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Headache on the Hill 2018 – How You Can Get Involved Now

On February 12 and 13, 2018, the Alliance for Headache Disorders Advocacy (AHDA) held its annual Headache on the Hill (HOH) in Washington, DC. In its 11th year, Headache on the Hill (HOH) is an event that gathers patients, caregivers and healthcare providers together to advocate on Capitol Hill for issues related to headache, migraine and cluster diseases. This year marked the largest attendance with a total of 145 advocates, representing 39 states.

The opioids and stop pain initiative act

Each advocate met with members of Congress from their states. This year’s “ask” was for members to sign onto a bi-partisan bill called the Opioids and STOP Pain Initiative Act. This bill proposes to expand, intensify, and coordinate research at the National Institutes of Health (NIH) with respect to the understanding of pain and the development of safer and more effective pain treatments. It also will help fund the development of improved options for medication-assisted treatment.

Please know that this bill is NOT supporting a movement to further restrict or deny opioids. It is asking for research funding so that better and safer pain alternatives can be developed.

To read more about the bill, please visit the website for the Alliance of Headache Disorders Advocacy.

Thunderclap – how you can help today!

This week, beginning March 19, 2018, is an important time period for this legislation with a big budget vote and a two-day opioid hearing in the House.

AHDA is asking people to support the Opioids and STOP Pain Initiative Act by joining a Thunderclap. If you’re unfamiliar, Thunderclap is a social media platform. When you sign on, all of your Facebook friends and Twitter followers will be sent a one-time message on March 20th, 2018 at 7pm EST. The post will include a link where people can email a pre-drafted letter to their members of Congress, asking for their support in signing onto this bill.

Our goal is for this Thunderclap message to reach 1,000,000. We’re halfway to our goal! As of Sunday, March 18, 2018, three senators and 18 congressmen/women have signed onto the bill, with members of both the Republican and Democratic parties participating.

The chronic pain and opioid crisis is the single most costly US health problem ever – costing more than a trillion dollars per year. According to AHDA Leave Behind, thirty percent of Americans have pain most days and more than 115 Americans die every day due to opioid-related overdoses. To solve these problems we need increased research to discover new therapies that treat pain effectively, and that are safe and non-addictive.

Urge Congress to fully fund NIH research for more effective and non-addictive pain therapies.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • libba
    2 years ago

    I had chronic migraine for 60 of my 78 years; beginning at age 13 and ending at age 73. I’m still a migraineur but without the chronic pain. I’ve used pharmaceutical over-the-counter and prescription drugs, including opioids and other narcotics for most of my life. My cessation of migraine pain was abrupt; however, I began having severe sciatic pain which has been ongoing. Until the triptan drugs became FDA approved in the US, I relied on any legal narcotic drugs that I could readily obtain. Fortunately, I have a high pain tolerance, high resistance to drug addiction and determination to live the life that enabled me to reach my educational and professional goals. My life was not easy but I persevered. I was lucky; not all migraineurs are.

    I strongly support and urge fully funded NIH research for better migraine specific drugs and provide effective Migraine education for the public at large.

  • Katie M. Golden moderator author
    2 years ago

    Thank you so much for sharing your story!
    If you haven’t already, please share this with your representatives and ask them to sign onto the Opioids and Stop Pain Act using a simple online form, where you can add in these comments.

    Thanks for your support!
    -Katie team member

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