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Those quirky migraine symptoms.

Those Quirky Migraine Symptoms…

We know that migraine is so much more than just head pain – nausea, vomiting, sensitivity to light… the list of possible symptoms seems to go on and on. While certain symptoms can be managed with an overall migraine management plan, sometimes it’s helpful just to know you’re not the only one experiencing that “quirky” symptom no one seems to talk about!

Here are a few of the less common symptoms discussed within our community. How does your migraine experience compare to that of others? Vote in the polls to see how others responded:

(1) Clumsiness – Do your movements become less refined during an attack? The Migraine Girl recently started wondering if her clumsiness is migraine-relate or not.

Poll

(2) Ear Pain – If you’ve had a doctor look at your ears and tell you there’s no sign of infection, migraine could be the culprit. Learn more from Kerrie in this post.

Poll

(3)Sensitivity to touch – If even the light breeze from a ceiling fan is painful during an attack, you’re not alone. Learn more about Migraine, Alloydnia, and Central Sensitization.

Poll

(4) Puffy eyelid(s) – Although eyelid edema – is rarely discussed in medical literature, many of the members here at Migraine.com have mentioned experiencing this potential symptom.

Poll

(5) Mystery Smells – Many people have noted experiencing olfactory hallucinations (phantosmias) – smelling things that aren’t there – during an attack. This type of “mystery smell” is thought to be part of migraine aura.

Poll

What other symptoms would you like to see more discussion about? Please share in the comments!


Comments

  • Willow
    4 months ago

    Muscle pain. Migraine always leaves me with back pain.

  • Peggy Artman moderator
    4 months ago

    @Willow, I understand the back pain! Some times I use ice and sometimes heat. I hope this gets better for you. ~ Peggy (Migraine.com Team)

  • tabby72761
    4 months ago

    Yawning! Persistent yawning.

  • Ayl88joanie
    5 months ago

    Bright lights
    Noise
    Head movement
    Chocolate
    Craving sugar
    Tinnitus gets worse
    I hear music sounds. It’s different then hearing a popular song over and over.
    I can’t understand the words but sometimes it sounds like opera (don’t like it never listen to it) hymns etc.
    I hear ringing sounds like a phone. It gets louder closer to migraine. Has anyone heard of this? Not much info from my Dr., ENT specialist, or neurologist.

  • sandhill
    5 months ago

    Dizziness/disequilibrium and vertigo

  • srkennerley
    6 months ago

    Taste sensitivity! Any mild flavor is overwhelming. Juices are nearly unbearable.

  • Laurie Vincent
    6 months ago

    Severe aching pain all underneath the ears and chin area, with a Migraine.

  • heatherbarr
    6 months ago

    With migraines that laat several days. I get very emotional, and anxious. Cry easily and ruminate about dying, feel that i am a disappointment to everyone, that sometimes think i should die. This is NOT my normal non-migraine state of mind, and it alarms me.

  • Becca59
    6 months ago

    Chronic migraine 50+ yrs. My ears go numb before and durning a migraine attack especially if it’s severe.

  • knshell
    6 months ago

    A weird one I get is heat on the spine. From the base of the skull to just under the shoulderblades (usually, though I have had it go all the way down the spine). It is hot to the touch and it feels like the spine has turned to burning embers. >< Ice helps while it is in place, but the heat flares right back up once I remove it.

  • lunytunz
    6 months ago

    I yawn even when I’ve had plenty of sleep. It’s a sure sign an attack is coming on. Occasionally I’m having a minor asthma attack and need to use my rescue inhaler. (Without early intervention, that may develop into a migraine later.) I’m finding the more I pay attention to the cues, the more likely I can take my medication and avoid the worst of the pain. The other side effects such as exhaustion, word finding issues, dizziness, etc. are still there, but my ability to function is much better getting the medication earlier rather than later.

  • island
    6 months ago

    Sometimes I get nerve pain that runs through my body. I’ll get like a migraine in my thumb or my teeth will ache and my gums bleed. Sometimes I see my pulse in my eyes and that’s a sure sign to hold on, a bad one is coming!

  • kateymac
    7 months ago

    Along the sensitivity spectrum: I’d like to know if others find that the mere presence of another person in the room, even in silence and non-interaction, feels physically overwhelming to their skin.

  • JenniD
    8 months ago

    I get a SERIOUS creativity streak! Crafting, planning out decorating schemes, brilliance at work, and creTive writing. All for about a week before the head pain hits. Even then, my brain keeps working. I’ve come out of migraine cocktail stupor with ideas for crochet patterns, what color to paint the front door – even short stories and essays pre-written, just waiting to get out of my brain and onto paper.

  • Four-eyed Widow
    8 months ago

    Along with a lot of what was mentioned in this article, I also have a difficult time finding the correct words when I try to talk. Yawning constantly right before one hits is also annoying.

  • knshell
    6 months ago

    I can’t talk at all sometimes. If I can manage any sound at all, it’s usually just gibberish.

  • petmigraine
    9 months ago

    Bones in my head hurt. Not just the jaw but cheek bones, all facial bones and skull; I imagine it’s the pressure from my brain expanding and wanting to explode…with the allodynia and hurting bones that makes it hard to put my head down on a pillow 🙁

  • Mrs.KaleMamaHen
    9 months ago

    40+ years of migraine.
    Sound sensitivity, everything is so loud and so jumbled. I can hear everyones conversation and can’t follow any of them, including the one I’m supposed to be in.
    Just moving my head and eyes is agony.
    I can “see” my migraine, like a living being.
    I get both irritated by being around loved ones and clingy for their company all at once.

  • BadBrain
    9 months ago

    I’ve had chronic migraines for more than 20 years. Rescue meds aren’t effective for me anymore. I’ve tried alternating between meds, but they just don’t work anymore. I’ve tried imitrex, maxalt, zomig, beta blockers, jeez everything on the market. Does anyone else have this problem? I now just have to wait out the migraines.

  • BadBrain
    9 months ago

    Audio hallucinations, jaw/tooth pain and body aches

  • Macbeck
    9 months ago

    Chills!!! I’m fine with that during the summer, but I’ve always chilled easily so during the winter I get really tired of being cold.

  • Crazyb2
    9 months ago

    Brain fog, vertigo, light sentivity,cold runny nose, crave Coke (the drink), smell things nobody else does, either can’t sleep or lately sleep for days!

  • drmadden
    9 months ago

    I am so glad to see this group first of all. I have had olfactory hallucinations all of my life, not always directly associated with a migraine event. I also have what seems to be more sensitive sense of smell than most people. The recent popularity of Essential Oils and scented candles/room aromas and Pumpkin Spice everything has made parts of my life almost a living hell.
    I would like to see discussion of Migraine Induced Vertigo. I’ve had that for about 20 years. Also, I have infrequent but very inconvenient “spells” that can result in my ending up paralyzed on the floor for brief periods of time. I don’t know what that is called but my doctor said it’s related to my migraines.

  • Ayl88joanie
    5 months ago

    I have migraine induced vertigo too. Only 4 years. My life changed because of an ear infection. The more I turn my head the faster the migraines come. I go to regular massage (RMT) works on back of neck, pulsed biofeedback and acupuncture. All help but not for long so I keep going. I don’t have insurance but I am lucky money is no problem. Together with the meds it’s expensive.

  • House of pain
    9 months ago

    This might be similar to clumsiness, but I have a had time talking, typing and communicating when I have a bad migraine. It’s very frustrating!

  • Macbeck
    9 months ago

    The difficulty in communicating is Functional or Temporary Aphasia. I get that too, and yes, it’s very very frustrating!

  • 3clyn
    10 months ago

    I’m mildly dyslexic, but it becomes profound immediately before and after a migraine. After a particularly bad attack, I may not be able to read for 2-3 days.

  • GGourgues
    10 months ago

    At some point during the attack I get really cold and I shiver. It doesn’t matter what the weather is or that I am in my warm apartment in the winter. I have to get under blankets and warm up for about 1h.

  • knshell
    6 months ago

    I was having really really bad chills. I still get them mildly sometimes, but for me it turned out not to be migraine causing it. It was low Vitamins D3 and B12. It might be worth getting those checked just in case if you haven’t.

  • BadBrain
    9 months ago

    I alternate between chills and much too hot. It’s like I can’t regulate my body temp.

  • House of pain
    9 months ago

    This happens to me too, but I can never tell if it’s from the migraine or the rescue med.

  • ggcc
    11 months ago

    I always have a sensitivity to some flavors. I think it’s mostly sour foods. The first bite will cause this sharply painful feeling in the spots right behind/beneath my ears. It doesn’t last very long, but is sort of like brain freeze, but in a different area.
    I can’t find any info on this.

  • ElneClare
    11 months ago

    I haven’t had any sleep since 10 am yesterday but does anyone else get swishy noise when they move face muscles before they get a migraine. I been sick for two days and thought I was having a heart attack this morning due to chest pain, but got sent home with just order to see my doctor in two days. I was up all night due to IBS but now realize some of the pain I been having is a migraine coming on, as everytime I close my eyes I can hear my facial muscles moving. Even small movements bring on the swish noise. Closer to full blow migraine the more I can hear every movement. I also will hear my heartbeat before the pain come on. With Fibromyalgia and IBS I only started paying attention to my pre-migraine symptoms when my daughter’s migraines became so bad she had to quit her job and now may have to give up on getting her BA in Theater.

  • poschspice
    10 months ago

    Hi there. It’s possible you might have something called Semicircular Canal Dehissence (SCD). It’s a vestibular abnormality that not many people / doctors know about but often your symptoms (like hearing your muscle movements, eyelids, heartbeat) are common in those of us that suffer from it. Check out vestibular.org

  • ezlivin1
    11 months ago

    How to treat neck and shoulder pain caused by migraine.

