lsh5id's avatar image

lsh5id

Primary Badge Member

Status

"I started aimovig for 9 months in December 2018 . I developed psoriasis on my back hips and legs complete exhaustion and hair loss and nausea.In December 2019 i took ajovy for 3 months Within a week I developed terrible joint pain in my hands and feet.I also had constant nausea and exhaustion and my migraines got much worse.I also gained 16 lbs which i cannot lose. I went back to my headache doctor and he said no more cgrp for me. He said he can do no more for me at present and said I would have to go back again to Kings College in London and see Peter Goadsby again I live in Ireland and we are not able to travel due to covid19.My Knee surgeon referred me to a rheumatoligist.He put me on steroids and did a lot of blood tests. He does not if I have arthrititis from the psoriasis, rheumatoid arthritis or if it is an reaction to cgrp.The pain is gone since I took the steroids and i go back to the doctor in 2 weeks. He said it will be very difficult to know what is actually wrong with me. cgrp has made my migraines so much worse.As I live in Ireland we will have a long wait for the gepants and ditans to come here.I have a migraine with pain in my ear for 9 days now and I taken zomig naproxen and still cannot break the pain cycle.I am really desperate now .My mother died suddenly in January 2018 and my migraines just went through the roof. I have had 3 episodes of vertigo each time i was affected differently and had to go for physio.I am 66 now and have migraines since i was 12.I was only diagnosed 8 years ago when I saw my headache doctor.I pray that I wil get some relief from the chronic pain that I have everyday .I have tried everything ,but nothing helped. If anyone could give me some hope I would be very thankful I live with my brother,he is so good to me I do not know how i would cope without him Joan"

Activity

View All
No recent activities.

About lsh5id

  • Member Since 2016

Activity

View All
No recent activities.