Shattering the Stigma of Migraine
It's hard to believe that in 2021, migraine is still so misunderstood. This week, September 5th-11th, commemorates Migraine Awareness Week. A large part of spreading awareness of migraine is sharing the realities of what migraine looks like as well as shattering the stigma and misconception that migraine is "just a headache."
The harsh realities of migraine
We've said it so many times that we sound like broken records, but migraine isn't just head pain. It's the need to hide in a dark room for hours, days, and sometimes even weeks due to light sensitivity. It's the tsunami of nausea that overcomes us and sometimes even makes us vomit. It's the anxious feeling between attacks that makes us question how close the next debilitating migraine is. It's also knowing that when we say "I have migraine" or "I'm dealing with a migraine attack" that people don't think it's a valid excuse to cancel plans or take a sick day. Migraine is so much more.
Sharing migraine experiences
Migraine has a significant impact on a person's life. We all know that from going through the motions of our own lives with migraine. To that end, we’d like to invite you to share your experiences by telling your story with migraine. Share your worst migraine attack, your diagnosis journey, or how the misunderstanding and stigma of migraine have impacted you. Share the good, bad, and ugly aspects of a disease that is so often misconstrued.
Offering advice to someone new to migraine
While we're stomping out the stigma, we can also raise awareness for those who are newly diagnosed or are looking for support. Migraine can be like a battlefield. Its weapons can change over time meaning that our arsenal needs to change as well. Join the discussion to offer your advice and wisdom about what someone new to the battle should know. No one should go into a war blindly.
Why spread migraine awareness?
You might be asking yourself, why should I have to explain migraine to someone? Why can't they be empathetic to our experiences with this disease and take the time to better understand it themselves? Well, sharing our experiences not only helps us, but those who don't and will never have migraine, those leading the charge for new treatments and research, and those not yet diagnosed better understand something that affects so many.
It's the migraine community who knows the true impact of the neurological disease and it's the migraine community who is best equipped to shatter the stigma.
As a person living with migraine are there any words or descriptions that piss you off/grind your gears/frustrate you?
How much has your migraine disease changed or evolved over time?