  • knshell
    6 months ago

    I get the really bad neck/shoulder pain up onto the back of my skull even. I’m going through physical therapy to help it. It doesn’t take it away, but attacks have been less intense since I started.

  • BadBrain
    9 months ago

    My doctor told me that the very painful stiff neck, that muscle relaxers have no effect on, is actually a migraine. I get a very stiff neck and shoulder pain to the point where it hurts to move my head and I get what feels like a tight ball of pain at the base of my neck. I asked my doctor and he said doctors are learning that this is actually a form of migraine. Hopefully, your rescue meds will help.

  • Ayl88joanie
    5 months ago

    I have shoulder and neck pain. I can only go on short shopping trips or just the movement of looking side to side walking down the aisle will cause a migraine plus the bright lights, noise etc.

  • ezlivin1
    11 months ago

    Yes I think we all wonder what comes first but either way we end up with head and neck pain. I also had bad stomach problems last year after taking imitrex for many years. My doctor said I had a digestive disorder and gave me meds and a diet. I told him that I thought it was caused by imitrex. He said none of the literature says anything about that. So I took the meds and went on the special diet but didn’t get much better until I changed from imitrex to maxalt that melts under your tongue. Not long after switching to maxalt my stomach symptoms began to clear up and I got off the stomach meds and off the diet. So maybe you ought to consider taking maxalt instead of imitrex.

  • bowlergirl
    11 months ago

    Does anyone find that, if bipolar and on daily medication like I am, you get bipolar mood swings that worsen around the time of…during or after a migraine?

  • kathrynfw
    9 months ago

    I sometimes get profound mood crashes before a migraine that lift as the pain sets in. I started associating the crashes with migraine and treat with meds and the depression lifts. I was once given the dx of type II bipolar. I was triggered by msg and related “chemicals.” I eliminated most. Still get migraines but the BP dx has been stricken from my file and no mood meds for ten years. I had to figure all this out on my own. To be fair, somewhere in there was menopause ( had partial hysterectomy so not sure when) so some mood stability may have come from that, but my depression crashes ARE migraine

  • bowlergirl
    11 months ago

    Dizzyness and passing out are
    Frequent with my migraines. I get vestibular cluster regular and migraines that last more than a week. (Forget name) I get aura sometimes.

  • deadeyes
    11 months ago

    Cold nose

  • Briantaylorhill
    11 months ago

    I have been diagnosed with abnormal aura migraine with strokelike symptoms. Weakness on one side. Mental fog. Extreme difficulty speaking. Hospitalized three times until it got somewhat under control.

  • BadBrain
    9 months ago

    Holy crap that sounds really scary.

  • DBrx
    11 months ago

    I’ve been having more optical migraines- like having a smudge on your glasses or someone’s finger is blocking vision of one eye, but only in a spot. My neuro says should only last about 10 minutes or so, but mine last for hours or days.
    Anyone else?

  • bowlergirl
    11 months ago

    Yes I get them too that last like that. Optical migraines are odd and no fun. You are not alone.

  • veelopez
    11 months ago

    I will get cold feet and or a cold nose.

  • ezlivin1
    11 months ago

    Yes I get cold feet and at times cold all over. I’ll usually put Sox on and a bathrobe.

  • LauraP
    11 months ago

    I always have a cold nose during a migraine.

  • veelopez
    11 months ago

    Me too! And cold feet

  • wappaw
    1 year ago

    My migraines always start with discomfort in my right side back / shoulder blade area. I start to feel nauseated as this ball develops in my back. My right eye will also start to blur and hurt just on the right side of the orbit.
    Within an hour my neck starts to cramp; muscle relaxers do nothing to release the tension.
    The pain runs up my neck into the back of my head, and radiates down my right shoulder. My right side jaw and teeth start hurting. My right sinus plugs and feels as if a wire is being pulled through it sometimes. The final thrust of pain is the right side of my head temple area and stabbing pain in my right eye.
    Once the medication kicks in, Sumatriptan Succinate, I am left sick to my stomach and extremely sore in my neck and shoulder area. I feel crappy for the next 24 hours.

  • enoto15
    6 months ago

    holy crap this is mine to a T….it’s awful, sometimes my meds don’t even touch it and I feel like I’ve been hit by a bus for more than 24 hrs. Did your doctor prescribe the muscle relaxers for you? I never thought to ask before, I just usually ride that part out…

  • sickofheadaches
    11 months ago

    Yeah, I’ve been trying to figure out which came first the chicken or the egg….did the neck pain cause the migraine or did the migraine cause the terrible pain in my neck. Also, Sumatriptan makes me terribly sick to my stomach with cramps and vomiting…was recently diagnosed with “ulcerative colitis” but really wondering if the Sumatriptan damaged my gut.

  • bowlergirl
    11 months ago

    I thought I was the only one with back and neck/shoulder pain with some migraines. They will knock me for a loop. Glad I’m not alone

  • poschspice
    10 months ago

    Me too. If you have access to a hot tub you could try that. It doesn’t always completely knock out the migraine but a lot of times it can give me enough relief to go about life. I also found a CBD lotion that helps with neck muscle knots and tension.

  • erwin669
    1 year ago

    I have belching during migraines almost always and have neck and shoulder tension that will last for several days after the head pain goes away. I got a daith piercing a few years ago and this past month I’ve noticed pain in that area during several migraine episodes. Mine seem to be triggered by so many things weather, food, smells, sounds, lights. I can’t remember a day without some kind of headache.

  • Joanna Bodner moderator
    1 year ago

    Hi @erwin669, I wanted to chime in to ask if you by take triptans? If so, you might appreciate this article as it discusses burping as a side effect. – https://migraine.com/blog/triptan-side-effects-chest-tightness-hiccups-burping/. We appreciate you sharing your experience with us. I am truly so sorry that you experience nearly daily pain due to migraine. We absolutely understand how difficult it is. Thanks for being here & sharing your support. -Joanna (Migraine.com Team)

  • Lollypopz
    1 year ago

    Vertigo. Big time

  • bowlergirl
    11 months ago

    Vertigo here too and I pass out a lot. The vertigo will make me very nauseous.

  • Jo89
    1 year ago

    I have a lot of weird symptoms. But I have one weird thing I do that seems to give some relief. I listen to really loud bass music. Nothing high pitched. Just loads of bass. Even the neurologist says I’m weird, but just wondering if anyone else has experienced this?

  • Jo89
    1 year ago

    Also, after it’s over, I get the munchies. Like my husband tries to keep me from going to the store by myself because I’ll buy tons of junk that I don’t even want later.

  • christabaker820
    12 months ago

    I have the same thing, I always crave sweets. I always wondered if it was due to low blood sugar because I go a long time without eating when I have a migraine.

  • lostfreak42
    1 year ago

    I always crave carbs when my attacks are over

  • 400lbfallingdoor
    1 year ago

    Does anyone experience a sensitivity to motion with a migraine? Sometimes I feel as tho the migraine intensifies if I have to move any part of my body. If I lay perfectly still it seems to almost drop the intensity.

  • Briantaylorhill
    11 months ago

    Yes. My mom had the same need to lie still while it was going on.

  • hammy
    2 years ago

    Has anyone had chocking and hacking as a symptom? Not exactly nausea.. more like dry heaves?
    Also uncontrolled mucus and tears?

  • jstjokin
    2 years ago

    Sometimes things will not look familiar and I will feel lost even though I know that I know where I am at. It is like reverse dejar vu.

  • knshell
    6 months ago

    I get this too. I tend to refer to it as confusion because I don’t have words for it at the time.. but you described it perfectly. I also find it really hard at these times to understand what is being said to me. Like hear them, I know the words, but my brain can’t parse the meaning.

  • BadBrain
    9 months ago

    Alice in Wonderland Syndrome?

  • Briantaylorhill
    11 months ago

    I have had similar problems. I thought it was just mental fog.

  • jstjokin
    2 years ago

    Also, I have not been able to read. It’s like seeing in pictures instead of o terpretong language. Has anyone y else had this?

  • LadyAndreca
    10 months ago

    That might be related to, or a type of, dissociation. I get that in my worst attacks. The feeling that you’re not part of the world, or things around you aren’t real. Once happened on a ladder at work. Had to sit on the ladder and wait for it to pass, because I objectively knew the ladder was real but it didn’t feel like it was there to climb down.

  • Leslie Coutsouridis
    2 years ago

    I get so many symptoms, but not usually all at once. Forgetfulness, foggy thinking. nausea or stomach pain, blurry vision, weakness in arms and legs, hot sweats, clumsiness, dizziness, moodiness and of course the usual ones.

  • halbutler46
    2 years ago

    Ear pain may actually be TMJ pain ( Tempro Mandibualr Joint pain ). This is a less common type of pain many people experience, that is often confused with ear pain because they are so anatomically close to each other. TMJ pain is often caused by grinding your teeth together at night when you are asleep, un bekown to the individual, which can be in turn caused by stress.

  • FemmeNicola
    3 years ago

    I lose all short term memory when I have a migraine. I cannot tell you how many things I have lost.

  • Primrose35
    3 years ago

    I’d like to hear if others wake with migraine based solely (as much as you can tell) upon the position you sleep in (especially on one’s side).

  • jstjokin
    2 years ago

    Yes! All of the time but it is usually followed by either a manic episode or insomnia.

  • FemmeNicola
    3 years ago

    Yes, but I also have back conditions that contribute to this.

  • minamu
    3 years ago

    I get extreme chills and later feelings of fever, on top of debilitating nausea. I have yet to have the energy during one of these attacks to actually take my temperature to see if it’s low or high or if my brain is just fooling me.

