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Is anyone status migrainous? or has migraines over 100+ days


Community Answers

  1. Selkie says:

    I have status migranosus, im basically always in pain or feel tired and drained. I went on vacation recently, which i was really nervous about being sick while away. What if i got a migraine ect ect. However I spent about five days in the west coast of ireland and was almost headache free. I cant remember the last time i had felt so good. As we drove to dublin my headaches started to come back. And then when we got back home my headaches got even worse. I live in a major city and am now wondering if pollution levels are effecting me. It would be nice to find a trigger bc living like this, in pain all the time, its not really a great way to live.

  2. snydez00 author says:

    I feel it. I hope you find some sort of relief soon!

  3. blancj8 says:

    I am just about at 100. Last time I remember not having one was the first week of June.
    I think mine was driven via UV light though. My office moved from 15 minutes from my house to about 40 minutes from my house. But I did learn that the safety glass in car side windows block between 55% and 80%. Not the 97%-100% of the front glass. So my next large purchase is going to be UV blocking tint on my car windows.

  4. snydez00 author says:

    I got rose tinted glasses to help with my light issues, maybe they might help you.

  5. Tamara says:

    Join the club! 2 1/2 years of pain level 4 and up (5-7 most days now). It sucks balls …. just lost my job and house because of it. Constant low level migraine with 2-3 “flares” of severe pain each week – anywhere from a couple houes to days on end. Even urgent care visits are a “success” when they get me back down to a 5/10.

  6. oruxp1 says:

    I’ve lived with it for over 40 years.

  7. moneypenni says:

    Yes, my pain level never drops below a 5 and generally seems to “live” at about a 7. Botox, Zomig, Imitrex help dull the pain but it never goes away.

  8. snydez00 author says:

    Zomig & imitrex both did not work for me. ( im triptain resistant) Had my 2nd round of botox today. Hoping i get some relief. .my pain rainge is similar to yours.

  9. snydez00 author says:

    do you mind if i ask how long you have had this condition/ been living with it?

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