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Why yes, I do wish everyone would have a migraine

I recently asked if you would wish a migraine on people who have never suffered from the disease or who doubt its seriousness. Many of you said that no, you wouldn’t wish this on your worst enemy.

I’ve been thinking about it more (and apparently thought about it long ago—I’d forgotten about this post) and realize I am firmly on the side of YES. Yes, I do wish for every non-migraineur to have one episode. Let’s go over the facts: except in extremely rare cases, we don’t believe that migraine disease has fatal implications. When the attack is over, you can resume normal life with no symptoms of the illness. It doesn’t kill you, but it can hurt like hell and knock you on your butt and put you out of commission.

So why not give everyone just one? It might lead to more support and better governmental funding. We might have more effective and more affordable preventive and acute medications on the market if all decision- and lawmakers knew what we migraineurs go through on a regular basis. I honestly don’t feel I’m writing this from an angry or bitter place. I do just honestly believe that we would all understand one another better if we knew each other’s struggles more intimately.

My elementary school served as the county’s OH (orthopedically handicapped) center for school-aged children. As you can imagine, not all the students were kind to the OH kids, and impressions of the OH kids were certainly not uncommon. But one day we able-bodied students went through a multi-hour experience designed to help us see what the disabled kids went through every day. In particular I remember sitting in a wheelchair at a too-tall desk, trying to complete a maze not by looking at the paper directly but by looking in a mirror and having to attempt the maze that way. I will never, ever forget this experience. I won’t forget what it was like to wear uncomfortable crutches or ride in a wheelchair (I had not the arm strength!) to go through a maze.

After that day, most of the non-OH kids were a little kinder to the OH kids. So when I think of my wish to have every non-migraineur go through just one episode, it’s with the hope that they would understand better where we sufferers are coming from.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Angela
    5 years ago

    Although, NO – I would not wish the continually migraine problems on anyone. I do believe EVERYONE NEEDS TO EXPERIENCE 1 FULL BLOWN MIGRAINE THAT LAST FOR HOURS. B/C only then can they fully understand the difference in their bad headache & a migraine that continually takes you off your feet for too many reason too list.
    Years ago I worked at a place where 1 other person dealt w/migraines. And another person just had a lot of health issues, on one occasion the person with the health issues was rushed to the ER for her head. Once there she described her symptoms & was told she had a migraine. Later she came to me & my co-worker & said, “I have to apologize to the 2 of you. I never thought a headache could feel like that. I thought the 2 of you were full of crap, & I’m sorry.” At that moment I realized people who’ve never experienced migraines will never be able to understand the severity & disability of them.

  • Vondalee
    5 years ago

    Its sad, but yes, I wish everyone I knew would get JUST ONE of my migraines. People who have “light” migraines have no idea about the intensity of mine, and people with NO migraines have NO IDEA how badlly disabling mine are. Its like you have to go thru it in order to understand the severity of it. 🙁

  • Dolly Ward Paice
    5 years ago

    Oh yes I do, as I’ve mentioned before. My husband once told me at dinner that “I feel you bring a lot of it on yourself.” Mind you, I am diagnosed eithb migraine, have TMD & mild trigeminal neuralgia…..yep, I do it to myself.

  • aloofable
    5 years ago

    I wish them on people more than I probably should. Especially when I currently have a migraine because I get extremely irritable. With chronic migraine that seems to be a majority of the time.

    Just yesterday my brother had friends over while I had a migraine. All they did was shake the house and seemingly drop anvils on the floor (with my brother’s weight set in there it’s entirely possible that that is exactly what they did). Plus they were in the room right next to mine and it was 1:00 am.

    I walked into his room and literally said “Shut up and go to sleep or I’ll make it happen… permanently.” It’s not the first time I’ve threatened him like that but it was the first time that I was afraid I would actually do it. I hate it when I get like that with a burning passion but I just couldn’t take it anymore.

  • woody
    5 years ago

    Everyone should suffer at least one migraine (especially at my work)

    I once suffered migraines every day for a week.
    I gave up doing anything, afraid that every time i tried to do anything i would cause another one.
    (the fear that it would never subside was the worst thing)

  • kaysus1973
    5 years ago

    I have been having issues with my current neurologist’s office. They are horrible about returning phone calls. Sometimes it can take 2-3 days. They are very flippant with the answers I receive about treatment. (I must say, this is a teaching hospital and I have been assigned to a resident who is only in the clinic 1 day a week, but who is supposed to pick up messages daily). I think every medical student, especially those who are going into neurology and emergency medicine should have to experience a 10/10 migraine with all of the worst possible symptoms…nausea, vomiting, loss of vision, aphasia, numbness in limbs, etc. and go untreated, no meds for 24 hours and be treated like garbage by fellow students and attendings. That may make them more compassionate to migraneurs in the future.