  • Rbex
    1 year ago

    Yes happens to me the couple of time I check usually thanks to someone else taking it my temperature was normal or just slightly elevated.

  • Wvagirl1968
    3 years ago

    Oh, and I forgot. I have almost all the symptoms listed above and then some. Including, dizziness, hot and cold sensations, even changes in my thinking processes. I get really stupid before, during and after a migraine. When I am actually able to make it back to work, I have to be very careful, as my balance and thinking are still so out of whack. Just got over a mild attack today, and that means a bigger one will soon be on its way.

  • Wvagirl1968
    3 years ago

    I almost always have auditory hallucinations and vivid dreams that a family member is calling my name. I can have bits of conversation with people that I think are in the room with me, when I’m really completely alone. (I live by myself now) This always happens when I’m having my worst migraine attacks, which happens about once a week. The weaker I get from the vomiting and pain, the more I have the auditory hallucinations. It took me coming to this site to realise so many of the things I experience happens to other people as well.

  • dcwhite
    3 years ago

    My eye waters. Pours. But only on the right side where the pain is. My headaches are constant so it looks like I’m in tears all the time. My sixth graders always start the year worrying about me and checking if I’m ok. Then after about a week, they handle it better than anyone else. Bless them.

  • DonnaFA moderator
    3 years ago

    Hi dcwhite! Thanks for being here and for joining the conversation. You’re not alone, we actually have a few discussions that speak to eyes watering as a symptom. Kids are awesome, they are adaptable and empathetic and can be very in tune. -All Best, Donna (Migraine.com team)

  • TrishaNP
    3 years ago

    I thought it was just me. The other night before a migraine started I woke up out of a dead sleep and swore that I smelled something burning in my oven. My husband was in the living room watching tv because he is a night owl and he asked what was wrong and I gave him the the business about cooking late at night and he said he was not cooking. So I stomped off to the kitchen and there was nothing there. I was embarrassed. I went back to bed and less than an hour later I had a full blown migraine. As far as the clumsiness, partial sentences, ringing ears, little hallucinations in my peripheral vision and the sensitive scalp I have those with every migraine.

  • DonnaFA moderator
    3 years ago

    Hi TrishnaNP! Thanks for sharing your story, and I want to assure you that you are not alone. I have woken my guy up a few times in the wee hours because I swear I smell wires burning (and then wake up a few hours later with a migraine). I guess it’s just one of the joys of having amazing women like us 🙂 -Warmly, Donna (Migraine.com team)

  • michelle
    4 years ago

    mine usually start out with sudden stuffy nose and nasal pressure along with headache nausea sensitivity to smell and sometimes sounds or eyesight sensitivity. i also get severe muscle tension mostly neck and upper back but often it is all over my entire body even the muscles in my hands and feet get severe tension and hurt. muscle relaxers barely help. i was having great results with the imitrex but head a reaction to it and can no longer use it. in following days after the attack passes i am often very sore due to how extreme the muscle tension gets during the attacks.

  • Dawn
    4 years ago

    I have a very strange sense outside if all that were listed on the quirky list: I call it my fizzy head aura. My neurologist laughs a bit and probably doesn’t believe me…but alas, it is what or is

    It feels lile mu scalp has been peeled back and a carbonated beverage has been poured in to just fizz and tickle and itch and bubble away.

    I also get a HORIZONTAL double vision in my left eye – (I have hemiplegic migraine- left sidedweakness /paralysis) – that is akin to how the Yello Submarine album cover looks for the Beatles.
    My neurologist on Wednesday, explained that “double” vision occurs with both eyes…blah, blah, blah….and then listed for a minute to my aura story and how long it’s been going on (399 days today) amd said, “oh, my, that’s so strange”.
    LOL good thing I can chuckle, because my life has become a big fat mess.

    Peace to you all,
    DAWN

  • Jojiieme
    4 years ago

    I’m new here, and as you’ll read elsewhere, not in the USA. So thank you for letting me join in.
    So much of what I’m reading here is familiar, and for different reasons. I have Raynauds (thanks to my Dad), so my fingers, feet and lower legs are always feeling cold even in the middle of summer – especially just before my period, when I’m most susceptible to pain! A very clever podiatrist (of all Allied Health specialties) said it was probably because of connective tissue stuff, not the just circulation system, especially because I also have psoriasis (thanks to Mum).
    There’s a ‘magic triad’ of asthma, allergies and psoriasis/eczema which are connected through auto-immune and collagen “things” (genes? Proteins? Enzymes?) … So, I have these sensory quirks from other conditions and in migraines.
    And I also live with an Acquired Brain Injury, from a car accident in the mid-80s. So I sometimes am aphasic anyway, my face is semi-paralysed anyway, I have some swallowing issues sometimes, there are times I just can’t coordinate my body or figure out how to walk… In migraine, I’m not so likely to forget my words as to repeat them, or the thought, or (more likely), have ‘thick tongue’ so that I actually can’t form the words to speak them…
    My brain feels it’s boiling, sometimes; I can’t cool down fast enough.
    I feel sounds, light, colours as knife cuts or drill soundings right through my skull or my chest.
    I feel as if I’m moving through sludge, and inside my ‘invisible space suit’ time has slowed down…I seem to lose hours without realising it, just reading the news after breakfast on a day off (I can only work part-time).
    I’m taking courage from your shared wisdom and experiences. Thank you!

  • Migraine as usual!
    2 years ago

    JOJ, I would like to ask you about the “boiling feeling” you get in your head. It’s like your brain is boiling from the inside out. I have searched this symptom time and time again and no one seems to know what or how to treat this. I’m wondering if you have had any luck with this symptom?

  • Joanna Bodner moderator
    4 years ago

    WELCOME JOJ!!! We are thrilled that you have found our community. Thank you for sharing your very emotional story living with these conditions. We hope that this community will provide you with information, support and serve as a platform for you to continue to share your experiences and questions. We would also encourage you to connect with us on Facebook where you can interact and connect with many other members of the Migraine.com community. Warm regards and once again, welcome!!! Joanna (Migraine.com Team)

  • Julia
    5 years ago

    Along with Sarah and Chelsea, both my sister and I experience the inability to form sentences, recall names for every day things, and stutter when a migraine is about to hit. We recently gave it the name “migraine brain”. However, it’s extremely frustrating to look at something you use every day and not be able to find the word for it. My mom actually tipped me off to this symptom a few years ago. I hadn’t realized I was struggling that badly. I remember a time last year, before my mom passed, that I became so upset that I couldn’t label something as “pen”. I could see the word in my head, knew that’s what I was supposed to say, but I would say “shoe” or stare or stutter while pointing at the object. I was in tears just trying to say PEN. Now I know to look out for that symptom, and any time I lose coherency, I immediately take my migraine medication and go to bed. It makes me feel stupid when I’m out in public and it happens. People stare at me, and I just try to explain that I’m getting a migraine. Then they try to tell me about their worst headache and someone’s friend’s sister who had immediate curing of her migraines forever by drinking something Dr. Oz said to. Well, first off, I completely doubt your story. Second, Dr. Oz is a quack selling junk science and one day he’s going to get someone killer. Third, I don’t take advice from someone who has known me for all of 5 minutes and I’ll never see again, cuz I will make sure of that. My doc and I have a good relationship, and I am looking into migraine clinics to help me figure out why I get 4 to 5 a week.

  • jstjokin
    2 years ago

    I habe these same problems and my chronic migraine can ladt up to 2 weeks at a time. The only thing that has hiven any relief is Botox for migraine, Relpax, zofran and percocet

  • Leslie Coutsouridis
    2 years ago

    migraine as usual, I keep 2 insulated cooling headbands in the freezer. They are wonderful. I found them online.

  • grebelguf
    5 years ago

    Help? I’ve had Migraines for over 40 years and within this past year or so have a NEW weird visual effect. I’ve seen Neurologists, Cardiologist…all stumped. You see I can SEE veins in my EYES throbbing and when I check my pulse…its the same!! Yes I can SEE my pulse? Initially was rare and now DAILY. Is this a “Migraine thing”?does anyone else experience this?!!!

  • Leslie Coutsouridis
    2 years ago

    not in my eyes but I will feel my pulse beating in my ear.

  • rhondagrensberg
    5 years ago

    My temperature spikes. Usually 99.0 – 101.5. This may not seem odd but my temp typically runs 97.9, so th this much of a temp is really concerning.

  • C.Zelaya
    3 years ago

    Oh wow! I’m so relieved to hear it’s not just me! My normal temp is between 97.6 and 97.9 but a couple hours before all the way up to a full blown attack, I get HOT – as in I’ve run as hot as 101.7 for no obvious reason aside from migraine. It starts about the middle of my back and just creeps forward. Everyone says I’m just weird, but I’ve been fortunate enough to find a Primary Care Physician who doesn’t discredit my thoughts/feelings/beliefs and is actually VERY helpful and open to us trying unorthodox treatments.

  • Lisa
    4 years ago

    I’ve never taken my temperature, but I also get chills sometimes before or during a migraine. I’ll have to check next time to see if I’m actually running a fever.

  • sarah
    5 years ago

    I also get a fever, and it comes on within minutes. I’ll start to feel it rising and will take my temp just to discover that, sure enough, it is 99.0-99.8. I mentioned it to my doctor who said that I “didn’t have that happening because that would be really serious”. Huh?!?!? First, I “DON’T have this happening”? What the heck? I think I can take my temp. You should definitely mention your temperature spikes to your doc. 101.5 is getting high.

  • mpile49
    5 years ago

    I have the weirdest feeling in my head, like an out of body experience. My doctor said it is an aura.
    Sometimes I feel totally exhausted before a migraine. Or I have insomnia.

  • sarah
    5 years ago

    I have the exhaustion as well. I describe it to others as having a wet blanket draped over your shoulders. Very exhausting..

