October 25, 2010
Welcome to the Migraine Types Forum
May 3, 2013
Fawn Hunkins-Beckford - You have brought up several things here that we can talk about:
First, you have said you have thyroid problems, but haven't elaborated. Do you have Graves' disease? This is the type of autoimmune thyroid problem that results (sometimes) in TED (Thyroid Eye Disease). Graves' is less likely to exacerbate Migraine than Hashi's, but antibodies and fluctuating or unbalanced levels can be troublesome no matter which direction they are - high or low.
I am a little confused, because you say you are having aura and constant headache pain. These may be connected, or not. Are you seeing a Migraine specialist yet? You have also said you have acephalgic Migraine, but if that were true, there wouldn't be any pain.
There are over 300 different headache disorders and some of them can cause constant pain. Chronic Migraine is only one of them. Chronic Tension Type Headache is another, and your symptoms as written here remind me more of TTH than CM. There are some symptoms that do sound like Migraine though, so seeing a good Migraine and headache specialist is probably going to be a real key for you. Without an appropriate diagnosis, treatment and management is nearly impossible.
One fairly quick way to help determine if head pain is Migraine is to gently bend over and put your head lower than your body. If it becomes more painful, this is often a sign that it is Migraine. Sometimes doing this doesn't change the pain, or the pain may even get better. These can all be pieces to the puzzle that a good specialist can help you tease out. We can't diagnose a person, but do try to at least help you figure out what is information that should be shared.
Here is a link to information that can help you find a specialist: https://migraine.com/blog/looking-for-a-migraine-specialist/
May 8, 2014
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May 5, 2013
Fawn, I suffer from constant headache. As of the moment my headache specialist is at a loss for what exactly might help. My diagnosis is chronic migraine, but it doesn't respond to treatment (as of yet.) I can't imagine trying to find relief without the help of a headache specialist. Just any neurologist won't do!
May 5, 2013
I suffer from chronic migraine. I have a constant daily headache that progressively gets worse as I attempt to live. Bending over does increase the pain.
Recently I went through some stressful work issues which caused a severe migraine which contracted the muscles on the right side of my face causing a numbing sensation from my temple to my jaw accompanied by stabbing pain, blurred vision, nausea, light and smell sensitivity.
I went to my neurologist and she had me admitted to the hospital 3 weeks ago for a DHE treatment but that didn't help. Something they gave me caused my liver functions to become elevated. They took me off all my migraine medications until my liver functions return to normal. The right side of my face is still numb and I’m still waiting for my liver functions to return to normal.
I do have a level 7 migraine every day. It goes to level 10 once or twice a week depending on how active I try to be. My eyes are always sensitive to light and I seem to have a super sensitive nose as I smell everything. Lately I have been waking up always around 3am with a level 10 migraine. I’m not sure what is triggering this or how to stop it. I do not have TMJ. I can use my IM Toradol and Phenergan to try to break the 10’s as needed.
I have been to the eye doctor, the dentist, pain management specialists and many neurologists but I’m open to suggestions. My current Neurologist is also a migraine sufferer.
I see the doctor on Friday to talk about botox. I tried botox in 2006 and it did not help but I have to try something.
Right now a dark room and ice packs are my best friends.
May 6, 2013
slhart - It is vitally important that you get an appropriate diagnosis for your symptoms. I wish symptoms were enough to get an accurate diagnosis, but the fact is sometimes we have to test to rule out other things in order to get to the bottom of the puzzle sometimes. A neurologist isn't necessarily the best person for you to be seeing, frankly. Here is a link to a post where you can find a specialist near you: https://migraine.com/blog/looking-for-a-migraine-specialist/ Many headache and Migraine specialists are also Migraineurs and truly do understand. Often they also have family that suffers. They can't necessarily tell you this information, but it is true nonetheless.
Has anyone ever talked to you about the symptoms of hemiplegic Migraine? Here is a link that might be helpful: https://migraine.com/migraine-types/hemiplegic-migraine/ We can't begin to try to diagnose anyone here, but it might make for interesting reading while you wait for an appointment with a specialist who can do more for you. The hallmark symptoms of hemiplegic Migraine is hemiplegia: https://migraine.com/blog/migraine-symptoms-hemiplegia/. I know some HM patients whose hemiplegia takes some time to go away.
Botox injections have changed since 2006. The protocol that was most effective in testing is now in use and utilizes 31 injection points - this is more than the old protocol. Also, there is a certain amount of skill involved in getting these injections in just the right spot. This means you want someone who is very familiar with the techniques and how to locate the appropriate anatomy to give them. Almost anyone can give these injections, but you'll want someone who is especially well-versed. Here is more information on where those injection points are: https://migraine.com/blog/botox-chronic-migraine-experience/
Good luck, and I hope you'll come back and let us know how you're doing. Hang in there... 😀