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Woman wearing syringe (cgrp medication) on her back like a hiking pack, looking forward to her journey with amovig

Being Okay With the Small Miracles

It’s an overcast spring day here in Athens, Georgia, and I just took an Imitrex for the first time in weeks. Though I feel I should be elated at this news (OMG! I have only needed to take a triptan once in the last 6 weeks instead of twice per week!), I feel frustrated and scared.

Unpacking feelings

This happened to me a few weeks ago when I had a moderate-level migraine-the first in weeks—and had to take an Imitrex to abort the episode. Since then, I’ve been trying to unpack my feelings around this. It’s not as if I truly thought that Aimovig would erase migraines from my life, right? I mean, surely I am well-versed enough as a patient and a health advocate to know that there is no cure for migraine, and that even drugs and interventions that are ground-breaking for some patients won’t cure them of the illness forever.

Hoping for a cure

And yet.

And yet.

I have to acknowledge that a less-than-rational part of my brain hoped against hope that my migraines would be a thing of the past once I found the right drug. And, for all intents and purposes, Aimovig is the right drug for me at this point in my life.

Treatment after treatment

Like many patients who have been prescribed Aimovig, I have a long list of treatments I’ve attempted since having my first migraine attack (that was over 25 years ago for me). At the beginning of my journey as The Migraine Girl, I would harbor such strong hope when heading to the pharmacy with a new prescription (or starting a new exercise routine). Maybe this is the key for me. Maybe this will be my breakthrough, the thing that gets me back to being a normal person. (A “normal person”? Whatever that is.) As the years went on and treatment after treatment proved mildly effective at best, I stopped being as naively hopeful. That is, until I started taking Aimovig in late November 2018.

Huge improvement

I had read the research and had met with some pharmaceutical company reps who had been working on this CGRP-inhibitor for years. I had a friend (a fellow migraine.com health advocate/writer) who had been a part of a CGRP-inhibitor trial and had seen drastic improvements in her migraine-related health. This might be it, I thought, subtly considering this new drug in the way a hopeful romantic might feel after an incredible first date (“Is she the one?!”). In most ways, this is it. This drug treatment has been monumental for me. For years I said I would do anything, try anything to reduce migraine’s impact on my life. Over time, I’ve had some breakthroughs, but nothing as long-lasting as this.

Tempering expectations

There’s no cure for migraine (yet), and there’s little to no chance I’ll never have an attack again. But I’m working to be at peace with what is and to focus on being grateful for my healthy times. But wow: when there’s a cure for migraine, I’ll be ready to try—but I’ll definitely try to temper my expectations.

How have you been feeling lately about your health journey? What insights (positive, negative, or in-between) have you had that you’d like to share?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • ctaylor
    6 months ago

    I too started Aimovig last Fall. It was amazing. I actually had a COMPLETELY headache free month in March. I have had incredible stressors this past year. My mother passed away Christmas Eve. Aimovig still working. My father passed in early April. Aimovig still working. My brother filed suit against the estate and my sister and I in May. Aimovig still working. Then June came along with the sun and heat. Aimovig working!? And July. 7 to 9 headaches per month. Aimovig still working? Then August. Daily low grade migraines but manageable. This was when my daughter reminded me that with or without Aimovig I still have a chronic condition. I am looking forward with great hope to cooler and darker months and fully counting my blessings. I have not returned to 27 days a month of severe migraine yet and I am very grateful to Aimovig for that. And if it stops working then I will move on to the next one. At least for now, with these new CGRP therapies we have hope again.

  • CorinneJ
    6 months ago

    Oh Migraine girl, your essay was written by me too! I have just started Aimovig last May and felt it changed my life until the first migraine came weeks later and my heart and mind went tumbling…..it continues to be so amazing for me but I find I wait for the next one or it to stop. I believe it works and have to because I must find that inner peace as well, thank you

  • The Migraine Girl moderator author
    6 months ago

    Corinne,

    Thank you for taking the time to write. I hope you’re feeling as well as possible. I just had a 5-day migraine streak–longest streak since I started Aimovig–and it got me down. Let’s keep trying to do the best we can with what we’ve got. I hope Aimovig keeps working well for us. Thank you.

    -Janet G., “The Migraine Girl”

  • Crystal.Harper
    6 months ago

    “Yet.” I think those are the three most powerful letters. There may not be a cure yet, but there are new breakthroughs all the time and I’m so glad you aren’t letting the treatments that didn’t work stop you from continuing to seek out the one that will work for you.

    Sending all the positive vibes your way. ❤️

  • The Migraine Girl moderator author
    6 months ago

    Thank you, Crystal, for these words of encouragement. I hope you’re feeling as well as possible today. <3

    -Janet G., "The Migraine Girl"

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