  • Nick25
    5 years ago

    ANGER!

    In addition to the yawning, lethargy, aura, and prior to pain I get very angry and irritable and it’s not just from the pain.

    What a curse….

  • C.Zelaya
    3 years ago

    I think that’s my most annoying prodrome – I yawn constantly. Sometimes it’s just back to back yawning which makes my sainted husband crazy because then he’s yawning too.

  • Nick25
    5 years ago

    This one may sound odd– what about a VERY high sex drive?

  • ae0gow
    5 years ago

    Does anyone else experience severe dizziness with their Migraines. I don’t here it mentioned anywhere but I get it so bad that my head feels like it is constantly spinning whenever I get a Migraine. When I get an onset my legs get weak and I will often stumble and that’s when I know I am going to get a bad Migraine but not usually for a few hours so at least I usually have tome to get home first or take Nurofen as it has time to take affect before the Migraine hits. Nurofen is the only thing I have found that works and I have had Migraines since I was 7 however due to Colitis I am not suppose to take it but I have a son to look after and don’t want a Migraine to interfere with that. My son is 9 and was diagnosed last year as getting Migraines as well sadly.

  • C.Zelaya
    3 years ago

    Yep! I get really bad dizziness within 45 minutes of a full blown attack. I also get vertigo too – especially when I am still for a while. I close my eyes and it feels like everything is spinning around me. Then I open my eyes, get up to walk to another room and suddenly, the world shifts on its axel and I have to hold onto something to stay upright. It’s happened a number of times while I was at work. Fortunately, most of those I work with know about the migraines… and some of my more frequent-flier patients do too. Imagine being the only patient advocate for a government hospital… with more than 30k patients… and dealing with chronic migraine with aura.

  • Liz Flynn
    3 years ago

    I get vertigo/dizziness with a migraine sometimes. My doctor gave me meclizine which helps alleviate the vertigo and the extreme nausea (vomiting) to a degree.

  • Koch
    5 years ago

    I also get dizzy. Sometimes, I’ll be walking along and suddenly it’s like the Earth shifted and I’m thrown sideways. Or the world just starts spinning and I have to stop and wait for it to pass. It’ll happen before a migraine or in the middle of one. (Mine last about three days on average.) I recently went through a period where I had vertigo for the entire length of the migraines. Inconvenient!

  • mrst53
    5 years ago

    Have they figured out why you get dizzy? I am going in for tests next week. Mine started when the real cold weather came thru from the artic and we had below freezing temps for the east coast. I had migraines, just dizziness. Any help, would be appreciated.

  • geraldine
    5 years ago

    Dies any suffer from heniplegia migraine. I have differed from migraines for the last 16/17 years and for the last 11/12 years my daily headache has been at a 5 of on a scale of 1-10. Since last October 2014 I have suffered drink hemiplegic migraine where the muscles are affected in the arms and legs usually in one side and only on one side. My problem is that the paralysis has not gone away and neither is the headache. Also I developed chest pains along with the migraine as the chest muscles go into spasm as well as arm and leg. My daily head now is between a 8/9 every day and like a hang over head with out the booze. I don’t drink or smoke. Any help please on how to handle this would be appreciated. Thanks

  • RachSto
    5 years ago

    The first signs for me is that I normally have spotty vision. I think these are what is referred to as auras. Then I have a hard time forming words and speaking in general. After this, my hand often goes numb or tingles…..it is always the oposite side of where my headache/migraine turns out to be. Ruins my day…

  • Carm
    3 years ago

    My words get “jumbled” & I can’t find the right word – for anything. This happens frequently at work, either as a migraine is coming on or on the last day as it leaves. These are actually the only days I have any chance of being physically able to work. I try to work through it, but often can’t. I am passed over at work for promotion or special assignments. I am given some excuse as they try the “management tactic” of try to make her think you are doing her a favor & is needed for something else’. I find it quite demeaning, yet on some level I understand. I hate it, but can understand.

  • Chelsea
    5 years ago

    Hey ladies! That is called “aphasia” or “word salad” in migraine speak (the mixing or forgetting words). It happened to be for the first time this fall and I was terrified; I assumed I was having a stroke. Apparently it’s moderately common, but awful and embarrassing :(. On my bad weeks (like this one, I’ve been having a hard time since about Tuesday) I take my time speaking and try to mind my diet, as less processed foods help me.

  • sarah
    5 years ago

    I also have trouble finding the right words and speaking in general. For years, I didn’t attribute this to migraine, but just felt like I was slow and slightly damaged in that part of the brain. Very embarrassing around others. At least now, I can explain what is going on.

  • leedyklaiber
    5 years ago

    I am brand new to Migraine.com. I don’t know how I never tripped over the website before now. I have been feeling crazy and weird for having all these ‘quirky’ symptoms and what seems to be almost constant headaches and migraines. Reading through your comments have made my experiences seem not so odd or strange. I found an article called “14 Migraine Prodome Symptoms” and found that a lot of things that I thought were just my own weirdness (the olfactory hallucinations, hearing things, the temp changes, the eye twitches, I could go on and on) were related to my migraines, not just me. I really appreciate everyone sharing their stories; it can be hard to explain what it is like to those who have never experienced anything like a migraine. Thank you. I look forward to reading more and hopefully working toward some real relief soon.

  • BlueSky
    5 years ago

    Weird taste that makes me cringe; droopy eyelid.

  • bill ouellette
    5 years ago

    I get the strange tastes. I get headaches but my main symptoms are ringing in the ears followed by blurred vision and vertigo. Also have cold sweats and feeling of
    eyes rolling to the back of my head. Usually takes about a half hour for the vision to return to normal. Pain sometimes lasts for 12 to 24 hours.

  • kathy
    5 years ago

    Does anyone have strange tastes? Food or drink tastes funny a lot of the time.

  • pinniey
    5 years ago

    I have weird symptom and wonder if anyone else has. Started when I was a very young girl. Often I can not put object into other objects without getting migraine pain. I call it my chubby hole problem as chubby holes where you would put mail, books, coats, etc are often impossible for me. The actual migraines started when I was 11 or 12 but this problem is much older. It isn’t all the time but once it starts it doesn’t go away for a long time..

  • C.Zelaya
    3 years ago

    I get something that sounds similar. I’ve heard it referred to as ‘Alice in Wonderland’ syndrome. Things become visually disproportionate… I first remember experiencing it when I was a teenager. I had abdominal migraine as a child (elementary school age) that progressed into full blown headache migraine by the time I hit my teens which is when the AiW set in. The headaches dissipated for a number of years – I think I had about five years of minimal attacks. Then I joined the military… and they were back full force. It took the Air Force almost six years of trial and error before they gave up on me and the migraines.

  • abridge98
    5 years ago

    Has anyone had these symptoms: excessive yawning, frequent urination, or body just feeling heavy and weak? I am 34 years old and I’ve had migraines since middle school but these symptoms just started a few years ago.

  • Lisa
    4 years ago

    I get the yawning and frequent urination. Sometimes I get the weakness symptom too but it seems to be directly related to my medicine (Relpax).

  • sarah
    5 years ago

    Yawning and “wet blanket over the shoulders” exhaustion.

  • Mixi
    5 years ago

    I always have these symptoms (excessive yawning, frequent urination, body very tired. I also have all of the common symptoms, such as : light, sound, nausea,etc.

  • thisisendless
    5 years ago

    I have read the frequent yawning is totally symptom. I get that too, right as one is coming on.

  • Pscarrier
    5 years ago

    I yawn a lot. I love my doctor but that is one symptom I’ve mentioned that I feel like he thinks I’m crazy about.

  • pinniey
    5 years ago

    Have you been tested for diabetes?

  • lauriecallihan
    5 years ago

    After 35 years of increasing symptoms I can pretty much say there isn’t any of the symptoms listed here that I haven’t experienced. I didn’t see excessive yawning in the list . . . usually a precursor – has happened a few times – currently I struggle with facial and arm novacaine-like semi-paralysis. Also went colorblind in one eye for a few months once with migraine. Had a stabbing pain in that eye for the duration. Got misdiagnosed with some eye issues and MS until a fabulous neuro-opthalmologist (later the president of The National Headache Foundation) diagnosed it as migraine – treated with amitryptaline and it went away within 2 wks. Parade of symptoms through the years – always something new to keep me on my toes. Love the burning marshmallow smells on occasion and the faux ear infections. Fabulous. Nice to have compadres in misery. Blessings to all.

  • abridge98
    5 years ago

    I just read your comment and I’ve started experiencing the yawning. At first I thought I just needed more sleep or was lazy but I only yawn like that right when a migraine is starting.

  • bluebird
    5 years ago

    My quirky question-Has anyone noticed a shift in the sense of time with migraine?? Sometimes I grossly underestimate/ or overestimate how much time has passed. These episodes feel different from ordinary “losing track”….more like a sense of being “out of time” and returning to it. It is not uncomfortable while it is happening. Sometimes it happens when my brain feels like it is slowing and thinking has become difficult.
    But sometimes I feel like my thinking is fine….and it can still happen.

  • Carm
    3 years ago

    Oh my gosh! I thought, perhaps, I was imagining it. When the migraine is coming on, time feels like it stands still for a while and then speeds up tremendously!

  • mpile49
    5 years ago

    Oh, no sense of time! Agree!!
    I have a hard time keeping up with what meds I have taken because of the time thing!

  • AnnieInAcworth
    5 years ago

    Thank you Bluebird – I thought I was going to be the only one! Me too with the time expanding and contracting… But mostly expanding for me. You are great!

