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Aimovig Update

I have had a monthly 70 mL dose since May, and am due for my 8th injection next week. Other than a little constipation the first month, I've had no side effects. My migraines went from 20+ per month to 2 or 3....until last month. Then, they just disappeared.

I had figured the effectiveness would have maxed out by the sixth month, but it appears there was another gear. It's incredible.

After dealing with the initial delays in the Ally program, an insurance denial, a successful appeal, and then a change of insurance where I'm still trying to get it covered, the $0 copay card is still working.

I hadn't really seen many follow ups from those who started in May and got relief, so I thought I'd share my experience. I hope everyone is well and finding relief.

  1. Hi thatcher1994,

    FANTASTIC!! I'm so happy to hear you are getting such wonderful relief!! And thank you for sharing this hopeful post!

    Please continue to keep us posted,
    Nancy

    1. Thank you, Nancy! I'm so, so grateful that it has changed my life.

  2. Hi Thatcher1994,
    I was so pleased to read your note & hear of your wonderful success with the Aimovig! I’m going to be starting it in about a week & I sure hope my experience is as good as yours!
    Like you, I have migraines almost every day & have taken/tried pretty much everything out there with no help. The only difference being that, I’m probably more limited than you in what I can take, due to my being on blood thinners, as I’ve had multiple blood clots.
    I have a question for you: After you took your first injection, how long did it take before you noticed an improvement? A day or 2? A week? I’ve tried to look up what to expect, with no results.
    Anyway, thanks. I look forward to hearing from you. I sincerely hope for your continued relief from this debilitating, frustrating & awful disease. You must FINALLY be enjoying life! Congratulations!
    Sincerely,
    Ruth


    1. Thank you for sharing that with us. Although sometimes not easy, it can take up to 90 days (at the therapeutic dose) before we see improvement. Also during this time potential side effects may lessen as our body adjusts to the new medication.
      I am sorry to hear about the constipation, that's troublesome to say the least. I can tell you you're not alone in this.
      I hope you'll keep us posted on the Ajovy experience.
      Nancy Harris Bonk, Patient Advocate/Moderator

    2. @yv2mqt it's always a good idea to give a therapy regimen a chance. My husband's doctor also recommended a 3-month trial between treatments. He was on Ajovy for 6 months and had to switch to Emgality due to our insurance. He has only experienced mild constipation on that. He takes fiber gummies twice a day and that really helped him. Warmly, Cheryl migraine team member

  3. Hi Savta45 ,

    Welcome to the Migraine.com discussion forum - we're glad you're here!

    Migraine is a genetic neurological disease, without a cure at this time, that we try to manage. I heard a doctor explain migraine disease like this; think of it like asthma, it's always there, with flares/attacks. Does that make sense?

    These new medications, as with others, help to prevent migraine attacks, rather than a cure. I'm keeping my fingers crossed we do find a cure in my lifetime.

    I wish I had information for you on coumadin and Aimovig, but I'm pretty sure it doesn't exist. If I run across something, I'll make sure I pass it on.

    Looking forward to hearing more from you,
    Nancy

    1. $5 Copay Card Update. If you are like me and didn't read the fine print, you may have a mild sticker shock later in the year when picking up your Rx. Amgen covers up to $3500 per year, after that, the copay card won't work again until it resets the following year. Last month I paid $43 and this month the copay was $60. Not bad considering the retail price. Hopefully it stays around this amount, I imagine it depends on our insurance.

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