Diary of a Migraine~ From the Head it Inhabited: Part 2

A few months ago I was admitted to the hospital for 10 days with Chronic Intractable Migraine. The goal was NOT to get my pain level to zero, as that does not happen with me, I am NEVER without migraine pain. It was simply to get me back down to “functioning” which is about a 6 or 7 on the pain-o-meter... My hope is that others may recognize some issues and be able to talk to their doctors about how things can be done differently.

Hospital stay

April 9th-17th 2018

We thought, “WOW! This is going to be great!” No waiting for 12 hours in the ER with really sick people AGAIN. No inquisitions about whether I REALLY was a migraine sufferer or just looking for my next drug fix. A real plan of attack for this round! Wahoo! Pipedreams... I think there was some kind of plan of attack, but I was never clear on WHAT that plan was!

Reality vs. expectations

Being at a teaching hospital you have not only your main doctor but as we lovingly refer to them, his or her “band of minions” that scurry around the head doctor. I EXPECTED that my migraine doc would be overseeing my care in the hospital the REALITY was that a hospital neurologist was my go-to doc (and his minions) were my care team! There was an initial plan which was followed. The infusion of DHE over the course of 3-5 days.

According to www.rxlist.com, DHE or Dihydroergotamine is in a group of drugs called ergot alkaloids (ER-got AL-ka-loids). It works by narrowing the blood vessels around the brain and affects blood flow patterns that are associated with certain types of headaches.

I EXPECTED that on top of the DHE treatment that we would also include pain management, nausea management, and other aspects of migraine management. The REALITY was the DHE did little to help and the management of pain and nausea while attempts were made seemed futile. I also EXPECTED that my migraine doctor was being consulted along the way, the REALITY was this was not really happening.

Feeling stressed instead of feeling better

I was getting frustrated and depression was seriously setting in. The pain was actually getting worse and we were in a tailspin! To me, the answers were so simple, give me the cocktails that I KNOW work, however, they included either dilaudid, morphine, or some other form of controlled substance that due to the whole opioid scare, doctors and hospitals seem to be unwilling to utilize! But when you have spent 6 days in the hospital and they run your blood and urine daily… They are right there to monitor everything, it makes no sense… Except to cause more stress and pain to the patient! Whatever happened to Do NO Harm?

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