  • lauren
    5 years ago

    Wow yes! Thank you for bringing this up! It drives me nuts. It is very different from “being in the zone,” when I’m absorbed in a creative project, or working toward a looming deadline, when the clock speeds up . . . things most people are familiar with. It happened just this morning.

  • Danielle
    5 years ago

    My quirkiest symptom is fairly new. When I have a bad migraine, I can *feel* sound. It’s like I can feel the sound waves hitting my body. Has anybody else experienced anything like this?

  • Ayl88joanie
    5 months ago

    Yes I do too. We have a washer and dryer on main floor. When I don’t have migraine no problem. When I do have a migraine it feels like the washer is right beside my head and yes I feel it not only hear it.

  • Carm
    3 years ago

    This may sound odd; but not only does it seem that I can touch & feel sound, but I can feel light & taste words. I know that may sound odd, but depending on the tone of the conversation around me, I taste it’s essence. If it is calm, I taste sweetness or nothing, if it is anger, my taste is sour. If it is technical & business like I experience a chemical taste. All of this makes me dizzy.

  • rhondagrensberg
    5 years ago

    It happens to me too. It feels li Mmm w my ears are vibrating faster than the sound. I am lucky in that I get to “feel” bright light and smells to.

  • mpile49
    5 years ago

    ,!! Where was this years ago when a dr. Told me he took aspirin for his headaches. I walked out of his office! Am 66, had them since a teen, daily when in my 20’s -40’s. Now not as often but often enough.

  • AnnieInAcworth
    5 years ago

    I think this is called “synesthesia”. Check out books by Dr. Oliver Sacks called Migraine. He is the guy portrayed by Robin Williams in the movie “Awakenings”. He writes fabulous books and he wrote an interesting book about Migraine that mentions synesthesia I think. I get a different strange one. I get extended “Deja’ vu” as well as something I can only describe as the opposite of Deja vu. I feel as though I am somewhere I have never been, but yet I KNOW i am EXTREMELY familiar with the place – such as the place where I work. It is very unsettling and it will go on for 15 minutes. Wierd.

  • Jules2dl
    5 years ago

    Yes! When I have a bad migraine I can feel both sound and bright light. It feels as though I’m being physically attacked and/or pummelled.

  • Jane O'Neill
    5 years ago

    If a migraine is coming on especially late evening when I am really tired the sound thing hits & it’s awful. Its like the sound of anything is intensified & echoes thru my whole body. I have to go where it is totally quiet & sleep it away.

  • Vicki
    5 years ago

    Absolutely! That’s why I count my greatest so-called “trigger”(it’s not exactly a trigger when I never don’t have a migraine, so it can’t actually be triggered, by it can be made worse than it is) and non-pain symptom is phonophobia. Sound has always hurt me, and often I feel all sounds run through my body even when they aren’t sounds of bass, which are meant to be felt physically. This symptom, more than any other, has made me a social recluse.

  • dkrt
    5 years ago

    My hips feel like they are painfully bruised, very tender to the touch. When I start to feel a bit off, I poke my hips a bit and can tell by how sensitive they are if a migraine is on the way.

  • Swiftee
    5 years ago

    I have suffered with migraines with aura for years. My newest symptoms which is a bit scary is fainting. Happened twice now.I was admitted to hospital was went to a rigorous check up including a CT scan and everything came back normal, seems I’m very healthy, the doctors concluded that it was another symptom of my migraines. Does anyone else experience fainting as one of the symptoms of migraines?

  • Carm
    3 years ago

    People think I am faking what I am about to say. Sometimes when I am feeling a migraine coming on I can’t be touched. It causes sensory overload for me & I want to throw up. I tried to explain this to a friend who thought he was one who could “break through” & would make everything ok. He reached out & grabbed my arm. I immediately fainted. I felt myself going down but couldn’t stop it.

  • BlueSky
    5 years ago

    Yes. It may be a sign of Postural Orthostatic Tachycardia Syndrome (POTS). On the two occasions you did faint, did you stand or change position quickly? This can cause a vast drop in blood pressure leading to loss of consciousness. If this was the case try to rise slowly from a seated or prone position. There are many other possible causes including heart valve issues, medications and blood sugar. I always carry an ampule of smelling salts in my emergency kit.

  • Chelsea
    5 years ago

    I’ve had syncope a few times. So scary! Look into your hormones and make sure everything is balanced there. Once I got off oral contraceptives, my life got so much better!

  • lauriecallihan
    5 years ago

    Yes, I have experienced syncope 4 x. Not fun.

  • thisisendless
    5 years ago

    I read that that is a specific type of migraines called Basilar Migraines, and they warrant different treatment. In fact I don’t think you are supposed to use triptans with them if I remember correctly. Are you seeing a neurologist or headache specialist as well?

    http://www.webmd.com/migraines-headaches/basilar-artery-migraines-causes-symptoms-tests-and-treatments#3

  • Rosiebelle
    5 years ago

    I’m interested in finding out if I have three or four different types of migraines. I try and explain it to the Dr but he lumps everything together. I get “real” migraines where I lose vision, numbness on one side, problems speaking, nausea and light sensitivity. I get a “three day” headache every 10-14 days where I feel like I have an ice pike through my neck in to my temple. These seem to be the most painful because my whole back has a migraine( if that is possible!) but I work through them because I’d never work otherwise. I have a morning headache, every morning. Sometimes it lifts and sometimes it turns in to a three day headache. It is always my neck and right side of head. I can go 7 or 8 days with no meds and be ok except for the morning headaches. I also get woken up at 2am with severe headaches and they always turn in to a very bad migraine without aura. Are these all different kinds of migraines? Many of my headaches are due to storms, snow, rain any change in pressure. Any clue anyone?

  • Teresa
    5 years ago

    Your “three-day” headaches are called Status Migrainous and are actually more harmful than normal migraines as they are a leading cause of strokes. 33% of all strokes experienced by women are related to these types of migraines. I recently read about this while trying to research my 3 or 4 day migraines. In the last couple of years I have developed this syndrome and it is horrible. I used to go through so much of my meds trying to alleviate the pain, but everything I tried would only work for about 2 hours, then the pain would be right back, even worse than before. During one of these, I actually used 6 sumatriptan injections and 10 sumatriptan pills in the space of 4 days. I have since realized that this is a great way to give myself medication overuse headaches, and since the pain comes right back anyway, it is also a huge waste of my meds.

  • rhondagrensberg
    5 years ago

    I have woke up with a “headache” everyday since I was 11 or 12. Mine never go away they just go to the background. These are different I think from the ones that knock me on my rear with pain. I always keep a bottle of peppermint essential oil with me. If it doesn’t fade in the first hour or so. I put that on my temples. This usually doesn’t yotally get rid of it. Ir just makes it manageable.

  • Jules2dl
    5 years ago

    You could be experiencing,in part, medication overuse headache. If you only go 7 to 8 days without meds, I’d ask your doctor about it. Certainly the chronic daily headaches (what you refer to as your morning headaches) could be caused by this. I get chronic daily headaches as well, but once I found out that I shouldn’t be taking any abortive meds (including ibuprofen and other otc meds) more than twice weekly, I stopped taking anything for them. Now I only take abortives when in the grip of a severe (7 or above on the pain scale) migraine. I actually have some headache free days once in awhile now. Im lucky to be on disability so that I can use rest, relaxation techniques, and ice when I have a lesser headache…if I still was working or had small kids and had to push through these headaches I don’t know that I’d be able to go without meds.

  • Franniep1126
    5 years ago

    I literally feel your pain. Mine is always on the left side, neck, ear, numbness in shoulder and wrist. I can’t ount the number of times I thought I had an infection in my left ear. Neurologist is adding trigeminal neuralgia to the diagnosis. Tomorrow I’m getting checked out by a cardiologist to make sure no problems since it is on left. But I’ve had migraines most of my adult life, now take fioreset when pain gets unbearable–took one today. My auras wake me up, too. But auras are almost welcome because once I get them I know relief is near. It’s that bad taste inmy mouth and pounding in my head that is the worst. Never sure how long they will last.

  • lauriecallihan
    5 years ago

    I call all of those migraine and I have chronic migraine – Your cycles sound a lot like mine.

  • CyberSylph
    5 years ago

    Migraines that at there when you wake up, wake you up at night and/or include neck pain could be caused by grinding your teeth together when you sleep. Your doctor won’t know anything about this. You have to see a dentist for treatment. The problem is called temporomandibular joint disorder (TMD). He/she will probably recommend you get a little gadget called a Nociceptive trigeminal inhibition tension suppression system (abbreviated to NTI-TSS) to prevent you from grinding your teeth. You may need to see a dentist who specializes in TMD. Hope this helps!

  • Marjieoc
    5 years ago

    I’d like to learn more about dizziness and vertigo-like symptoms associated with migraines.

    I’d also love to learn about the changes in the brain that result from chronic daily migraines. I recently had an MRI that showed changes in the white matter in my brain, which the radiologist and/or my PCP attributed to hypertension. However, I haven’t had hypertension until very recently, so I doubt that’s the cause.

  • thisisendless
    5 years ago

    Interesting. My migraines are of the almost daily chronic type and my symptoms have always primarily been a sense of dizziness and vertigo with nausea. Sometimes it just feels like I am getting motion sickness just from moving my head around normally. If I move too fast to get up or get out of the car or turn around it triggers a loopy sensation like I just got off of a roller coaster.

    I don’t get the pounding head pain that most people describe. Just a pressure like someone is inflating a balloon inside my head. Then I just feel “sick.”

  • Marjieoc
    5 years ago

    Hi, Susan. Yes, I get head rushes before or during a migraine. Some are so bad that I temporarily lose my vision and feel like I’m going to faint. Fortunately these spells are short: maybe 45-60 seconds.

    The balance problems are relatively new. I feel dizzy and can’t trust my sense of balance, especially on uneven surfaces.

