Having an “invisible” disability can be frustrating. Migraines can be particularly difficult because almost everyone has at least occasionally “had a headache.” When you have migraines, chances are most everyone you talk to about your attacks has had some type of headache, although probably not a migraine. Most people have mild, tension-type headaches or head pain during a viral illness that goes away quickly. So when you say, “I couldn’t get anything done last night — I had a migraine,” the person hearing you may think, “Good grief. I get a headache now and then and it certainly doesn’t interfere with my day. It’s just a little headache — what’s the big deal?!”
In one study, the authors reported that almost 75 percent of men and over 80 percent of women reporting getting at least one headache per year. Severe headaches were reported in only 6 percent of men and 12 percent of women. So most people who get headaches—which is most people—get milder, non-migraine headaches.
Researchers in The Netherlands have developed a new tool to measure how having a chronic medical conditions can affect different aspects of your life and how others might interact with you. This questionnaire has been tested in patients in a rheumatology clinic and we’d like to see what results will be uncovered in people with migraine.
We are interested in learning about the impact of migraine in your personal, professional, and social surroundings. Your participation in our survey will help us gain more information that can benefit other people with migraine, health care professionals, and society at large.
This survey is completely anonymous and will be completed in one setting. Your responses will not be matched to any personal information or identifiers. This survey should take approximately 15-20 minutes to complete. Thank you for your participation!
Here’s the link to the survey: https://duqbusiness.qualtrics.com/SE/?SID=SV_0APvBmOZFjaSwdf