  • kanzz
    5 years ago

    Yes. Please. Everyone. At least an 8 of 10 on the pain scale for at least 8 hours with nausea and vomiting, photophobia, aphasia, and all the other myriad of symptoms.

    Please start with the POTUS, then all physicians and nurses. Yes, I’m an RN, but I’ve heard some pretty scary things out of the mouths of my peers.

    And for anyone who ever accused someone of faking, or said it behind their back – may you have nightmares and hallucinations about people saying the same thing about you during your Mega-Migraine!

  • Sara
    5 years ago

    The problem with this idea is that I do know people who have had 1 or very few migraines in their lifetime who still do not understand what I face. In fact, it has made them less-sympathetic.
    See, their migraine pain is either not as severe, or they don’t experience the cognitive side-effects and severe fatigue that I encounter with each episode. Also, while they have a migraine 2 times a year, I have them daily, weekly, constantly.
    I do have many empathetic people in my life. I have been very lucky, but the number of people who simply do not understand who should is still amazing. If I where to “wish” a migraine on someone in order for them to understand, then I would have to wish them a month of migraines, fatigue, mood-changes, focusing problems, headaches between migraines, diarrhea following migraines or with migraines, nausea, Eye pain, and all the other side-effects that come along with just one bad month for me.

  • Nola
    5 years ago

    I would never have wished one of my killer migraines on someone else, until I realized that there is no true way for them to appreciate the debilitating effects until they themselves experience it. I don’t wish the pain – that would be cruel, but the total understanding of three days in a dark, quiet room with an ice bag and as many meds as you can get might actually make some folks understand that it’s not “just a headache.”

  • mrst53
    5 years ago

    I have had migraines since I was 12. I never got good meds until I got married and went to Walter Reed Military Hospital. I am on all different types of meds, but I still get migraines. Some times weeks at a time. I was lucky that the Doctor I had at Walter Reed, had migraines, himself. He was the only Doctor who understood the pain.
    My husband , never understood, until after 35 years of living with me, he finally had one and now he understands my pain.
    Yes, I wish, everyone should have at least one migraine, then they might understand what we go thru in our lives.

  • beth guilmet
    5 years ago

    I suffer from Chronic Daily Migraines and all of the crap that comes with it. I haven’t been able to work for 8 years and no one who has not had a migraine experience understands; friends, family, etc. The last time i went to the emergency room I was sent by my doctor and he advised that one of his students was on call, he talked to him and was instructed to get me scanned immediately, (My husband saw one of my pupils dialate and the other did not. I lost my vision completely and my doctor was worried i may have had a stroke) Anyway, when I was finally getting a bed assigned I had advised that the student needed to be paged (for the fith time and 4th person) they took blood, left an IV attached and let me wait. After about an hour i actually saw & heard a doctor pick up my chart, said “oh, a migraine” put the folder back and walked away. That was it for me, i went to the nurses desk, told them (and the doctor was there as well) that i had heard what was said, and was only supposed to see the neurology student to get a scan. the student was never paged an i was informed that thats not how thing “work around here”. I told them to remove the IV, or I was going to do it myself and I left. the next day I spoke with my doctor and explained what happened, and he was livid. He called the head of the hospital as well as the head of the emergency department, who then called me to appologize. I 100% wish that everyone at that hospital and the people in my life would get at least one 24hr migraine with everything that comes along with it so they can realize how bad it is for sufferers. Having an invisible illness is one of the worst things to have, as no one can take it or you seriously.

  • Nola
    5 years ago

    I too, have chronic migraine. Last year, I was hospitalized. They initially put me in a ward – right next to a busy, lighted nurses’ station. My husband called them and screamed bloody murder that don’t you know anything about migraine? That noise and light are the worst possible things? They moved me to a semi-private, which was okay until the other patient’s family started showing up to chat – I was literally in tears. Again, my hero husband called the nurse’s station and raised holy hell about me. They moved me to a private room, which I could keep dark and quiet while they administered the necessary IVs… I thank god every day that even though this man has never had a migraine, he has seen me for more than 35 years struggling and appreciates my suffering.

