuro just put me on the new anti-depressant Viibryd, it has an indication for migraines. I took 1 pill and the next day was one of my worst days ever. I had absolutely no energy, muscle pain, and it was like being a zombie. I was hoping this would work for me but the side effects were awful. I am still on Neurontin and my neuro increased the dose to 900mg at night. I wtill have the daily headache so I am at a loss now. I feel like no one is listening to me. I feel like I am going crazy. I have been battling the daily headache for well over a year with very little relief. My neuro told me if the Viibryd didn’t work he wants to try Lamictal. Not so sure about trying it, I have to research it first. I usually have a very high tolerance to nes medication and the side effects usually don’t bother me but Viibryd side effects were intolerable.

  • Laurie Case Vincent
    7 years ago

    I have been taking Lamactil(Lamotrigine) for 5 1/2 years. I take 3 25 mg. tablets twice a day. It works great. I went from 25 to 30 migraines each month to only one or two per month. Good luck!

  • Louise M. Houle
    7 years ago

    Are you feeling any better Janice and found any relief? A friend of mine is on Lamictal and, with a combination of efforts (lifestyle changes, etc.), he has gone back to episodic migraines from chronic. Hang in there. I know this reply is late.

  • Janene Zielinski
    7 years ago

    I’ve been the same exact route as you. I called it “stupomax” and I don’t feel I ever truly regained all I lost. 25 years of fighting and drugs too many to count. On a “whim” I tried going gluten free – basically to prove to myself that it couldn’t possibly be something so simple since I’d already tried abstaining from all the other “food related” triggers and none helped. 6 weeks in being completely Gluten Free I noticed my “brain fog” lifting and a few less migraines. 3 months in and about a 75% reduction in migraines. I know it’s not the same miracle for everyone it has been for me – but, if you haven’t tried it for at least 3 months – at least it is not drugs, isn’t expensive and does no lasting damage to your body. And just think…. it might help.

  • Marion Christ
    7 years ago

    Hi- I too have chronic migraines. I have been GF for over 3 years. It made a huge difference for a while, like a couple of years. I have been vegan and gone off of soy also. I recently, the last 6 months or so have had a big increase in the number of migraines, still off gluten, soy and dairy for the most part. Feeling like my body has just gotten accustomed to those changes and the migraines are bad. I am currently trying Nortriptyline, been two weeks and not feeling any change or help yet. Hard to remain hopeful when there is no change….

  • Paula Arledge FitzGerald
    7 years ago

    Yes, I used to eat mostly GF and saw some relief. I have heard others talk of a change in arthritis. I’m planning on going back to eating GF.

  • Debbie Golaszewski
    7 years ago

    Janene, I tried the gluten free diet for the very same reasons but maybe I didn’t give it a long enough trial. After about 3 – 4 weeks, I thought I was having fewer migraine days but didn’t think it was helping much after that. I just stopped a week or two ago at 7 weeks. I did have more h/a free days in July than in May or June. I’m so glad you wrote this because I think I’ll go back on it and give it a longer try. Did you cut out soy also or just gluten? After the 6 week period, did you see a constant improvement? Interestingly, I discovered that my arthritis improved a lot on the GF diet….and definitely got worse within a week of discontinuing it! Has anyone else had success with this?

  • BB
    7 years ago

    I have been put on a calcium blocker, diltiazem 30mg at night and nortriptyline 50mg, which is a depression medication used a lot by doctors for migraines. I have been happily surprised with the results. Will have very dull pain I wouldn’t even call it pain, just a feeling quite doesn’t take over as usual. I had to call the doctor and ask if I could start off with 1/4 pill of the 30mg diltiazem am then pm and increased it weekly by 1/4 until I get to whole pill. She said anyway you can do it without sleepy results, which at 1 pill made me sleep all day next day, it worked for me increasing like this. No other side effects from either medications. Loving them both. I had for past 2 years had very bad vertigo, nausea, ear-pain, eye pain, sinus pain, you name it in the head I had it. So glad with these results. Hopefully all will calm down eventually and can be taken off later in maybe year or so. Or I may be dreaming. I am the type that hates taking any medications, and past two years I have had much more than I wanted to use. I have always been a believer in natural healing but nothing natural has helped with this ailment, migraines are the pits!

  • Barbara Richards
    7 years ago

    having lived with migraines for the past 43 years I have also tried a landury list of drugs with varying side effects. a polaties instructor told me about Active Release Techniques: A.R.T.
    Cleveland Chiropractic College and ART will be presenting a Long Tract Nerve Entrapment course with gross anatomy on September 10th and 11th 2011. It has helped reduce the intensity of pain. May not help every but is worth the try the first few times can be very painful and the chiroprator should talk to you abiut that but if you keep with it could help. My new neuo wants me to continue please of the problems I have taking meds. Thinking good thoughs for you.

    http://www.activerelease.com

  • Louise M. Houle
    7 years ago

    I feel for you Diana Lee, and the others who have posted. Guess there’s lots of us in the same boat. I’ve tried 19 prophylactics in 10 years to no avail. Topomax and Methesergide were the absolute worst in terms of side effects – the latter made my legs cramp so severly I almost couldn’t walk. Also tried various natural treatments and remedies that so far have not worked. Botox only reduces facial/neck/shoulder pain a wee bit but doesn’t help the migraines. Occipital cortisone injections didn’t help; nor did the mouth guard for TMJ… So far, what has been the most helpful in terms of improving my quality of life and reducing anxiety has been mindfulness meditation; took a course based on Jon Kabat Zinn’s 8 week program. Highly recommend it (or his book!). Take care everyone and let’s keep sharing what works for us.

