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  1. Well, not much activity here yet, but I wanted to recount my own story and say that if anyone has questions, they can contact me. I had my first Botox treatment two weeks ago and am hopeful at this point.

    A typical month for me features 10-15 full blown, incapacitating migraines as well as chronic daily headaches. I woke up every morning with a headache. After my Botox, I've had one mild migraine (I was able to function, but it was difficult) and one tension headache. Most days I wake up feeling good.

    I'm keeping track of the headaches for my neurologist, who explained that the full benefit of Botox might not be felt until I've gone through 3 rounds of treatment. At that point, I'll have reached a plateau of "maximum benefit" for me and can decide whether it is worth continuing. He also explained that while most people respond well enough to stop all over medications, in some cases people continue with their daily preventatives as an adjunct.

    The procedure doesn't take long - maybe 10 to 15 minutes. It's uncomfortable, but not unbearable.

    Please feel free to ask questions if you have them, as I am quite excited about this new treatment. After 30 years fighting migraines, this may be my best hope.

    1. Lori, thank you for recounting your experience here. Now that Botox has been approved, I am hoping more patients will have the opportunity to try it, and that it might make a difference for them.

      It is worth noting that patients can become immune to the Botox therapy, so it should not be taken lightly. Thankfully, there are two other strains of Botox-like injections that have been developed for use in these patients, but patient reports seem to indicate they are more painful. Botox certainly shouldn't be considered a first line treatment, but I'm definitely glad it's at least in the mix! Hoping I'll have the opportunity someday to try it too 😀

      1. Thanks, Ellen. I understand the caution about using Botox. I was one of only 15 patients out of hundreds that my neurologist felt would benefit from Botox.

        My neurologist actually first brought it up a few months ago because he said he felt like I was becoming more resistant to any treatment, and that my many trips to the Emergency Room with static migraines were troubling. I've been hospitalized several times in the last several years, and I was taught to inject myself with Toradol at home in order to limit hospital visits.

        I've also had nerve blocks done in the past, which I think were more painful than the Botox injections. Those worked well for about a month, and my doctor told me at that time that my response to the nerve blocks was a good indication that Botox would work well for me.

        If anyone has questions about how it is done or how it felt, I can reassure them. I'm a weenie about pain, and if I can do it, anyone can.

        1. So far, I've had one mild migraine that responded to treatment with Sumatriptan and one mild tension headache in two and a half weeks since the injections. They gave me a short round of prednisone to nip the headache quickly. This is MUCH better than my almost daily headaches that included vomiting, vertigo, etc.

          The last several days I've not needed any medications and have been feeling pretty good. I'm keeping my fingers crossed!

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