  • Sherlyn
    5 years ago

    I am happy that I found this Blog ! It made my night ! I am just coming out of a Migraine hangover so I am still a bit bitter. And Yes right now I am really wishing that Everyone would have a migraine ! Especially some of those doctors that didn’t take me serious! And those LAWMAKERS sitting there thinking they know whats best or if it is dibilitating or not. Let them have just one bad Migraine and have to come out of it. Then maybe they could better understand our pain.

  • ErinD
    6 years ago

    I’m so glad I found this site. I’ve just been reading some of the posts. I am 32 & was diagnosed when I was 7 years old. I used to be so angry when friends had never even had a regular headache! A little bit of a pity party…I went through a period of wishing them on everyone, then wishing them on no one. Having them chronically, and almost daily over the past 6 mos, I have again returned to the stance that others could feel the pain briefly. They would definitely appreciate how we get through the day little more.

  • LisaMauria
    6 years ago

    I definitely say YES, there would be a lot more understanding and empathy…and people would be a lot quieter and more considerate while you were having one. Even doctors and nurses in the Neurological Center in the hospital do not understand how severe the pain is and how every noise is amplified inside your head. It always amazes me at their lack of understanding and yet that is their area of expertise. I have been diagnosed with chronic migraine with intractable migraine with status migrainosus and chronic intractable cluster headache syndrome and the last time I went to this one ER with a raging cluster headache…my eye swollen shut draining fluid, my nose running, I couldn’t even make a complete sentence, it felt like I had an ice pick in the back of my head trying to shove my eye out of the socket, I was in horrible pain. I had to wait in the waiting room for two hours, while rocking back and forth in the wheelchair I was in and moaning, in the meantime other people who were sitting there reading magazines and talking and laughing got in before me. I am normally a very nice, patient person but I had reached my limit when this mother kept letting her screaming child near me and I would cringe and curl up in a ball, so a nurse walked by me and all I could say was…”quiet room, or kill someone”. She got my point…but normally those words would never come out of my mouth, not even close. Even after getting a room I still had to wait another hour for any meds. When I was sent home several hours later they sent me with a sheet on headaches. I was shocked and appalled at their lack of knowledge and their lack of compassion. Needless to say I have not been back to that ER, I have chosen a different hospital for my medical needs.

  • kaysus1973
    5 years ago

    Sigh..the sheet on headaches…I have been getting the lecture about sleep, stress management, relaxation, no caffeine, etc. from the resident doctor I am assigned to as well as the neuro resident I saw in the ED. Do they think I CHOOSE to have insomnia that causes my migraine/chronic pain cycle to continue? I go to sleep, but can’t stay asleep due to pain…but we all know it causes more pain when we don’t sleep well. If I could just lay down and sleep all nite with or without meds I would do it in a heartbeat! I don’t know when the last time was that I had a good nite’s sleep.

  • GSD
    6 years ago

    OMG – I have wished a migraine on people who just cannot accept the severity of a migraine. This includes my own mother who will get angry at me for having a migraine. She claims that she used to get them and even gave herself an ulcer from taking “so much aspirin”. I know my mother well enough that to her, if she gets a papercut, she blows it up to her finger almost being amputated so I’m sure her “migraines” were just regular headaches. Especially since she admits she never had any of the typical migraine symptoms – she would take her aspirin and be fine. That’s why she can’t understand what the big deal is. So, yes, I absolutely wish she would get one! My sister really never understood them either until a couple of years ago when she had surgery for diverticulitis and they had her on a morphine drip for a day. When they stopped the drip she ended up with a migraine and when I went to go get her an ice pack, I heard her telling my mother how her head hurts more than her surgery site! I couldn’t resist saying, “welcome to my world!”

  • Monsmig
    6 years ago

    For a while I’ve never wished it on anyone weather I like them or not. But, it’s hard to understand for someone that never has experienced it (not that they don’t try) and sometimes we migraineurs need that help that support of people around us. That when we can’t explain it or just comes back when we thought it was over its not because we are making it up… And maybe sometimes we just need to feel less guilty about being sick or we can’t participate on daily activities like other regular people. It’s not a bad wish or not mean wished just a cry for help. And yes to the people who just dismisses us and doesn’t take it seriously Its a little not a so innocent wish but hey I’ve been treated badly by them and I just wish recognition.

