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Research opportunity: What do others think about your migraines?

Having an “invisible” disability can be frustrating. Migraines can be particularly difficult because almost everyone has at least occasionally “had a headache.” When you have migraines, chances are most everyone you talk to about your attacks has had some type of headache, although probably not a migraine. Most people have mild, tension-type headaches or head pain during a viral illness that goes away quickly. So when you say, “I couldn’t get anything done last night — I had a migraine,” the person hearing you may think, “Good grief. I get a headache now and then and it certainly doesn’t interfere with my day. It’s just a little headache — what’s the big deal?!”

In one study, the authors reported that almost 75 percent of men and over 80 percent of women reporting getting at least one headache per year. Severe headaches were reported in only 6 percent of men and 12 percent of women. So most people who get headaches—which is most people—get milder, non-migraine headaches.

Researchers in The Netherlands have developed a new tool to measure how having a chronic medical conditions can affect different aspects of your life and how others might interact with you. This questionnaire has been tested in patients in a rheumatology clinic and we’d like to see what results will be uncovered in people with migraine.

We are interested in learning about the impact of migraine in your personal, professional, and social surroundings. Your participation in our survey will help us gain more information that can benefit other people with migraine, health care professionals, and society at large.

This survey is completely anonymous and will be completed in one setting. Your responses will not be matched to any personal information or identifiers. This survey should take approximately 15-20 minutes to complete. Thank you for your participation!

Here’s the link to the survey:

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • brainpain22
    6 years ago

    Others don’t want to hear about my migraines. My migraines are chronic now after 18 years of treatment. I’ve lost my job and my family which is large doesn’t want to hear about it. They lost their mom, their wife, I feel like I lost my life. I have one friend who still calls and checks in on me every few months. We were military so it’s not like we had really close life long friends. Sucks for me. My oldest son and my husband doesn’t believe that I can hurt everyday. My son said he’s talked to people… My husband lived with me when my migraines were intermittent and easily controlled with meds and my life wasn’t interrupted, basically I was fulfilling my duties of wife and mother. One of the worse things is I have depression as well. The pain has gone on for so long and the hope is dwindling but I am being treated. But having depression all of a sudden, I’m not allowed to feel unless it’s happy and interested in everyone and everything else. When I get mad, sad or say whatever that’s the depression talking….NO that’s me talking. Why am I not allowed to have feelings? So they don’t want to hear about the migraines…they don’t really want to hear from me at all.

  • Dr Marcus author
    6 years ago

    We’re not collecting information on location, but are hoping for a nice broad, diverse response to help capture the migraine experience. Thanks for your support and please share the survey link. Will blog about the results here once the survey has been completed and analyzed.

  • Erms Suripatty
    6 years ago

    Great initiative! Is this a global survey? I am very interested in research results for The Netherlands. Thank you in advance.

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