Collecting Migraine Symptoms

Join the conversation

1. 

   nece

   August 29, 2020

   <p>I wonder if we have new symptoms or just realize that that symptoms we have been experiencing are related to our migraine.</p>

   reply
2. 

   wirr

   September 3, 2020

   <p>Well i had to go a long way of more than 25 years to get the diagnosis of migraine. <br> At the age of 7 I had some headache I could not remember until I found old <br> evidence from my kids doctor from the year 1979. <br> <br> As I know today I had my first persistent migraineaura without headache at the age of 19. <br> That went away after 6 month. Short after that I developed vestibular migrine <br> attacks without headache. Begining with a duration of about 1 to 3 hours that developed <br> to attacks that had a duration of 3 days. <br> At the age of 28 I had my second persistent aura for over 3 years and I developed <br> visual snow syndrome and ringing in the ears. Migraine attacks now had a duration of 11 days. <br> I had it up to two times a month. <br> At the age of 33 I had my 3rd persistent migraine aura. The onset was unbelivable. <br> I could not walk for some days. I got stuck in that for 6 years. Migraine attacks <br> still had a duration of 11 days but often I had a new attack before the last <br> was gone. Two or three migrainefree days a month was like holiday. <br> At the age of 43 I had all symtoms of a so called basilaris migraine attack. <br> Couldnt get out of bed for weeks and did rarely left the house for the next <br> three years. I had persistent diplopia with tons of other symptomes until present. <br> Until today I got only 2 attacks with a kind of pulsating headaches. But the pulsating was <br> bothsided and in the neck too. My general headaches are preasure. Like this game <br> with the rubberbands and the exploding melon. The headaches are not nearly the bigest <br> problem. The problems are the prolonged migraine auras with brainfog, vertigo, dizziness, <br> memory loss, wrong actions, arrhythmia, nausea, blurred vision, derealisation, depersonalisation, <br> motionsickness, phonophobia, temporal ringing in the ears, persistent ringing in the ears, <br> numbness on the left side of my face, a feel of water in the ear <br> (two years later that swaped to the other side of my head), i still can go on... <br> <br> For 25 years I was rated as a psychotic disordered until a doctor mentioned morbus meniere <br> in relation to my vertigo. <br> That and a book about morbus meniere led me to the differential diagnosis of vestibular migraine <br> and I saw a migraine specialist in Schmerzklinik Kiel germany. The first time i saw a doctor who <br> knows what I was going through. And finaly the right diagnosis. I think I sat more than one <br> hour on the sidewalk crying from anger and relief. <br> <br> All the best</p>

   reply