  • Julie Davis
    6 years ago

    Sadly….Actually…I do wish those at my work that have no idea what it is like..would have at least one migraine..

  • smirkjuno
    6 years ago

    YES! I was screaming and crying for three hours and I seriously wanted someone to kill me during one of my attacks. My mom took me to the ER and the lady who checked me in looked at me like I was stupid when told I was there for a migraine. My pain level was off the chart and the worst I had ever had. Thankfully it has never been as bad since but people like that make me wish that yes, everyone should experience it at least once because it’s not ‘just a headache’

  • cbrown
    7 years ago

    Yes, Yes, Yes, I had my first Migrane at 19 and I am 51 now. Over the years they have bounced back and forth in severity. I think that EVERYONE in the world should have to experience one just one to know what it is like, just as I think that everyone should work in a restraurant just once. I am lucky if that is what you want to call it – my husband has them as well as my oldest child. My family has grown up with them as we have had them so they are more understanding, but its the rest of the world that is not. Someone once asked me why I came to work when I had one? Because its what I have to do or I will never get out of bed. What kind of life it that?

  • denisemorris
    7 years ago

    I would have to agree – just once – everyone have a CHRONIC migraine. Just once, I would like to see Drs. especially the ER Drs.AND nurses, and many others go through a 10-15 day/6-10 hr. headache -even at level six ( mine very often go to level 10 and beyond). Maybe then they wouldn’t look at me/us like ” you’re just trying to get attention.” or ” you’re just trying to get drugs.” MAYBE then they would REALLY listen to me and at least try to help without patronizing me/us.

  • Bettyjlo
    6 years ago

    Yes, yes, yes!

  • Nancy Harris Bonk moderator
    7 years ago

    Agreed Denise, or act like we are drug seekers!

  • Bear Peterson
    7 years ago

    I would with absolute certainty think each and every ER doctor should have to weather a 3 day level 9 migraine with no pain meds allowed except to end it, just so they would know what they put people who can’t use triptans or DHE through. I’m most likely still a bit too soft-hearted toward the general public though.

  • Bear Peterson
    7 years ago

    The one other group I would think need migraines, that would be the fools in charge at the DEA who are thinking they have any business coming between a doctor and their patients, level 9 chronic status migraines with no end for them. That is the FDA’s jurisdiction the DEA should simply butt out.

  • Robin Baker
    7 years ago

    I always tell people I’m glad they don’t have to suffer like I do. But to be completely honest it would be nice for everyone to go thru at least 1 intense migraine so they could understand what I go thru on an almost daily basis! I’ve had migraines for 20 yrs and have learned how to work thru the pain…even childbirth wasn’t as bad as some of my worst migraines but I can guarantee the average person would fall to their knees. It would be nice to have them understand from personal experience that a migraine is real!

  • Robin Baker
    7 years ago

    I actually take anti-seizure meds as a preventative but they just aren’t doing the trick lately. Tisa I know what you mean…give me childbirth without the epidural any day!

  • Tisa Sanders Ward
    7 years ago

    Robin, I suffer from them too and so do my girls. Mike thinks it’s no big deal, that it’s just a bad headache. He doesn’t understand because he’s never had one. I’d rather go through the c-sections again because at least then I can handle noise and light.

  • Rachael Morgan
    7 years ago

    I had them for many years until I finally went to a neuro and they out me on epilepsy meds… Migraine free for a couple years now. Might want to look into it.

  • Susan Robey
    7 years ago

    Robin, I’m praying that you will soon get some relief. I’ve never had one, but Uncle Donnie used to get them and he suffered a lot, so at least I do understand that you are going through a very rough time. Please let me know if I can do anything to help you or with Willow. Love you!

  • Kevin J. Hickerson
    7 years ago

    🙁

  • Mary Litchfield Tuel
    7 years ago

    Do I really wish this? Maybe just one. So people who don’t get them can see.

  • Julie Cresswell
    7 years ago

    The only time you get any sympathy for a migraine is when you’re uncontrollably puking for a couple of days. I would turn an interesting shade of yellow-green, increasing my credibility.

  • Teri Robert
    7 years ago

    I used to say that I wouldn’t wish a Migraine on anyone, and I sincerely meant it. BUT, the years of dealing with people who not only don’t understand, but can be downright cruel have totally changed my mind.