    I have considered keeping a cane in my car in case I’m out running errands and the dizziness hits. I hate to do that, tho; I just finished using a cane after having both hips replaced. But if it can keep me from falling and breaking a bone or two, it would be worth it. And I have lots of canes!

  • Susan Mayhew
    5 years ago

    Hi Marjieoc. My main symptoms of migraine are episodes of severe short head rushes (very hard to explain symptoms) that last for a few seconds, they leave me feeling brain scrambled for a while. The other times I get where I’m confined to bed for days because as soon as I move I am disorientated and therefore find it very difficult to walk. It can take weeks to get my balance etc back to normal. Do you have anything like this?

  • Laurie Vincent
    5 years ago

    Severe facial swelling during a Migraine.

  • Pscarrier
    5 years ago

    I get facial swelling with my more severe migraines. When I first started noticing it I freaked out and thought I was having mini-strokes or something. My neurologist assured me, after tests just in case, that this is sometimes a migraine symptom. It still worries me a bit but I trust my doctor.

  • Ginny
    5 years ago

    During a migraine I get a buzzing in my ears and it gets louder when I blink my eyes. I also have a pain that feels like someone has pulled my hair. Does anyone else have painful hair? What about stiff necks? I know a migraine is coming when I get a stiff neck.

  • Vickstir
    5 years ago

    My neck/shoulder pain has been linked to migraine, but only since a “minor”car accident. The pain can start in my neck or in my head, and travel to the other… Tinnitus comes and goes – one summer night I couldn’t tell if I was hearing the crickets or it was all in my head – turns out my tinnitus is exactly the same as the cricket chorus, it was equal volume if I put my hands over my ears or not.

  • Franniep1126
    5 years ago

    Yes, I have severe neck pains and painful hair. I hurt above my left ear and afterward it feels bruised. Euphoria has never happened, kind of think I would enjoy that one. Before a migraine, I feel washed out and have a hungry day, nothing can fill me up, hard to keep from overeating. During and after, I feel heavy and washed out.

  • Tracy Grant
    5 years ago

    Hi Ginny – I get all of those. The buzzing noise ( tinnitus) gets worse for me during a migraine due to the drugs i take. ( Naproxen). It seems to make it worse. One of the side effects of anti inflams. Yes i get painful hair. I used to get the same feeling as a kid if i tied my hair up. And yes sore neck before a migraine. A sign one is on the way. I also can feel very ‘happy’ – euphoric just before the tell tale symptoms start. Hard to know sometimes if i am having a happy day or i am in for a migraine!!

  • Piglet
    5 years ago

    My husband says I look “old” during a migraine. To be fair, I asked him if I looked old after seeing a recent photo of myself that at first I thought was my mother … He replied that I look old during a migraine but not otherwise. Smart guy.

  • C.Zelaya
    3 years ago

    Oh wow! I have never encountered ANYone else who heard crickets or cicadas as tinnitus! This one I just attributed to definite weirdness. Of course, I also have constant smell hallucinations – burned food, cigarette smoke, doggie poo (I literally ransacked the house thinking my pups were that sneaky), and sour beer. It makes me feel crazy even though I know it’s just the migraines. I have chronic migraine and on the days it’s really bad, the sounds/smells are out of control! It’s finally come to a point that I’ve had to concede that I need to retire. My coworkers and fellow Veterans have suggested it for a few years, but as stubborn as I am, I refused to give in. I’ve now been on Intermittent FMLA for two years and have exhausted all my leave options. I fought it for as long as I could – I deserve the time to focus on me now.

  • bluebird
    5 years ago

    I take photos of my face to help me determine whether to agree to have a visit, to drive or even to attempt a knitting pattern. Somehow the image is clearer than looking in the mirror. The blandness and droop of the face is off putting and sometimes doesn’t match how I feel inside. But it is a reliable indicator that “now may not be the best time” to attempt challenging tasks. I certainly look dreary if not older.

  • Ginny
    5 years ago

    I also have a “migraine face” when I have an attack. Co-workers always can tell when I’m not feeling well.

  • Nicola
    5 years ago

    I’m interested in how people can work or drive during an attack. I find that as an attack starts it’s like I am hit by a wall of exhaustion. Even getting out of a chair seems like a momentous effort. This extends for a few days after an attack as well, meaning it’s not unusual for attacks to last 10 – 14 days. I also get quite depressed after the intense pain has gone and feel sorry for myself. I have no support whatsoever from friends or family. No-one seems to understand. Feel isolated and rejected. Am unable to make plans as I am not able to do much.

  • C.Zelaya
    3 years ago

    Nicola, hang in there! I’ve been where you are without an understanding support system. When my migraine first started getting really bad the first time (i had a hiatus of about three years) I lived 1500 miles away from all my family, had just separated from the military, so i was distanced from my friends… and i was miserable. But it does get better… and you can always reach out here! We get it all to well. You are not alone!

  • mpile49
    5 years ago

    Ginny commented about an article being against the law to drive w/ a migraine. Then this would have to be recognized as a disability because you sure can’t prevent them.

  • AnnieInAcworth
    5 years ago

    I am amazed by talk of “working through” a migraine. Every migraine I have sends me to the bathroom or ER to hurl for 6-8 hours. The pain is unbearable and the nausea is worse. I am allergic to all available pain meds. The only upside is that they only happen infrequently (4 X / year) thanks to Topamax. Prior to that I was a puddle of goo.

  • Marjieoc
    5 years ago

    I have days when I can’t drive. In fact, my migraine doc once suggested I probably shouldn’t be driving at all, but that’s not practical. Migraines definitely disorient me. I can get lost in my own neighborhood!

  • Tracy Grant
    5 years ago

    Its really hard Nicola when you don’t have the support, you poor thing. I feel really happy when the pain is gone. In the early stages i get a bit down and don’t cope knowing i am in for days of pain. I think no one will truly understand unless they can walk in your shoes. I make plans, and if i have to cancel, so be it. I would never go anywhere otherwise. If you need someone to vent to, i am here.

  • Ginny
    5 years ago

    On migraine.com there was an article stating that its against the law to drive during an attack because you are impaired. Also in one of the blogs there was a sample letter to explain to family and friends what a migraine is and how it effects you. I gave it to my husband and it helped alot. Check it out.

  • Mackee
    5 years ago

    For years, the worst of my migraines have been accompanied by extraordinary thirst in their early stages; I start drinking tons of Gatorade/H2O and get short of breath from chugging it so fast! It feels like I just can’t get enough let alone fast enough…and afterwards, as you can probably imagine, I usually vomit it back up and get momentary relief from the pain. I have heard of intense cravings or eating binges (?) prior or during an attack, but this kind of incredible thirst as a symptom I have not stumbled across yet.
    Very abnormal for me as I am normally more of a ‘sipper’ most of the time. I rarely drink a can of soda even in just one sitting!
    Anyone else ever experience this?

  • Laurie Vincent
    5 years ago

    Yes, when I drink too much water at once. Then my face swells up really bad and the Migraine headache starts. So knowing this, I try not to drink too much water. When I get a Migraine, I have good luck when drinking about half a glass of Gatorade, or up to 12 ounces. It helps to get rid of the Migraine.

  • Nancy
    5 years ago

    My quirky migraine symptom is a bowel attack. I will wake up with an incoming migraine and I know if I have to “jump up and go”, it’s going to be a bad one and I will probably be vomiting within the hour. Milder migraines do not cause this symptom. It’s like an indicator of severity for me. I have heard of abdominal migraines, so I wonder if this is connected?

  • Carm
    3 years ago

    The first time I experienced what the doctors termed an intestinal migraine, I had been admitted to the hospital by my neurologist. I never knew of such a thing!I was in the hospital for 4 days. During an MRI my neurologist told me that she saw signs of two strokes. One was a severe one caused by a medication interaction. The other I never knew about. She said the the 2nd appeared to be a minor one & it isn’t all that unusual not to know when it is happening.

  • Marjieoc
    5 years ago

    I have the same problem, Nancy. I was diagnosed with irritable bowel syndrome years before my diagnosis of migraine. My migraine doc told me that he and his colleagues refer to IBS as “migraine of the gut.”

  • Jackie
    5 years ago

    I am suffering cluster migraines right now and I find I can’t think of simple words and explanations. I am struggling at work and my boss thinks I am an idiot because I can’t always remember simple things to do. My husband thinks I forget what he tell me on purpose at time especially when he tells me something during an attack. He travels a lot so it is difficult to remember when and when he will be back. All I want to do is try and sleep in a dark room no sounds.

  • Jenn Lebowitz
    5 years ago

    Hi Jackie,
    Sorry to hear about struggling at work. We thought you might find this article useful on difficulty with speech (aphasia) – http://migraine.com/blog/migraine-symptoms-transient-aphasia/ as well as this one about cognitive difficulty in regards to migraine – http://migraine.com/blog/cognitive-dysfunction-migraine/. We hope these are useful. You are not alone.

    Best,

    Jenn (Community Manager, Migraine.com)

  • Marjieoc
    5 years ago

    I started writing down everything my boss told me. Of course, then I’d have to remember where I wrote it down. 😉

  • bluebird
    5 years ago

    I have just had a change in diagnosis to “confusional migraine”.Anybody ever heard of that? Used to be chronic daily basilar or brainstem with aura….I also have just learned that there is not much more to augment treatment right now. Ugh.

    I share all of these experiences (not ofactory hallucintion) , at one time or another. I just read the list of posts to my partner who found it really helpful to know how many others have similar experiences. 26,000 responses to quirky symptoms! Wow. I too am comforted by feeling less alone. Thank you!

