October 25, 2010
Welcome to the Headache Types Forum
May 23, 2012
I just read about Focal Cranial Neuralgia. Has anyone been diagnosed with this type of head pain?
July 18, 2012
I had a question about neuralgia also. Specifically Occipital and Trigeminal Neuralgia. I've had chronic migraines for almost 10 years. Within the past 2 years I've noticed a difference in the pain. Is it possible to get neuralgia due to the chronic migraines? I'm having a hard time talking to my neurologist about this. He seems to not understand what I'm trying to explain. Any suggestions?
July 18, 2012
iHold, Neuralgia is not well understood. Neither is facial pain and Migraine, although we do know there is an inflammatory component that can affect the nerves of the face. Usually this type of pain subsides with the Migraine however. This facial pain related to Migraine also doesn't usually have triggers, such as eating, or a breeze on the face unless a Migraine is in progress.
There are neurologists who specialize in neuralgia if you would like to rule that out. I'm not sure where you are, but you might try doing a search for "Trigeminal Neuralgia specialist" or "facial pain specialist" and the name of your state or surrounding states.
If you would like a little more information on diagnosing TN, here is a fabulous link to a physician in Oregon who has an online diagnostic tool to see if you might suffer from TN. Take the printout to your doctor and begin a discussion about your answers. You can find that here: https://neurosurgery.ohsu.edu/tgn.php
August 4, 2012
I've been searching for relief since 2004. Doctors previously have treated me for migraine or trigeminal autonomic cephalalgia (TAC) (I' tried numerous abortive and preventive meds - but I am still in pain). However a new neurologist just described my problem as atypical facial pain or a neuralgia. She says the pain is from the trigeminal nerve.
My pain is above and behind my left eye and in my left cheek and feels like someone is pushing a pool stick through my face. It is constant (24/7) though it varies in intensity. Most days it is in the moderate range.
However I also have other symptoms besides pain - though the other symptoms are not present all the time. I get the other non-pain symptoms 3 or 4 days a week. These symptoms include weakness, fatigue, brain fog and a sense of being disconnected.
Has anyone experienced facial pain or trigeminal neuralgia along with non-pain symptoms? Is facial pain even considered a headache?