    YES, I wish everyone who doesn’t understand and won’t even try to would have one 24-hour, head-splitting, puking-their-guts-up, room-spinning, can’t-stand-light-or-sound Migraine attack.

    The experiences I’ve had are bad enough, but when I read the experiences other people share here, my heart just breaks to realize that human beings can be so uncaring and cruel toward each other.

    Yeah, walk a mile in our shoes. I dare them.

  • Jill Oglesby Dehlin
    7 years ago

    Remember when I said that I wish I had a voodoo doll and could “stick it to them” just long enough for them to understand? Still true.

  • Paula Joanne Albers
    7 years ago

    Thanks for that visual, Teri!! Very cool – I won’t forget it!!!

  • Teri Robert
    7 years ago

    Paula Joanne Albers, when people roll their eyes, I picture the Three Stooges eye poke thing.

  • Shazzy Bee
    7 years ago

    Teri Robert I TRIPLE DOUBLE DARE THEM!!!!!!!

  • Paula Joanne Albers
    7 years ago

    I couldn’t agree more! During especially trying times with employers, eye-rollers, and those-who-suggest-aspirin (!!!), I have wished at least one of my “headbangers” on them – a good, three-day one!! We are far from being “whiners” – they pain we endure is only trumped by one fact: it will come back/we are never, “done with it”…

  • Kelly Gallagher
    7 years ago

    It wouldn’t be a mile. More like four feet. But is take it!

  • Dayna Haines
    7 years ago

    Yes! Yes! Yes!

  • Michelle Doyle
    7 years ago

    AMEN!

  • Pen Ort
    7 years ago

    I have often wished everyone had at least one, or maybe two on consecutive days. It seems that is the only way for some people who seem to think it’s like having a hang over.

  • Misty Camp Croom
    7 years ago

    It is worse than a slap in the face to have someone say to me “I don’t see how its possible to have a migraine for 4 years. “. I want to tell them to walk a day in my shoes. I can’t break the cycle I’m in now.

  • Zev Jacobs
    7 years ago

    I don’t know if I want anyone to have this, yet it would make it far easier for everyone or anyone to understand if they could experience it, even if just for a moment.

  • Teri Robert
    7 years ago

    Hope you feel better soon, Elizabeth Johnston!

  • Elizabeth Johnston
    7 years ago

    I definitely agree. Migraines are horrible and i have been fighting one for awhile now.

  • Karen Leonard
    7 years ago

    I agree completely! Just once for an hour or so. I wouldn’t wish this upon everyone, but there are too many people that think it is just a “headache” and have no sympathy at all. It would help people understand what we go through and realize we are not making this up. The excruciating pain, extreme nausea, blurred vision, sensitivity to light, odors and extreme fatigue. Not to mention all the other variety of symptoms others experience.
    I have experienced migraines lasting up to 2 weeks at a time. People just assume you are a wimp or lazy and can’t handle a “little pain”. Then I would have to be hospitalized for 2 days on an IV to break the migraine cycle only to have the migraine return the day after I was released. I have tried the hospital IV treatment 3 different times and it is not worth it!
    If others would experience a migraine just one time for a little while it would change their outlook and maybe we could get better affordable medications and more funding to help find a cure or at least a more effective treatment. I have tried every medication and none of them work. The only option I haven’t tried is Botox injections and that is what my Neurologist is wanting to try next.

  • Karen Leonard
    7 years ago

    Maria- thank you. Don’t get me wrong, every headache is horribly painful. I have had several sinus infections and sinus headaches and they are painful. It is just nowhere near the same level of pain as a migraine. And all the other symptoms that you have with them.

  • Maria Hernandez
    7 years ago

    🙁 I’m sorry Karen that people don’t understand
    I sometimes have sinus headache pain and I don’t think is anywhere compare to your migraine pain.

  • taralane
    7 years ago

    I agree completely! There was a movie out about 8 years ago with William Hurt who come down with some kind of illness that got serious, and had to go through all the departments of his own hospital. He ultimately got well, and when he did, he instated a program for all interns, making them “patient for a day”. Each intern got a disease, and it was up to the other interns to treat the sick intern just like they would any other patient, and put them through regular hospital routine, tests, and treatments to diagnose them, minus any surgeries. He wanted them to understand what it was like to be sick in a hospital, and not have anyone tell you anything, ignore you, give you nothing but platitudes, treat you like an idiot, or worse like a 2 year old, and never tell you the truth of what was going on, and speak as if you weren’t in the room. And did I mention not believe what you were telling them? I don’t remember the name of the movie but I found it telling, and right on the mark.

