Skip to Accessibility Tools Skip to Content Skip to Footer

Headache on the Hill 2014 Preview

Weather permitting (knock on wood), I’ll be leaving for Washington DC this Sunday to participate in the 2014 Headache on the Hill event.

Headache on the Hill is an annual lobbying event sponsored by the Alliance for Headache Disorders Advocacy (AHDA), a coalition of groups focused on increasing the visibility of the burden of and getting more appropriate research funding for Headache Disorders. AHDA brings together health professionals, patients and people who care about Headache Disorders to lobby Congress with a focused message and concise set of requests (aka asks).

On Monday afternoon AHDA leadership and legislative experts from the American Academy of Neurology will lead an overview briefing participants on how to talk to our legislators and their staff and the specific talking points we’re focusing on for this year’s event. We’ll have specific asks we’re tasked to highlight during our appointments. But as with last year, we’ll have an overarching focus on the prevalence of Headache Disorders and disparity in research funding when compared to other diseases with similar burdens. Finally, sharing our individual stories can be one of the most powerful aspects of these appointments.

On Tuesday each Headache on the Hill participant will visit the offices of his or her own Senators and Representatives. Therefore everyone divides up intro groups by state to make the rounds to their appointments on the Hill. Last year I was the only person from Kansas who attended, but it worked out fine. I won’t mind if, as I suspect, that’s the case again this year.

After the event I’ll be sharing specific information about our asks and requesting that each of you write to your Senators and Representatives in support of the same goals. Even if you can’t be there with us, you can reinforce our message and amplify its impact.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Linda
    5 years ago

    Hi Dianna!
    After learning about Headache on the Hill, I have been trying to get in touch with someone who can tell me how to become involved. I have tried contacting AHDA, but have received no response. When I went to their website during the time of event this year, there was no information. I have been involved in the political process in another capacity for the last 6 years and would like to turn my involvement into something that can help me and others with migraines. Could you please advise me as to the best way to become involved in this event and other like it? Thanks so much.

  • msruff
    5 years ago

    After almost 16 years of a constant migraine, I went to the Jefferson Headache Center in Philadelphia, which was able to get it totally under control. People need to be made aware of such resources. Migraines do NOT need to be a part of your daily life.

  • Katie M. Golden moderator
    5 years ago

    msruff,
    I too have been to Jefferson and just recently posted an article about my first visit and will follow-up shortly with another about a more recent visit. It has been a great resource for me and I’m glad it helped you.
    I’m also excited to hear from Diana about Headache on the Hill!
    -Katie

    http://migraine.com/blog/headache-camp/

  • Linda
    5 years ago

    How do we find out about this to attend next year? I would have loved to attend!! February is the month I have time to take off from work as well. Is there an email list to get onto? I went to the Alliance for Headache Disorders website and it looked like it had not been updated in a while and when I clicked to be added to their email, I got the message that that particular function was not working. How was the event? I would love to hear about it.

  • Poll