    The difficulties with memory, word retrieval & expression of thoughts is the most debilitating. I am concerned about appearing “intoxicated”. and/or.. well… stupid. I feel numb in my head!
    If this problem is accompanied by clumsiness , facial droop and asymmetry , muscle weakness, slowness of speech and confusion…I feel very vulnerable in the world.
    I also find navigating in a city a challenge and find recalling the “map” difficult. Used to love to wander around and “get lost ” so I could find my way home. No more!
    The brief experience of not being sure where I am going when out in the world is much worse than at home. So far all is well and no harm done. I fear that this is a form of dementia so I am really reassured to believe Migraine is not that.

    I am working on how to be most compassionate towards this body/mind by staying present enough to know that these experiences are just that. I am still who I am with a very unexpected journey. Fellow travelers – thank you for sharing.
    This website is a great comfort.

  • Jackie
    5 years ago

    We have been doing this for years now. I have implants behind my occipital lobes to stop the chronic migraines and I am currently waiting surgery to implant more wires. I have a specialist who I have worked with for years. The symptoms of memory loss and other issues seem more to the forefront. I will be starting another preventative med soon. I feel guilty due to my migraines impacting my life. Weekends are frequently spent in bed in a dark bedroom. It isn’t fair to my husband because he travels a lot and when he is home he seems to always have an invalid for a wife. Our social life is zero.

  • Pete
    5 years ago

    If you haven’t already, see a migraine specialist- do your homework, don’t fall for the ads. After that, make certain that you notify your boss of your condition (think ADA) as well as your husband, so they can begin to understand what is happening to you. My wife knows that if she tells me something while I am in the midst of a ‘bad one’, it is essentially lost forever. Don’t wait to get help, as they may well get worse- mine did. you will have to readjust your own thinking to accomodate your new reality. Find someone else to talk to about these issues (cities often have support groups)both in terms of understanding that you are not alone, and also as to coping strategies.Your husband needs to educate himself about these issues as well. It will take hard work by all involved.

  • Woody
    5 years ago

    I have strong feelings of depression before a migraine attack. Usually for half a day before the migraine.

  • Jenn Lebowitz
    5 years ago

    Hi Woody,

    Thanks so much for sharing. We thought you might find this article on mood swings as a migraine prodrome symptom useful: http://migraine.com/blog/mood-swings-a-warning-sign/. Additionally, there is a list of articles that address the connection between depression and migraine, if you’re interested: http://migraine.com/?s=depression&submit=Go. We hope this proves helpful/informative.

    Best,

    Jenn (Community Manager, Migraine.com)

  • Marjieoc
    5 years ago

    I often do, too, Woody. I assume it must be the serotonin levels in my brain, which cause both depressions and migraine.

  • Jules2dl
    5 years ago

    My quirkiest symptom is that I often hear music, usually big band music, when none is playing.
    If anyone else hears music I’d appreciate you speaking up, as this makes me fear I’m crazy!

  • C.Zelaya
    3 years ago

    ROFL! I thought it was some sort of imaginary thing. My family believes in ‘the spirit world’ so I just chalked it up to dimensional spirits. I hear big band music, or like an old tyme saloon setting. I’ve even heard a card game playing before. Those episodes usually happen in the evenings when I’m about to have a nighttime migraine.

  • AnnieInAcworth
    5 years ago

    I smell matches burning where none are around… The interesting thing is ordinarily I have the worlds WORST sense of smell and would not smell a match if it were under my nose. But during the occasional Migraine I have smelled matches quite strongly.

  • lauren
    5 years ago

    You’re OK! I’ve had it since I was a kid–long before being diagnosed with a migraine condition, when I was just the one who was “sick all the time.”

    When I am VERY tired and stressed, sometimes, instead of making me hear the typical nasty sound of tinnitus, my mind will organize white noise into marching band music. No biggie. It can sound like there is a very quiet radio on in another room. Once I heard smooth jazz. I’d prefer that! And I prefer anything to the whine of tinnitus. Rest makes it subside.

  • Nancy
    5 years ago

    Although I don’t hear specific music, I hear things like clashing symbols or brief moments of trumpet sounds. Weird… but it happens.

  • Carolyn
    5 years ago

    I get most of the symptoms mentioned in the other comments… But no-one else has said temperature?! I get waves of being really hot and freezing cold…

  • Pscarrier
    5 years ago

    My family knows if I have a migraine and I start freezing it’s a bad one. It can be 90 degrees out and I’m in a hoodie, fuzzy socks, wrapped in a quilt, hiding in a dark bedroom. Awful!

  • Jenn Lebowitz
    5 years ago

    Hi Carolyn,

    Thanks for you comment! Thought you might appreciate this recent article on temperature and migraine: http://migraine.com/blog/its-getting-hot-in-here-so-hot/.

    Best,

    Jenn (Community Manager, Migraine.com)

  • Tracy Grant
    5 years ago

    yup. me too. one minute I feel like i am running a temp, next minute, freezing.

  • Pete
    5 years ago

    Often during attacks, particularly the stronger ones. I can have 4-5 blankets on top of me, and I still freeze and, in the words of another migraneur, “shake and bake”One thing that really helped with the frozen feet/toes was a suggestion from my podiatrist to get Ugg slippers (I had never heard of them). I wear them almost every night, and as they have sheep’s wool, you don’t wear socks, and eliminate the risk of athlete’s foot.

  • Nancy
    5 years ago

    Always!

  • Pat
    5 years ago

    Yes! I also get chills and sometimes freezing cold, shaking leading into a migraine.

  • B
    5 years ago

    Does anyone else get twitchy eyelids?

  • knshell
    6 months ago

    Eyelids and several other muscles in my face. The most annoying one right now is the little muscle right by the ear. ><

  • Marjieoc
    5 years ago

    Yes, but only on the left eyelid. It doesn’t matter which side of my head has the pain; only the left eyelid twitches and sometimes closes involuntarily.

  • Pete
    5 years ago

    Popsicle toes.

  • Woody
    5 years ago

    Yes me too!

  • Paulaff
    5 years ago

    Two things that haven’t been mentioned that I’ve now associated with migraine are:
    ‘tripping’ over words when I speak–either can’t get them out or they come out wrong, as if I can’t pronounce them, &
    being light sensitive ALL the time now that I’m chronic, not just during the migraine.

  • mpile49
    5 years ago

    When our kids were small & I had a 8+, would call my husband at work to tell him. He would only ask me yes or no questions or just tell me when he would be home. Very little thinking. Worked pretty good since I couldn’t think and we raised very self sufficient kids.

  • Jenn Lebowitz
    5 years ago

    Hi Paulaff,

    Thanks for your comment. As you can see from the responses, you are not alone. We thought you might find this article useful, as it’s on aphasia (difficulty with speech in regards to migraine) – http://migraine.com/blog/migraine-symptoms-transient-aphasia/.

    Best,

    Jenn (Community Manager, Migraine.com)

  • Marjieoc
    5 years ago

    The word thing (Dysphasia) is a real problem for me, especially when I was working as a writer. When speaking, I sometimes say a word that sounds like the one I meant to say. Example: I once referred to my good friend Mallory as Valerie and my dog Falstaff as Flagstaff.

    Very distressing is the fact that I often have trouble coming up with my 5-month-old grandson’s name. I can recall any number of other boys’ names but not Connor’s unless I really concentrate on figuring it out.

  • Tracy Grant
    5 years ago

    i get stuck trying to find the word i want to say. And i forget things that people tell me during an attack, and sometimes leading up to an attack i am a bit dopey as well.

  • Pat
    5 years ago

    Yes. I feel as though the wires in my brain do not connect. I cannot think of words I want to say. And I too am chronically light sensitive now, and am very cautious when the sun is out!

  • bluebird
    5 years ago

    Oh that is very much my experience too.

  • B
    5 years ago

    I definitely get the speech difficulties.

  • Bobbie
    5 years ago

    Has anyone ever experienced their ears being plugged up? Maybe it has something to do with teeth clenching ..but whenever I have a bad migraine my ears feel blocked.

  • Tracy Grant
    5 years ago

    When i get a migraine triggered by dairy food Bobbie, I get that blocked ear and puffy eyelid going on. Menstrual migraines do not seem to do that to me. maybe a possible dairy allergy for you going on?

  • Lollyjosh83
    5 years ago

    Having suffered with Hemiplegic Migraine for 4 years now apart from the ‘normal’ migraine symptoms plus left sided paralysis and facial droop which is a regular occurance for me with every attack. I experience several other symptoms too. From memory loss, word finding difficulty, continual yawning and difficulty swallowing. These vary depending on the severity of the attack. The strangest for me which I have never understood and one I always forget to ask my neurologist about is the constant yawning! It starts before the attack a bit like an aura phase so I can’t blame it on fatigue. My fingers and lips become cyanosed (blue tinge) prior to an attack. Does anyone else suffer this symptom? x

  • Ginny
    5 years ago

    I not only yawn a lot but I get very hungry and can’t stop eating.

  • B
    5 years ago

    I yawn constantly and can’t stop even when consciously trying to.

  • Pete
    5 years ago

    In the last 18 months, I have experienced yawning and momentarily dozing off before attacks. I went 25 years without these symptoms.

  • Vanny62
    5 years ago

    I’m not sure if this is a variant or symptom….
    I would show up in my dentist’s office with a lot of pain in one tooth.I would tell him that I had a dental abscess. The X-rays showed…..nothing. My dentist had another patient that would have the same pain, and no abscess.
    In the end, my dentist realised that we were having ” migrainous toothache”.
    That sort of blew my mind.
    Hope this helps someone out there….