    People who aren’t sick with a chronic disease have no idea what it is like to have one. I have lost more money canceling things I have signed up for, than I have actually been able to go to. I almost always have a migraine. And people wonder why I, with limited resources want to have a truck that I can put a mattress in the back and use as a camper so I don’t have to rely on motels if I want to go somewhere when I happen not to have a migraine.

    Yes I want other people to feel the despair that goes along with 5 days of excruciating pain that no pain reliever will touch. They might have a little empathy for what migraineurs go through on a regular basis instead of crossing our names out of their date books as “unreliable.”

    Sorry to be so angry in this post. I don’t usually lose my equanimity so badly. I am just coming out (perhaps) of 9 days of migraine and may have to postpone a trip I have been looking forward to for 3 months. I’ll get through it, I always do, but I am getting tired of just getting through these things

  • Sally
    5 years ago

    Besides the obvious pain and other nasty symptoms, one of the worst things about having chronic migraines is never being ever to really plan anything. It’s always a guessing game as to whether or not you’ll be able to do something based on how you’ll feel that day. I think sometimes the stress of worrying about it actually brings on a migraine!

    I saw the movie you wrote about. I wish the staff at my doctors office would experience it. Maybe then it wouldn’t take them 3 days to call my meds in to the pharmacy.

  • Michelle Doyle
    7 years ago

    I completely would let someone have a migraine just for one day – not to be mean or to wish them ill will, but so they can see the daily struggles of a Chronice Migraine sufferer! I have Chronic Migraines and in the last 40 days I’ve had about 3 days of relief where I could go outside without throwing up!

  • Michelle Doyle
    7 years ago

    Jackie Russella
    Imagine living with this daily!!! Hope you’re feeling better today. Should you get a migraine again, they usually work that way you have excrusciating pain for a few days and the following day you have what is called a ‘hangover’. You are completely wiped out and probably couldn’t even complete a sentence properly either! I hope you never have to go through this one again! Take the time you need to rest, and I’ve learned to not listen to anyone elses advice until they’ve walked one day in my shoes… Take care of You!

  • Anita Boyd Tinnerello
    7 years ago

    Jackie Russella So sorry you are going through this. When I read your post I thought – wow, she describes it perfectly. The way you feel for a few days afterwards (and before in my case) is so awful, yet you are not in pain, so no one understands that you just can’t function. And you’re right, they need to come up with another word for it besides migraine HEADACHE. That just doesn’t cut it. I have chronic migraines and actually feel myself withdrawing from my family and friends because I am tired of apologizing for my headaches or trying to explain why I feel bad so much. I hope you are better soon. Maybe you can get on a preventative med that will lessen the pain when you get one. Good luck. (And yes, I agree that I would wish a migraine on everyone in the world, but just once, so they could truly understand what an awful disease this is.)

  • Michelle Doyle
    7 years ago

    Imagine living with this daily!!! Hope you’re feeling better today. Should you get a migraine again, they usually work that way you have excrusciating pain for a few days and the following day you have what is called a ‘hangover’. You are completely wiped out and probably couldn’t even complete a sentence properly either! I hope you never have to go through this one again! Take the time you need to rest, and I’ve learned to not listen to anyone elses advice until they’ve walked one day in my shoes… Take care of You!

  • Jackie Russella
    7 years ago

    Had my first migraine on Monday. Felt like I was shot in the back of my neck with a shot gun followed by severe head, face and ear pain. Did the Cat scan, blood work, etc. Yesterday took the prescribed med. “Sumatriptan” and some Vicodin and since the 48 hours of sheer hellish pain went away, everyone expects me to be back to normal today. No such luck. Feel like I am completely wiped out here. I actually told my husband last night that I wish he could experience this for just a little while so he could be a bit more understanding. Calling this a “Headache” is a huge slap in the face. I have three children and went though long labors with each of them. The migraine was way worse than the labor. Scared the living hell out of me.

  • Lisa Jurcich Kovach
    7 years ago

    I would say yes to some people who truley don’t understand the pain and suffering I have gone thru no matter how much I explain it to them. Maybe then they would understand what is is like, then they would stop and think before they speak.

