October 25, 2010
Welcome to the Effectiveness of Migraine Treatment Forum
August 2, 2011
I am inquiring on behalf of my sister who has had continuous migraines for the past 25 years. They range from painful to debilitating and more often toward the debilitating side of the scale. She has seen more headache specialists than we can count not to mention family practice physicians.
Is there a recognized 'world class' center that truly specializes in the treating migraine? Or can you recommend a specialist who is a potential source for people who have chronic migraine and seem to be treatment resistant.
I have recently had brain surgery and my condition is cakewalk compared to what she goes through every day.....any help would be greatly appreciated.
August 9, 2011
chd - thank you so much for your concern for your sister. Most people don't understand that brain surgery can be much easier than something as "common" as Migraine. You voiced that - thank you so much!
To address your question, matching physicians with patients is a hit or miss proposition. Not all matches work - plain and simple. As hard as it is, finding the right physician match for someone who is hard to treat like your sister and myself can be problematic and very, very discouraging. The trick with Migraine is knowing that the key is patience and perseverance.
It might help to know where you are located. If you wish you can message me here.
May 8, 2013
I've been seeing an excellent headache specialist for about a year and a half. We've tried numerous different treatments all with little or no effect. I can't afford some of the remaining options, like a trip to a headache clinic, or chiropractic care. So my question to anyone who has been in this position is what do you do when you don't know what to do next?
May 8, 2013
ottermacailein - It would take over 25 years just to try all the available single medication treatments, and this doesn't include non-drug therapies and treatments of which there are many. So my suggestion is always to hang in there and don't give up. A good specialist won't give up on you if you don't give up on them... or yourself. Having Migraine requires an immense amount of patience and fortitude. It is NOT for the faint of heart.
Have you had a frank discussion with your specialist about how things have gone with him/her so far? That might be the very best place to start.
Sending lots of good thoughts your way. You are certainly not alone. I've been chronic myself since the mid 1990's and have still to find something that would give me much of my life back. I'm still trying though... Can't give up!