  • Vickstir
    5 years ago

    I get migraines/sinusitis headaches that can make all my upper teeth ache, or only a couple. About 10 yrs ago I realized I was avoiding chewing on one side because the teeth hurt; the x-rays didn’t show clear infection (roots extend into sinus cavity). Antibiotics didn’t help. Oral surgeoon agreed to do root canals, reluctantly, which helped overall altho those same 2 teeth can still really hurt. Even tho they’re “dead”!

    I was told that’s why many of our grandparents’ generation had their teeth pulled: due to chronic headaches and the fear of infection.

  • mrst53
    5 years ago

    I have that same problem

  • dandilion13
    5 years ago

    I have a constant buzzing in my head that sounds like a small engine sound. The worse part is I’m noise sensitive also when a migraine starts life is just one loud mess!
    I’m temperature sensitive when I get a migraine- very hot (sweating and stripping off clothes) when it starts then I’m freezing with goose bumps all over and shivering the next minute.
    I also have get the numbness everyone is talking about! My face is always numb… ALWAYS during migraines; whether it’s my left cheek or the center of my lips. Most people look at me like I have three heads when I tell them I’m experience numbness in my face, hands or feet. I’ve been told I should go the ER and that’s SSSSOOOOOO not normal. It gets exhausting most times explaining my symptoms to people who don’t understand migraines, so I don’t say much anymore. It’s nice to see others here with the same symptoms. Maybe I’m not a freak!

  • Migraine1000
    5 years ago

    Confusion is one of my worst symptoms. Sometimes it’s the only way I know I’m having a migraine. A couple of weeks ago I got into my car and thought the “R” on the gearshift meant “run”. Gheez!!! The saving grace is that I also move really slowly when I’m in a migraine, so no harm done. I’m in my early 60s and only realized my life-long weird episodes of confusion and fog had a physical cause.

  • Luna
    4 years ago

    Jenn L- That brain fog tips and tricks article is great except I don’t think it would work in knowing what the R on the gearshift means or how to put on a bra. There are times that the fog is too dense for tips and tricks to work. Trying to keep a sense of humor is best when you can remember what that is.

  • Jenn Lebowitz
    5 years ago

    Hi Migraine1000,

    You’re not alone! Thought you might appreciate these articles: http://migraine.com/blog/migraine-symptoms-brain-fog/ and http://migraine.com/blog/migraine-and-brain-fog-tips-and-tricks/.

    Best,

    Jenn (Community Manager, Migraine.com)

  • Marjieoc
    5 years ago

    LOL! I know what you mean. One morning a few months ago, I spent several minutes trying to figure out how to put on my bra. I’ve been wearing bras for more than half a century. Wouldn’t you think that, if nothing else, muscle memory would kick in?

  • onehsancare
    5 years ago

    I get stupid. I can’t think logically or remember words. I’m a lawyer, so my ability to work is severely affected, even with a level two or three migraine, where the pain is low enough that I can “work through it” but my brain makes everything take six times as long–and even then, I better check it when I’m not migraining.

  • Nancy
    5 years ago

    I get this symptom also and having a challenging, stressful job really makes me aware of it. When I am not pre/migraine/post I am right on the ball and feel good about my decisions. When a migraine is around I dumb down and can’t problem solve anywhere near normal.

  • Anne
    5 years ago

    I can’t remember people’s names or my own address during a migraine attack. My left eyelid always gets puffy – sometimes when I wake up and look in the mirror, I know an attack is coming by how puffy my eyelids are. Other weird things – one side of my body sometime hurts after an attack, like I’m bruised all over, and, after a really bad attack, it feels like my blood is poisoned – I just feel unbelievably sick.

  • mpile49
    5 years ago

    Jenn, is there any way we can get this info to doctors? Just a list of these! Over 50 years I have been told I don’t know what I am talking about. If it doesn’t fit their explanation, it isn’t real. Thank goodness my family dr who has never had a headache is compassionate and I am in a pretty good place now. Seems there is so much more out there now about migraines and so many more people realizing that they have them.

  • Tom
    5 years ago

    A couple of odd ones I experience, which I haven’t heard much about. . .

    memory loss – sometimes I can’t even remember close friends and family names when I’m talking to them, this comes in bursts and lasts only 15 minutes or so. A few times people have told me about conversations I’ve had whilst having a migraine – and I have absolutely no memory of the conversation the next day – to the point of refusing to believe it actually happened (but it did)

    vision moves in ‘frames’ – like when playing a computer game that your computer isn’t good enough to run and it goes slowly…like the ‘refresh rate’ on my vision is too low

    would be interested to see if others experience these

  • Dizzy1i
    5 years ago

    My vision sometimes moves in “frames”. I used to regard it as a prodromal symptom, but I eventually realized that it is really a migraine symptom. I am certain that the “framing” originates from nystagmus. When I start having “shakey eyes”, one of two outcomes will occur in the next two days: 1) recovery to “normal” or 2) descent to “crisis”, which means total loss of balance, spinning, vertigo. Regardless, I will afterwards feel emotionally and physically beaten another day or two.

  • Marjieoc
    5 years ago

    Yes, Tom, I’ve had that happen with my vision, but only once. It’s called “cinema effect,” and you know why if you’ve ever had it. I would have thought I was having a flashback to a bad acid trip … except I’ve never done acid or anything stronger than a few puffs of marijuana. Well, illegal stuff, anyway.

  • B
    5 years ago

    I definitely get the memory loss. It’s quite scary. I can have whole conversations missing.

  • APBiolInstructor
    5 years ago

    Does anyone else experience confusion with their migraines?
    I’m a biology instructor and I have a hard time teaching when I have them because I can’t recall information. I have also gotten lost and confused driving home from work when I’ve had a bad one. Can anyone relate?

  • lauren
    5 years ago

    Reading Tom’s post about having confusion as he speaks, I just had a moment of discovery–um, after the age of 60. As a child I had a great deal of trouble speaking in school, even though I was reading far ahead of my grade level. Often the other children said that they didn’t understand what I was saying, and I would get tangled up and not be able to finish what I started. I was teased a great deal, of course (urg). And had very painful headaches, and chronic dailies all the time, for which I was blamed, of course (double urg).
    I didn’t have an aura until I went to university–um, at the age of 15–maybe I wanted to escape childhood?–and that was the only certifiable proof of a migraine condition at the time. But now my daughter has symptoms at 27, and is worried that she is showing more symptoms earlier than I did.

    Actually, I started pretty damned early. And thank heavens for all of you for the support that is there for her when she is collected enough to seek it.

    I am SO GLAD for this site, and the chance it gives everyone to share their experiences and support each other.

  • Jenn Lebowitz
    5 years ago

    Hi APBiolInsructor,

    Thanks for your comment. You’re certainly not alone. We thought you might appreciate this article on what some migraineurs call “brain fog” – http://migraine.com/blog/migraine-symptoms-brain-fog/ as well as ideas for dealing with it: http://migraine.com/blog/migraine-and-brain-fog-tips-and-tricks/. We hope these prove useful!

    Best,

    Jenn (Community Manager, Migraine.com)

  • winifred53
    5 years ago

    You bet! I’m an IT site specialist. When I have a migraine it is so hard to concentrate. The other night I was driving home from work and got lost in my own neighborhood. I had no idea where I was until I started reading the street signs. I don’t tell my grown children because I don’t want them to worry about me. I’ve stopped going out on the weekends. Saturday and Sunday are my “recovery” days where I do little to nothing.

  • Tom
    5 years ago

    Yes – to some extent – In conversations, I understand what is going on and how to reply, but when I attempt replying I just can’t seem to get the words out right and it doesn’t make much sense (which I realise as it’s happening, but can’t do anything about).

  • AngelinaB79
    5 years ago

    Yes, I have suffered with confusion often with my chronic migraines to the extent of not being able to understand what’s being said. And yes I’ve also been confused in the car too. Oops

  • jdecorse25
    5 years ago

    Numbness. My hands, feet, and some of my face is always numb now and then when I get a migraine, it extends down to my shoulders, up to my elbows and my knees/hips. I need a thermometer to tell if the bath water is too hot for my daughter…

  • Tom
    5 years ago

    I get numbness most bad migraines, the side of my face droops and occasionally the whole side of my body goes numb. I find this one of the more worrying symptoms – as you mentioned, it’s all the warning signs of a stroke. Not pleasant.

  • AngelinaB79
    5 years ago

    I’ve had numbness/paralysis of limbs and face before, from just a finger or two to the whole left hand side of my body suffering motor weakness/paralasys.

  • Beth
    5 years ago

    JD…I’m so glad to read your post!! I’ve been hospitalized by the numbness…they think I’m having a stroke!! It’s really scary!!

  • winifred53
    5 years ago

    It’s so helpful to know I’m not alone. These are symptoms you rarely hear discussed. I have all of them every time. Took me years to convince any doctor, especially the ENT specialist that my left ear had major problems. He finally did a small incision (like they do for ear tubes in young children) to equalize the pressure. It’s better now but still aches and pops during migraines. My only trigger is weather/temperature swings/barometric pressure so I’m used to headaches that last 4 to 7 days.

  • Ginny
    5 years ago

    Weather and temperature are a trigger for me. Just before the change I gey a migraine.

  • Tom
    5 years ago

    Absolutely convinced my migraines are down to barometric pressure too – I left the UK to go to indonesia for four months – the weather stayed stable for the first three months and I was migraine free, on the fourth month it was approaching the rainy season and in the space of 3 weeks I had two of the most severe migraines I have ever had – both of which were the night before gigantic thunder storms (the only two which occured in my time out there). A quick look at the pressure charts indicated a sharp drop in pressure the days before. Since returning I invested in a watch that has a air pressure gauge – and can correlate most migraines with a suddent drop in air pressure.

    Whilst it’s nice to finally have some idea about what causes my migraines, it’s a bit deflating as unlike trigger foods etc I can’t change the weather!

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