  • Suzanne Johnson
    7 years ago

    Difficult question…I have always said “No.” I’d never wish this terrible debilitaing thing on anyone, especially a child! (And I have been through the ringer with family members, friends, stangers, physicians, medications, a complete life style change, etc.) But if it were to guarantee results; better undrestanding by every single person, more/better education, more resources, more/better government support, more/better medical research resulting in dramatic advances in conquering this beast……I just might, but still with the exemption of children.

  • Michelle Doyle
    7 years ago

    Suzanne Johnson Perfume, and scents are definetely a trigger for my migraines too. My Boss at work has been amazing and has sent notices out so my floor has been advised not to wear any scents to work and when there are staff assembly’s I wear my mask. I have been off of work for over a week now because this last one has been so bad that I haven’t even been able to leave the house, been throwing up like crazy. I’d love to keep in touch – pls add me to your friends list so that we can message, if you don’t mind. I tried to add you but wasn’t able to do that your settings are too high. If that’s alright with you or I can try and find you through here. It’s been nice chatting with you tonight – just to know someone who is like me has been nice… : )

  • Suzanne Johnson
    7 years ago

    Michelle Doyle, Good luck with the Botox. First it doesn’t hurt. I had the injections in my forehead (looked good with no wrinkles for several months :), cheek bones (never did figure that one out) adn that one gave me a lazy lip. I also had them in my temples, those hurt and its felt like I got beat in the head with a baseball bat for 3 days & no pain meds helped the seerity. I did have trigger point injections in the base of my skull, neck shoulders anvd in shoulder blade. That seemed to help the best with tension and knots. I’m hoping to get that done again. I’m gad Topomax is working for you. I became suicidal plus just about every other side effect as well. Now I take Zonegran, similar to Topomax, epileptic med. I’m sane but the side effects are messed up. Have a hard time speakig/saying words, foregt words, short term memory shot and coordination and motor skills way off to name a few but I haven’t been to ER since I starte taking it. The whole fmaily of Tricyclic meds, like you nortriptyline, may me suicidial. That’s one of my problems, there is some many meds that my body just does not like. I a a super smeller all my life so it sure doesn’t help with the migraines. Perfumes, candles, tar, fertilizer, any soap, bath, shampoo, etc set me right off. I actually signed up to have all the lawn companies call me before they do any lawns on my street or near me. Big help to know when to close the house up. And yes, weather and I (or should I say my head) do not get along at all. Allergies can also trigger a migraine, I’ve been keeping on top of that so far this year with our oddly warm winter here in Wisconsin, USA. I lost my “dream job” due to my migraines so I became a stay at home mom not by choice. But I have learned to accept it, I really have no other choice. Probably a good ting though, I had back surgery in Oct to repair 2 herniated discs. Talk about frustration and feeling beat down. Never lost the hope though. I wish you the very best and hope a day comes when you have less migraine days & more days to enjoy life. If you ever find then need to chat, you can message me on FB. Some times its just nice to connect when feeling low. You’ll probably have to remind me hw we know each other as my memory isn’t the best. Some days I’ve got it and others not even close.

  • Michelle Doyle
    7 years ago

    Suzanne Johnson You are the first person I’ve ever met who has the same as me… Although I have no children and I have been having mine since I was in my 20’s. My doctor and I have tried every medicine together too. We found two preventative medicines that have been working topomax and nortriptyline (sp?). I actually went 64 days without a migraine!!!! I live in Ontario Canada and our weather has been really messed up in the last month so my doctor says this latest 36 day migraine is due to the barometric pressure fluctuation. Also, topomax when I first started it I had 43 side effects – I have one now and it’s pretty severe – I have a high sensitivity to chemical smells so when my neighbour days laundry I can’t breathe – my lips swell and my eyes twitch like crazy… So I have to take allergy pills 2 times a day and the OTC don’t work I have to take precription ones… I too have the guilt feelings but it’s with work and family functions… I want to say thank you for your post. I’m going to keep it close so that when I’m having a down day I can look at it and know I’m not alone and see what a wonderful spirit and soul you have! I absolutely LOVE your positive attitude even through all of the migraine trials and tribulations we both suffer through… Here’s too one day them finding a cure! Have you went the ‘botox’ avenue yet? I’m going to look into it!

