Diary of a Migraine~ From the Head It Inhabited: Part 1

For most migraineurs we can honestly say, “We have experienced several “BIG ONES!” You have taken all preventatives and all abortive medications. You have iced your head and hidden away in your bat cave. Still the pain persists and possibly increases! For me when the pain level gets to a 9 because the little demons are throwing hot pokers into my eyes and temple and skull. When the world is a whirling cyclone of colors that seem so bright that even sunglasses do not take away the glaring light. I can hear my own pulse on the pillow, and that is too loud for me to handle. My words become lost in the fog somewhere. This usually signals to my husband that a trip to the ER or doctor or both is eminent.

When the mother of all migraines come to call

March 28,2018: Philadelphia, PA  
Really?! NOW?! We have looked forward to the Health Union Conference all year and on the 2nd day of the conference, I get hit with a level 9 on the pain-o-meter of migraines! Stayed in the “BatCave” (darkened hotel room) all morning. Michael came to get me to say goodbye to everyone after lunch! LOVED that Health Union had earplugs at front table!! Bless them!!!


April 4th: Home 
Was home for a week since the conference. A week of pain, of trying everything we can think of to stop this cycle! The pain is getting worse as the little demons in my head continue to stomp around with hot pokers jabbing at my head and eyes! I have seen Primary Care Doc, nothing! The endless cycle of dry heaves and swirling world and vice like pain HAS GOT to stop!! I believe it is time for the dreaded Emergency Department.

Dear emergency department

Thank you for being SO concerned that I might become addicted to something, that you refused to listen to what has worked before and is the usual cocktail to abate this horrid migraine! Thank you for the noisy, confusing atmosphere that I was kept in, that only perpetuated the pain and symptoms. Thanks for the 14 hour stay without food or my other medications, that only added fuel to the fire that was burning in my brain. It only validates the reason so many of us with migraines are terrified to come to the ED for a migraine! Thanks for nothing!

And the pounding continues..

Our time at home did not last long. The pain continued to spiral out of control, along with all of the wonderful issues of a major intractable Migraine Storm! Something had to give or I was going to seriously go insane. Finally, my migraine doctor stepped in and my husband and I thought life could resume. Little did we know we still had a rough ride ahead!

Part 2 of Diary of a Migraine will chronical the hospital stay.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

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  • pigen51
    6 months ago

    My ER’s here where I live have decided that narcotics are a bad abortive for migraines, and won’t use them for the condition anymore. Of course, by the time I would get to where I needed to go to an ER, that would be the ONLY thing that could have a chance to touch my migraine, and at a dose that might hurt a normal human being. Plus an added anti nausea medication.
    Once you get the medical community thinking that you are a drug seeker, you can also rule out ever getting opioid medications for just about anything, unless you have lost a limb. I have not gotten that reputation yet, but I have had some doctors look at me funny, in the past, when I had been in the ER more than once in the same quarter.
    I see all the new drugs that come out, and have tried them, in the past, to no avail. Sadly, I have tried pretty much every treatment plan in the last 40 years, and never found any preventative that worked for any length of time. I had one doctor tell me, with a bit of truth, I think, that some people just get migraines, and there is not much that they can do to help them.

  • ShakingthePainAway author
    6 months ago

    Pigin51 There has to be more! We must be more resolved to educate and create awareness! I think the group of advocates on Migraine.com and others I have met along my journey are finally starting to help doctors and clinicians see that we are not just all drug seekers! But it is a long way off!
    Thank you for your comments, Stay tuned for Part 2 and 3! It gets worse!
    Gretchen Church
    Team Member Migraine.com

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