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My Good Month

My Good Month

I’m trying not to think about it too much

I honestly can’t remember the last time I have had only three migraines per week. And we’re talking one severe, two easily treated. This pattern has been going on now for at least a month or maybe more. It has now been seven weeks since I’ve been to the ER. Previously, for about the last year, I have had to go every 3-4 weeks.

Three migraines per week is not chronic.

I’ve stated previously that my migraines are cyclical. I am not at all hoping or assuming that this will last. But I can’t help thinking about the fact that even in a healthier phase, I have never (that I can remember, and granted, my memory is poor) had this many good, productive days. Maybe not since college, or right afterward. We’re talking almost twenty years.

One possibility is that I received more of the CGRP medicine at my last appointment. This particular study is looking at the effectiveness of different dosages, so every month I get a different amount. Some months, I get none at all. That is the difficulty with clinical trials; participants aren’t really patients. We’re numbers. We’re data to be studied. I feel so lucky to have H on my side, as my friend and study coordinator, and not everyone has that. And here I am, sitting at my laptop right now at five AM, binge watching Parenthood on Netflix and writing and listening to my husband and dog snore and enjoying many days of a clear head and a happy heart.


And, pretty much, the study seems to me to be the most likely cause of my good run, other than the fact that, like I said, the headache part of my migraine disease is cyclical. But this is… I haven’t felt this consistently pain-free in so long.

I feel like the improvement is different this time. I made it through my usual depression phase when my pain decreased. I came out the other side.

I don’t think this is going to last.

I don’t think that I have made the transition back to episodic.

But what if I have?

And if I did get a higher dose of the CGRP and that explains my good month, and next month I get a lower dose and don’t do as well, then… I guess I’m thrilled that I’ve had this time. And I can look forward to CGRP meds being approved by the FDA and I will for dang sure request the highest dose available. If it’s not the CGRP, then all the better, because that means I’m just improving on my own.

I’m still needing 3 Imitrex per week. I’m still spending one day a week in bed. But compared to how I’ve been living the past ten years… oh my gosh. I feel like I suddenly have a real life. And even if it changes and goes back to the way it was, I’m grateful.

And you guys… if it is the CGRP that caused this, how much hope is there for all of us? 37 million people in this country on the migraine disease spectrum. We don’t have too much longer to wait. I’m so lucky to get to participate in these studies, but we are all lucky. Because it’s happening. The first preventative migraine-specific medication is going to be available to everyone soon. Very few to no side effects. Possible other benefits like the fact that it seems to be cumulative. H told me that rather than it wearing off or ceasing to be effective, it works better over time. I’ve also read that it may be helpful for PTSD, and I’ve noticed myself that it seems to ease depression. Hope. Gratitude and hope.

Hang in there, because help is on the way.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • officechik
    2 years ago

    So glad you finally had a good month!
    I was fearing ever having one…
    Last year we had an especially dry summer in Western NY declared a drought.
    Long period with no rain, thunderstorms, just hot dry weather.
    Had over a month with no migraines. I was in heaven ! I certainly appreciated it while it lasted. I am “barometer” trigger for migraines, as the pressure falls ahead of a storm, that will set me off. So when the rains come, or very wildly different weather, like we have had this spring 🙁 the migraines come back with a vengeance.

    One thing I am sure to do as to not be caught without meds between good and bad times is get them filled every month whether or not I need them. Stingy they are with the meds, I only get 12 doses per month on my prescription for my relief Maxalt. So good month or bad, I get it filled. I never want to be out !!

    MIchelle

  • Elizabeth Roberts-Zibbel moderator author
    2 years ago

    Michelle, that is an excellent idea! I haven’t gotten to the point where I have extra meds, but I used to run out early and that isn’t happening so much now. I am triggered by the barometer too! Thanks for your comment <3 ~elizabeth

  • Soteria
    2 years ago

    Hi Elizabeth – thanks so much for posting. I, too, was in a CGRP study and the results were amazing. I am now 5 months past my last dose and although the migraines never ceased completely, the intensity and duration were cut by 80% if not more. So, I’m like you, waiting anxiously for the first pharm company to go before the FDA. Can I ask which study you were in? did you receive infusions or injections? I am told that all are showing some kind of improvement, some better than others, but the only thing they know isn’t effective is oral administration (can’t get the antibody past the stomach). I was very interested to hear your comment about cumulative effect – that was the first I have heard this. And my study coordinator said that in the two years he’s been involved with this, he has seen NO side effects with any study participant. So to echo your comments, I want to encourage those out there who don’t have the benefit of being in a study and having access to this ‘med’ – HANG IN THERE This stuff really does work for most people. And, Elizabeth, like you, I feel like I’ve been given my life back. HOPE!

  • Elizabeth Roberts-Zibbel moderator author
    2 years ago

    Hi Soteria, yay! Your results were so similar to mine! I had injections for both AMG334 and the one I’m in now, which I’m not allowed to name yet. And you know what’s interesting? Amgen is doing a new study with an oral medication that is working better this time. That will be amazing for financial and convenience reasons!

    I think the cumulative effect aspect was theorized by H, my study coordinator. No one is saying that officially. But wouldn’t that be awesome if it were true?

    Take care!
    elizabeth 🙂

  • Tamara
    2 years ago

    March was my good month … except for a doctors visit that crumbled my good mood. Because the weather had been very constant I had minimal migraines and was half of my normal medication usAge. This was after February – 2 visits to urgent within a week and having to start amptriplyine and baclofen on top of my daily tramadol, vaporic acid, and citalopram.

    I finally got a follow up from my neurologist (last visit was 6 months ago, I tried to get an earlier appointment in January when I had another extremely bad month to no avail – “they had nothing earlier and I had to wait until march”). Or should I say I got to see his student.

    Since my my migraines were good the past few weeks the neurologist wouldn’t change me meds in any way even when I explained they were only good because of the weather. Wouldn’t believe me at all.

    While guess what …. April has been very unprectiable and I am WAY over my med allowances already but if my doctor doesn’t understand some months are better just because what am I to do? I’m going to stop rambling because I’m not getting out what I want to say, head is a bit to sore and meds hitting to hard to think. Lol.

  • Elizabeth Roberts-Zibbel moderator author
    2 years ago

    Tamara, I totally understand what you’re trying to say. My migraine disease is very cyclical and it’s so frustrating when you’re doing well to try to explain to people that it won’t last. I hope May has been good to you so far! April is almost always bad for me.
    Take care,
    elizabeth

  • Elizabeth Roberts-Zibbel moderator author
    2 years ago

    Tamara, thanks for your comment and I”m sorry you’re back to “the bad” in April. April is typically awful for me too, for similar reasons. I feel most doctors are so inflexible, when treating migraine requires, almost more than anything else, open mindedness and adaptability. I have had maybe only three doctors in my life who understood that. You didn’t ramble! <3
    take care,
    elizabeth

  • Maureen
    2 years ago

    Hope and gratitude! I’m feeling it! So happy for you that you are in a good season…even if you think being up at five am is a happy thing;)! Enjoy the good days and I’ll bet you are probably getting reacquainted with what you think of as “the real you”. But know that know matter what, you are the real you every day. And I’m glad you are clearly feeling pretty well!

  • Elizabeth Roberts-Zibbel moderator author
    2 years ago

    Thank you Maureen! This was written in February, but I am still doing pretty well. I’m noticing however that my secondary migraine symptoms have become more problematic, in a different way. I’m going to write about that soon 🙂 The “real me” is definitely the me with migraine disease – I’ve had it since I was a toddler. However, I’ve enjoyed having less pain and more time to be with my family. Thanks again ❤️

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