  • Suzanne Johnson
    7 years ago

    Michelle Doyle, I get it. Migraines run rampet in my family on my mom’s side. Luckily there are a couple that don’t get them but not many. I’ve had migraines since I was 18 but daily only since I was 38 right after the birth of my son. I will be 48 in May. I understand the pain of movement an I have so many different triggers it’s amazing I have a day here or there without a blasted migraine. Meds a whole nother story, I’ve tried eveyting to date. Most don’t work, or I get such bad side effects such as suicidale tendencies its not worth it. I’d rather my son have a mommy with migraine disease than no mommy at all. The meds that do ‘work’ are a hit & miss. Sometimes they work other times they don’t, it’s just a roll of the dice. And the limits they put on how much you can take is just down right mean. I’ve met 2 people in my lif who understand or as close to understanding what is like than anyone else, my father cause mom has them and my husband cause he see what they do to me. But they both agree they don’t understand the actual pain & affect. Two of the most amazing men in the world! And yes, I get so very tired of explaining that an Excedreine, etc is for headaches not migraines and they don’t help and it’s not JUST A HEADACHE. The few sincere folks lighten my heart and continue to help me keep my Hope. Hope is a constant in my life, no matter how mad it gets. I’m not saying I haven’t questioned it but I will always keep it. Without hope I would give up and I say no! I look at it this way; I have migraine disease, it does not have me. It maybe in control most of the time but when I have control I live life, I enjoy all things, and do as many normal activites as possible like laundry & dusting.And when I get that rare chance to actually go out and socialize I take it for all its worth. I take it in and enjoy. That way when I’m down & out, vomitting stomach bile wishing I had a gun. (don’t worry graphic isn’t an issue here) I can think back to those few days of really living life and realize eventually, someday I’ll have another. That thread of hope as thin as silk helps pull me through. Don’t get me wrong, I hate the pain I’m in. I pray for it to go away or for a cure. I get frustrated & depressed, I cry (does not help the head pain). I feel useless and the guilt. he guilt of not being a good enough mom tomy son and a good enough wife to my husband. Not being a good enough friend or family member due to always canceling out on things. But I cling to the hope. And stes like this have greatly helped in knowing I am not alone. Evey time I hear a story I can relate in some way, whether it pst or present. Migraine disease in my opinion is in epidemic portions with limited help, resources, physicians, medications, alternative methods, knowledge and understanding. Ad even with all that against us/ms I continue to have hope.

  • Michelle Doyle
    7 years ago

    Suzanne Johnson I would like to imagine that they would understand what us daily Chronic migraine sufferers (sp?) go through, but I don’t think it would. They may be more sympathic and perhaps want to educate themselves further, and that’s all that I could ever ask for. I personally don’t think that I would ever really want anyone to ever have the daily migraines that I do…somedays I have to lay still and if I move just a little bit I’m a goner – my whole insides are out… (sorry so graphic) I just wish that they would educate themselves further and I appreciate the suggestions they offer but it’s like a broken record – you can only say so many times I can’t go outside and get fresh air – I can’t be in bright lights… etc. Sure is a difficult question! In the end – I just wish this world was free of this disease! It’s been very interesting to find out just how many of my family members do suffer from migraines though, and the frequency. Just no-one in my immediate family. I’m absolutely thrilled to have found this page as well – it’s so nice to see I’m NOT alone! : )

  • Suzanne Johnson
    7 years ago

    After some thought I really wonder if 1 migraine would give the many close minded (uneducated to be nice) people the tiniest insight into the life of folks with daily migraines as myself. I believe in such cases it’s too life altering and debilitating for them to even consider such a possibility. You can only expect someone to understand what they have experienced. However, I do believe your “wish” would be a great start.

  • That M Word: A Migraine Blog
    7 years ago

    Your experience with the OH center is really fascinating. I wonder if there is a migraine simulator anywhere?

  • Janene Zielinski
    7 years ago

    I think it is called a torture chamber.

  • Barbara Johansen
    7 years ago

    I get it truely I do, but I wouldn’t wish cancer on anyone either. Migraines are a serious disease and if too severe can cause death by stroke. So even though I wish everyone could understand what I go through each day I still wouldn’t wish it upon my worst enemy.

  • Chuck Early
    7 years ago

    I did a double take when I first saw your post, but I love your response! I also just wish people would understand better what others go through just to be alive some days… Most people in chronic pain or illness find a way to be productive. Those are the real heros IMHO.

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