Join me for the Migraine World Summit, April 15-20, 2016!

Last month, a fellow named Carl Cincinnato sent me an email asking if I’d be interested in doing a video interview for the first Migraine World Summit, a first-of-its-kind virtual gathering he is hosting April 15-20, 2016 (which will then remain accessible online).  Though I’m not exactly well known in the world at large, I do have a lot of people in the migraine world who are familiar with my writing and advocacy, which means I get approached fairly often about opportunities to write and speak. Because I value my time very much and have to keep a good work-life-home balance, I end up saying no to opportunities about 90% of the time, even when in my heart I want to respond with a resounding, “Yes! Sign me up!”  My life is a lot better when I’m not overcommitted, but as someone who wants to be active and giving of her time and talent, it’s hard to say no—but if I don’t take care of myself, I won’t have any healthy energy or time at all, so I know why I have to make the choices I do.

So when Carl approached me about the Migraine World Summit, I immediately thought, “Nope!” After looking at the list of speakers already slated to be a part of the summit, I admit I was feeling a little intimidated and under-qualified. There are over thirty migraine thought leaders (from world-renowned experts to advocates to leaders of nonprofits and more), and I wasn’t sure what I could contribute.  Instead of saying an immediate no, I asked Carl for more information and he gave a thoughtful and compelling reply.  While focusing on the fact that he didn’t want to pressure me to do it and that there’d be no hard feelings if I declined, Carl emphasized that he thought my personal story, especially as it relates to being a chronic migraineur who runs a business while also dealing with autoimmune issues, would resonate with virtual attendees.

I felt encouraged and challenged at the same time. I felt nervous and excited.  Whenever I have this particular combination of emotions, I know that—if I’m feeling good enough—I need to say yes to the challenge that has me thinking this way.  I have always felt empowered after completing these challenges and have never regretted saying yes.

So I signed up. The day of the interview, which would be recorded during the evening my time, I suddenly got very nervous. I prepared a little bit, looking over the questions that had been sent to me, but mostly I procrasti-cleaned. My bathroom got shiny and my office was more organized and appealing than it’s been in months.  I am nothing if not a procrastination queen.

Once the call started and I got to see Carl face to face, I felt at ease, especially when Carl mentioned that he, too, is a migraineur. He emphasized that I shouldn’t fret if I made mistakes or had hesitations or other verbal issues—he wants the audience to have a genuine depiction of how hard it can be sometimes for migraineurs to find the right words. I think I did okay (I was migraine-free, thankfully), but getting explicit permission to mess up made me feel much calmer.  We ended up having a really great conversation, and I sure do hope you’ll watch my interview, which will be live on the summit Sunday, April 17th at 3:00 PM EDT.

You can join this free online event by claiming your complimentary ticket right here. You’ll have questions about how the summit will work, but rest assured the email you’ll receive after you sign up has all the information you need to know how to access the content during and after the summit.  I love that you can watch from the comfort of your own home (your own bed, even)—no need to make travel plans, worry about that guy next to you in the audience who bathed in aftershave, or panic if a migraine attack makes it so you can’t attend virtually the very minute you want to.

I plan on attending/watching as many interviews as I can, and I hope you’ll join me.

And, because I always like to hear from you all, here are my questions for the day! 1, Have you ever attended any kind of migraine convention/workshop, either “in real life” or online? Tell us about it! 2, Do you think that virtually attending any of these Migraine World Summit sessions with a loved one (i.e., watching them together on a laptop in the comfort of your own home) might help you both understand your illness better? Why or why not would you think about doing that? 

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (13)
  • Shinetrue
    3 years ago

    I thought it was great although I missed some of it. Had never attended anything like that for migraine, thought the group of people brought together was great – especially the genetics one – although I wish she went into more detail, it was a good overview for those that might be thinking of genetic testing (I have and it was a great help). I also liked that so many of the speakers mentioned that tracking was absolutely critical. I didn’t necessarily learn anything new but I thought it was great information to get out there since so many of us have doctors that just want to write a prescription and get you out the door.
    2) I have a very understanding husband and I also know why I get migraines and have them under control so having a loved one watch would t necessarily help. But it would have helped 3 yes ago when I was getting a migraine every 3-4 days.

  • The Migraine Girl moderator author
    3 years ago

    A belated thank you for this thoughtful feedback! I haven’t watched the genetics one but will have to look into that–I hear that it was helpful for a lot of viewers.

