Patient Advocates

In order to bring the voice of the patient dealing with migraine disease, Migraine.com brings you frequent articles, blogs, points of view and advice from leading patient advocates.

Each of these individuals are impacted by migraine, yet they have chosen not to let the disease run their lives.

Read and learn from their unique perspectives.

Leading migraine patient advocates:

Alene Brennan

Alene is a certified Nutrition Coach, Natural Food Chef and Yoga Instructor supporting those living with migraines and autoimmune disease. She combines her education with her first hand experience of debilitating migraines as well a diagnosis of Multiple Sclerosis at age 36. Alene takes a “Less Pharm, More Table” approach to empower individuals to live a vibrant life independent of their diagnosis. Read more.

Amanda Workman

Amanda Workman is a wife, step-mom to four kids, and a dog mom to two rotten furbabies in South Texas. Spending most of her childhood and teenage years with episodic migraine, she became chronic in 2009 while finishing a double bachelor’s degree at Houston Baptist University. Read more.

Anna Eidt

Born in Nova Scotia, Canada, Anna Eidt (pronounced ah-ee-t) was raised on salty air, second-hand shopping, and song. She moved to Ontario to study singing, and finally landed in Toronto with the job of her dreams as a high school music teacher and choral conductor. But of course, not all well-laid plans stay lying, and shortly after a bicycle accident (face, meet pavement), chronic migraine entered the picture. Read more.

Bill Bartlett

Migraines entered the picture early but worsened and were officially diagnosed after Bill got sick with meningitis. Shortly thereafter, Bill made a career change. Read more.

Elizabeth Roberts Zibbel

Elizabeth was diagnosed with migraine at age 9 and became chronic at age 30. Having finally accepted and made peace with her illness, she strives to live each moment as fully as possible. Read more.

Gretchen Church

Gretchen Church began having Migraines at the ripe old age of 20 years old. 30 years later the doctors have officially diagnosed her with Chronic Migraine syndrome. Read more.

Holly Baddour

Born and raised in Chapel Hill, NC, Holly majored in dance in college and also played in several bands and toured the country as a singer. Migraines started for Holly at the age of 6 and ramped up in frequency and severity in her 30’s. Read more.

Jaime Sanders

I was diagnosed with migraine at 8 years old, chronic migraine at 27, and living with the disabling illness for 37 years. I’m a migraineur also managing depression, anxiety, fibromyalgia, carpal tunnel, RLS, spinal stenosis and chronic back pain. Read more.

Janet “The Migraine Girl” Geddis

Bookshop owner & migraineur Janet “The Migraine Girl” Geddis moved around a bit in her early 20s before deciding to make Athens, Georgia her home. Read more.

Katie Golden

Katie began suffering from episodic Migraines at age 5 that turned chronic at age 30. Her personal mission statement is “Living a More Fulfilled Life While Managing Chronic Migraines.” She believes in a balance of medication and self-healing measures such as yoga and deep-breathing to manage her chronic disease. Read more.

Kelly Crabb

Kelly was diagnosed with Crohn’s Disease 3 days after her 17th birthday. She’s passionate about helping others with IBD & other medical conditions. She also lives with RA, Hemiplegic Complex Migraines and other health conditions. Read more.

Kerrie Smyres

Now in her early 40s, Kerrie has had chronic migraine since she was 11. She’s been writing about migraine and headache disorders on her blog, The Daily Headache, since 2005. Kerrie is also the cofounder of TheraSpecs, which makes eyewear for migraine and photophobia relief. Read more.

KyKy Knight

Kyky Renee Knight is a moderator and contributor for Migraine.com, and has lived with Migraine disease since she was a child. It wasn’t until adulthood that she was first medically described as having Migraine disease with aura. Read more.

Lisa Benson

Lisa Benson is an artist, writer, and community volunteer. She sculpts using clay and plaster and also works doing sculpture restoration. She had undiagnosed migraines since she was a child, and finally received the diagnosis in late 2011 when she started to suffer from chronic migraines. Lisa likes to inspire and educate using writing, art, and graphics. Read more.

Maria De Leon

Long before Maria De León’s love affair with Parkinson’s began, she was already on her way to becoming migraines expert, having lived with them since childhood. But, it wasn’t until her first year in college when the stress triggered a full blown migraine causing hemiplegia and visual disturbance that a name was officially given. Read more.

Nancy Bonk

Nancy Harris Bonk is a patient advocate and educator who has been helping patients empower themselves by taking an active role in their health care since 2003. Read more.

Olivia Rehberger

Olivia was born and raised in Chicago. She has had migraine disease as early into childhood as she recalls. Her migraines became debilitating, daily, and intractable while she was attending The University of Missouri. Olivia graduated with a Bachelor of Arts in Psychology, despite the many obstacles chronic migraine had posed along the way. Read more.

Sarah Hackley

Sarah Hackley is the author of “Preparing to Fly”, a personal finance book for women leaving abusive partners, “Finding Happiness with Migraines: A Do It Yourself Guide”, and the Amazon women’s poetry bestseller “The Things We Lose”. Read more.

Steven Workman

Steven Workman is a husband and a father of four. In his South Texas home, he has two large dogs that are protective of him. During his service in the United States Army, 1st Infantry Division, during a deployment to Iraq, his battle with PTSD started and he began experiencing episodic migraines. Read more.

Healthcare experts:

Joanna Kempner

Joanna is an assistant professor of sociology and a member of the Institute for Health, Health Care Policy and Aging Research at Rutgers University-New Brunswick. Her research focuses on areas where medicine, science, politics and gender collide. Read more.

William Young

Dr. William Young is a neurologist at the Jefferson Headache Center. He received his medical degree from Penn State College of Medicine and has been in practice for 30 years. Read more.

Former Advocates:

Annie “MigrainePuppet”

Annie has lived with Migraine Disease since she was six years old, but wasn’t diagnosed until thirty-five years later. She struggles with living a ‘normal’ life while finding her way through corporate America. Read more.

Diana Lee

Diana Lee is a blogger, lawyer & health advocate who’s been disabled by Chronic Migraine. She’s passionate about educating patients & combating stigma. Read more.

Jennnette Fulda

Jennette Fulda has suffered from New Daily Persistent Headache since February 17, 2008. She chronicled her search for a cure and eventual acceptance of her chronic illness in the book “Chocolate & Vicodin: My Quest for Relief from the Headache that Wouldn’t Go Away.”
Read more.

Tammy Rome

Tammy knows firsthand the toll that chronic migraine takes on a person’s life. She is a lifelong migraine patient and was diagnosed with cluster headaches in her early 30s. Read more.

With the exception of medical doctors, contributors and moderators at Migraine.com are compensated for their contributions to the community. If you are interested in joining our team, please contact us at contact@migraine.com.