Tell Congress We Need Hearings on Migraine

Some of the biggest problems faced by those of us who live with Migraines are a result of inadequate funding for research and educational initiatives.

Have you tried medications for Migraine prevention? If so, you may have noticed that there are none available that were originally developed for Migraine. Not a single drug.

All the medications we use are hand-me-down medications that were originally developed for another condition, then found to work for some people for Migraine.

The continuing misconceptions and myths that surround Migraine make it harder to live with Migraine too. It’s difficult to function in a society where so many people still think a Migraine is “just a headache” and that we should be able to “pop a couple of Tylenol” and “get over it.”

Then there’s the stigma. Studies have shown that the stigma associated with Migraine increases the burden of the disease. Some employers thing we’re lazy and looking for time off work. Coworkers often thing we’re just being difficult when we ask them not to wear perfume to work because it triggers our Migraines. I could go on, but you know what I’m talking about.

At the root of much of this is one basic fact – Congress and the agencies they oversee, such as the NIH, simply are unaware of the huge scope of the problem. They’re not going to suddenly become aware, so we need to do something to help make them aware.

The Alliance for Headache Disorders Advocacy (AHDA) has been working toward increased NIH research funding for Migraine and other headache disorders. We’ve made some progress, but it’s just not fast enough, so we’re working on a new strategy. We’re working to get Congressional hearings held on the impact of Migraine and other headache disorders. Such Congressional hearings have been highly beneficial to those with other diseases. One example is the Congressional hearings on Parkinson’s disease. You may remember them being televised and Michael J. Fox testifying during these hearings.

Today, I’m asking you to please sign an online petition urging Congress to hold the first-ever Congressional hearing on Migraine and other headache disorders. Such hearings don’t just happen because we sit back and wish for them or because “other people” take action. We all need to take action, and it’s so simple it can be done in two minutes – literally.

We’ve prepared the petition. All you need to do is follow the link to the petition. Add your first name, last name, email address, and ZIP code. Then click the “Sign the Petition” button. If you want to add additional comments, space is provided. Once you’ve clicked the button, a page come up, inviting you to share it with your friends via email, Facebook, and Twitter. That extra step is also very short and quick, and it can lead to more signatures, making the petition more effective.

Please, SIGN THE PETITION.

Thank you!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (13)
  • Tammy Stump
    7 years ago

    sure did!

  • Vicki Stone Brown
    7 years ago

    I signed

  • Susan E Clegg
    7 years ago

    I tried to sign but I couldn’t pull up the sign site ……

  • Marja Lawrecki
    7 years ago

    Everything is A ok here Sue. Did you get the email I sent you recently?Geeze. We got 7.3 inches of snow last night. Spent today shoveling, and salting and walking the dog out in the snow in my wet leaking boots. That picture sure is sweet. Which one is you and who is the other.
    Very sweet.

  • Marja Lawrecki
    7 years ago

    Sueeeeeeeeeeeeeeeeee I didn’t know that was you!!!!!!!

  • Angie Leblanc
    7 years ago

    I signed! the petition!

  • Louise M. Houle
    7 years ago

    Anyone from Canada reading Teri’s inspiring appeal? And if so, are you interested in getting involved? Would love to hear from you. There’s even less being done here in Canada. We could use to team up. We would all benefit from advancements, research… in both countries. Some exciting stuff is happening in Montreal, Quebec. I’m helping found a new migraine non-profit and organize a conference, both in 2012. I’ll let you all know as we make progress and will send you link. If you understand French, you can already check out: http://migrainequebec.com/.

  • Louise M. Houle
    7 years ago

    Cathleen MacPhee Wonderful Cathleen! You can write to me via our support group website: http://sites.google.com/site/migrainezero/ Look on the left, bottom: “Pour plus d’informations” for the email address. Looking forward to hearing from you. Be well.

  • Cathleen MacPhee
    7 years ago

    And Louise, I would love to be a part of whatever conferences, research, awareness campaingns or anything else I can be here in Canada. There wasn’t a lot happening in Montreal when I was there, but at least there were docs who seemed to know something, and who cared to learn about what they didn’t know. My french has gotten more than a little rusty since I’ve left but I am sure with some practice I could bring it back up to speed with a bit of practice.

  • Teri Robert
    7 years ago

    Louise M. Houle Understood, Louise. I wish you great success!

  • Louise M. Houle
    7 years ago

    Teri Robert The goal was actually to develop a site at least for now only in French because there are already a lot of great sites like this one which people can turn to for info. in English. But there really is very little in French. I will keep you all posted though. I’m excited things are finally happening thanks to the arrival of a new migraine specialist/neurologist named Dr. Elizabeth Leroux. It’s an honour to work with her.

  • Teri Robert
    7 years ago

    Thanks, Louise. I speak very little French. Let us know when there’s an English version, please? This is exciting news. Good luck!

  • Louise M. Houle
    7 years ago

    Oh, and for all my American friends and family – please please please sign the petition (Click on the link: Tell Congress…) for all of us who live with migraine. Thank you so much!!!

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