October 25, 2010
Welcome to the Basilar Migraine Forum
June 19, 2011
Hi Tiffany!! Yes, I have basilar migarines. How often do you get them? I get about 10 a month give or take & I just started topamax. Have you ever tried it?
October 13, 2014
I have had the symptoms of Basilar type Migraines for about 5 years. It took forever to rule out other disorders. At first they happened many times a week and came on without much warning (I also lose memory a few minutes before I pass out) so I was hitting my head a lot. They tried seraquil, and other psychiatric drugs. I had an adverse reaction on the psych drugs and ended up in the hospital twice for suicide attempts (due to the drugs) Obviously I stopped the Neuronton and other drugs that alter my perception of reality. Finally I started Verapamil a calcium blocker I think. My attacks went from many a week to about 5 per month. I can lay down most of the time now without hitting my head. I also vomit while unconscious so I have trained myself to lay facing down and to the side. I have mini headaches a lot but they are not the kind that make me cry like a little baby. I take hydrocodone for the mild pain and Delaudid for the major attacks. I would love to hear if anyone has had more success with other less addictive medications that are not psych meds. Also any coping with nausea and disorientation would be great. I currently am on promethazine for nausea but over time it causes permanent shakes. (I would love to avoid that) Also I take alka-seltzer which helps a lot.
October 13, 2014
Sandy, topamax is in the same class as the ones that made me suicidal. Gabapentin (marketed as Neurontin)Lamotrigine (marketed as Lamictal) It does not happen with every patient but I seem to get the rare crap. Here is a link to the FDA that I should have read. http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm074939.htm I sincerely hope it works for you. Please pay close attention to your mood and thoughts. My warning signs were a zombie like motion without emotions except anger and frustration. I felt isolated and misunderstood. My relationships were greatly affected. So if you find this happening it could be the medication.
December 3, 2015
I had a migraine recently that felt like someone was crushing my head with a ton of bricks. The pain intensified over a period of about 2 minutes. My arms became stiff, my arms and body started shaking, I was wobbly couldn't walk straight, and i had double vision. I also Had slight fever. I felt like I was going to Die. Was this a possible Basilar Migraine?i finally slept then awoke with my regular Classic Migraine.