    Please tell your husband we migraineurs thank him for being such a thoughtful caregiver and friend to you!

    -Janet G., “The Migraine Girl”

  • fetchthespoons
    3 years ago

    Janet, your talk was such a good addition to the line-up and I loved it.
    I’ve so far been listening to those that I feel will be beneficial to me, and yours was the top of the list. I also have migraine and headache, have an autoimmune disease (mine is SLE/lupus) and run my own business. My lupus causes the most problems with my business, but as I run it online from home and on my own, I have that flexibility I desperately need. I was interested in hearing how you manage your migraines whilst starting and running your physical store and how you feel and deal with the two conditions. Your story was an inspirational one and I’m sure it would have really inspired many.
    Hearing from someone with similar life experiences to me was lovely so thank you for doing it and well done Carl for explaining to you so well why you were such as good addition to all the medics.

    In answer to your questions:
    1. No this was my first. I found out about it on facebook and I am so glad I did. I was able to do my work alongside listening to it, and with many things knowledge is always power. In this case the more the information and different views I can hear the better I can understand my illnesses, learn, grow and adapt to them.
    2. Yes it would have been useful. We both suffer from headaches so I don’t have a problem with her understanding the migraine side of things. She’s working long hours at the moment so I am summarising them for her. Oh the whole though having a migraine convention is brilliant not just for the sufferers but partners as well. A lupus convention would be really good too as it’s even more misunderstood than migraine I find.
    Anway, thanks again Janet.
    Jo (in the UK)

  • The Migraine Girl moderator author
    3 years ago

    Jo,

    Thanks so much for your thoughtful and heartfelt responses. I am grateful to hear that you, too, have found a way to work for yourself despite chronic illness. What kind of business do you run?

    I’m keeping my fingers and toes crossed that you’re feeling happy and healthy today. Thanks again for reaching out.

    -Janet G.

  • marescontrares
    3 years ago

    Girl, way to represent for us migraineurs! THANK YOU for making the time to do the summit. Your story absolutely turned my crappy day around! I’ve been struggling to start a business with a friend, and it stalled hard this week with a string of hardcore migraines, so your story absolutely resonated with me. To answer your questions: It’s my first migraine summit and I have been loving just steeping in all of the info, experts, advice, every day. (Some days curled up fetal in bed with the lights out, of course.) Carl has done a remarkable job putting this together. (He’s one of my new heroes, as are you.) And yes, I’ve saved specific points over the last few days to share with my dear and trusty boyfriend. I know he’ll appreciate your segment especially. Thank you again and again. Baby steps!

  • The Migraine Girl moderator author
    3 years ago

    Hi there! Thanks so much for taking the time to leave such thoughtful and sweet comments. I am so glad I ended up doing the interview. Even if I had had zero feedback from viewers and Migraine.com readers, I had such a nice chat with Carl it was worth my time. Carl became one of my new heroes, too!

    I hope you’re feeling good to day, and kudos on talking about things you learned with your beau–he sounds like a good one. 🙂

    -Janet

  • Carl
    3 years ago

    I’m really looking forward to the event! You are going to be amazing Janet and I’m sure one of the highlights that everyone will be talking about!

  • The Migraine Girl moderator author
    3 years ago

    Hey, THANK YOU! 🙂 🙂

  • KarenE
    3 years ago

    I clicked the link to get my free ticket, and it said I would receive an email within 15 minutes. I didn’t receive an email in my inbox, my spam, or my trash. After about half an hour, I clicked the link again, and still I have no email. Can you help? I would really like to have access to this webinar.

  • The Migraine Girl moderator author
    3 years ago

    Karen,

    I’m so sorry for leaving you hanging. I don’t get notifications when people respond to my articles, so unless I have time to check back on the comments I don’t realize I’m leaving someone hanging. I’m so glad the third time was a charm. How’d you find the summit?

    -Janet

  • KarenE
    3 years ago

    After a third try, I finally got an email. Thank you.

  • Nancy Harris Bonk moderator
    3 years ago

    Thanks Janet, I can’t wait!

  • KarenE
    3 years ago

    I clicked the link to get my free ticket, and it said I would receive an email within 15 minutes. I didn’t receive an email in my inbox, my spam, or my trash. After about half an hour, I clicked the link again, and still I have no email. Can you help? I would really like to have access to this webinar.

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