  • Debora Cloutier
    7 years ago

    I was on Topamax for a year , I am also on Paxil ..Well a little known side effect of these 2 combined is you get your period every 11 days. Dr.wanted me to go have all kinds of tests on the plumbing casue that clearly was the problem. On a whim I googled the 2 drugs together and the first link was all about the side effects. I stopped the topomax and went back to normal periods. I shudder at the amount of tests I would have had done for no reason …

  • Louise M. Houle
    7 years ago

    Hi Molly, the same thing in my case. When I first started meditating, I was consistently doing 20 mins a day for 5 months straight and it actually did start to help my migraines. But then some stressors kicked in and my practice waned. Since then, I find myself practicing on and off. I keep hoping to get back to a committed schedule but find it hard. At least it helps the anxiety for now. Be well and keep posting. Helps to share 🙂

  • Molly Sweeny
    7 years ago

    wow – you sound like me! i agree with the mindfulness meditation – although i wouldn’t have believed this before. i tried it just on a lark – and it has made a difference in my mental state (not the migraines though). thanks for sharing.

  • Diana-Lee author
    7 years ago

    That’s not a silly question at all, Abby! We tried putting me on a medication for the high blood pressure and backing off the Savella, but even at the lowest dose of Savella and a higher dose of a blood pressure med, my blood pressure stayed dangerously high. It was really disappointing.

  • Karen Stanley Haack
    7 years ago

    Sorry, I know what your going through all the meds made Sami even sicker…visit after visit to the ER from anaphalactic shock etc. The one thing that did help Sami was a hot bath with a cold pack for her head and laying in a dark room. Sami also vomitted with her migraines it turns out they were all related to histamine intolerance……I had read that a sudafed with a can of coke and 2 tylenol help some people…it did help sami…those are 2 meds that are not histamine liberaters.

  • Abigail Bristow
    7 years ago

    I had to come off the topamax too I wasn’t eating at all or sleeping at all. it was awful. I was trying to stay on it hoping it would be helpful but after about two months of not sleeping and losing 20lbs( I am already to small to lose weight I just can’t afford to do that) I stopped. I actually go to see about nerve block injections today I hope they stop this cycle of never ending pain and frustration. have youtried that? I am going to see if the archives have an artice on that god willing we will all eventually find what works. I have found the Lyrcia helps all the tight and cramped muscles that migraine are giving me but it’s a small gain doesn’t help the head but it helps the neck and back which makes me a bit more comfortable.. anyway I hope this finds everyone well have a greta day talk atyou later <3 U <3 abby.

  • Molly Sweeny
    7 years ago

    thank you for the tip about Lyrcia; i’ll have to check into this!

  • Joy Perez
    7 years ago

    I can completely relate. Except my prob is I often experience intolerable side effects w/ many of the preventive meds. But, I need an effective preventive med cuz my migraines are on average 5x a week. If I take too many pain meds or abortive migraine meds, I get rebound headaches. Drs won’t do much now due to being pregnant. Can’t wait til I deliver & can have some more options. It is very frustrating, to say the least!

  • Terri Williams-Yeadon
    7 years ago

    I can take them for about a week then they just stop working and so they have stoped trying new ones wiith me

  • Molly Sweeny
    7 years ago

    know how you feel. same thing with my pregnancy. we adopted our second. couldn’t do the migraines without drugs again. coke and saltines kept me alive during the pregnant migraines. nothing else would stay down… hang in there!

  • Jenn R
    7 years ago

    joy, are you able to take any preventitive or meds when you have a headache? Just wondering what options I might have in the future.

  • Tracey Wilson
    7 years ago

    I can relate to this – Topamax had me suicidal 🙁 Have you tried Botox, it is the only thing to work for me 🙂

  • Joseph Perez
    7 years ago

    I can relate. Since 2006 I have had Migraines 24/7 the only change is the level of pain I am in at any one moment (mostly ranging from 7-9). After trying so many different medicines (I can’t take a number of preventative or interruptive meds due to heart conditon) over the years, I’ve been left with using pain meds. I’ve even tried the Botox shots-they didn’t do anything. I finally got referred to a Pain Management Program and this coming Wednesday I will receive an epidural in the C3-4 section of my neck-I hope it works.

  • Tracy Brooks
    7 years ago

    I feel yah on that one…..seems like our story can be a twin of each others…at a loss right now and don’t really know what to do or where to turn to…..My doc is looking iinto another drug that is not covered by insurance and I don’t care at this point in time; I will give it a go and see if it helps because truly I CANNOT LIVE THIS WAY MUCH LONGER!

  • Abby
    7 years ago

    I feel you. I’m up to about 20 different preventative meds I’ve tried. Still with no luck. Savella sounds really interesting and I’ve read a little bit about it. My doc won’t prescribe it because “you don’t have fibromyalgia.”

    Silly question, but would taking a blood pressure medication to lower your numbers be an option? If Savella is giving you relief, it’s such a bummer you can’t continue it.

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