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Top Places to Find Support with Living with Migraine

Top Places to Find Support with Living with Migraine

Feelings of alienation and isolation can make life with migraine and other invisible illnesses harder than it has to be, but finding the support we need to feel connected can be daunting at times. Especially when we’re in pain, exhausted, and experiencing mental health comorbidities such as anxiety and depression. Thankfully, there are many places we can go for help.

Locally

Local support groups offer a chance to connect in person with people who truly get what we’re going through. We can learn about new treatment options, new specialists in town, and trade stories about area-specific triggers. The groups also give us the opportunity to make friends with other migraineurs who may be able to step in and help us when we need it and whose partners or loved ones may be able to offer a supportive ear to our own caregivers. The groups often meet on a regular basis, though the frequency of the meetings can vary from once a week to once a quarter or so.

To find a group in your area, ask your headache specialist or neurologist if they know of any in town, scan the local newspaper’s calendar announcements, or call your area hospitals and clinics. You may also look to see if there is a current American Council for Headache Education support group in your area.

Yahoo! Groups and Meetup.com also feature many local support groups. Members typically connect in person but use the list serve and/or social media platform as a way to keep in touch. Good places to start searching: http://migraine.meetup.com and http://groups.yahoo.com.

Online

If leaving the house isn’t an option due to pain, dizziness, nausea, exhaustion, or any other migraine symptom, consider looking for support online. (Research shows online support groups have a significant positive impact on quality of life.) Migraine.com has an extensive online community for migraineurs and caregivers featuring polls, reader stories, and discussion forums. It’s an ideal place to share your experiences and ask questions.

Facebook, Twitter, and other social media platforms also offer an opportunity for support and camaraderie. Consider conducting a search for #migraine or taking a look at the Headache and Migraine Blog Carnival’s Facebook page. The National Headache Foundation also offers virtual support and community options via email and across just about every social media platform used today, including Facebook, Twitter, Pinterest, and Instagram.

Closer to home

When we’re sick and feeling emotionally, mentally, and physically off balance, it can be difficult to remember we have people in our corner. While it is essential to find some form of support from fellow migraineurs (after all, no one else really understands what we go through on a daily basis), it is just as important to reach out to our friends and family. Even if your disease has made it difficult to keep in touch with those closest to you, I encourage you to do so. If you need help strengthening or maintaining relationships impacted by migraine, read Managing Migraines and Relationships.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • E.R.
    5 months ago

    A question about past posts — There were a couple of posts, one right after the other, in which the writers had each suffered for 25 years, each had tried Aimovig, and each had had really bad side effects. The thing that scared me about their reports was that their migraines had seriously worsened after Aimovig. I’m 83 and have had migraine for over 40 years, and recently the opioid problems have caused many doctors to stop or cut way down prescribing meds for pain. Mine cut my codeine sulfate in half. And he Rx’d Trazadone last week because I have sleeping problems. Then my husband remembered that I’d tried it years ago and this time, one, just one, tablet created a #10 headache that took 3 days to subside to a 6. My fear of course is that if even if Aimovig helps most migraineurs, it will give me a side effect that I won’t be able to bear. I don’t want to spend my last years in agony.

    That’s TMI. Sorry. Really what I want to ask is, is there a place where old postings can be found? I’d like to read the two I mentioned again.

    Also: I live in NY where medical marijuana is legal. I tried some of the CBD kind, tablets and cream. No luck. I’ve read that I should take some with a modest percentage of THC. THC is what gets you high. Can anyone advise me what percentage of THC (I don’t want to get high; it’ll make me high enough just not to have this pain in my head, especially the dagger in my left eye!) If someone with experience can explain what helped them, I’ll ask my neuro to prescribe it when I see him next week. He isn”t an expert on this subject. Hoping for help,
    E.R.

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