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Cefaly?

Had mine for a week. Been using daily as preventative and twice during attack. Curious to know others experiences. Thanks


Community Answers
  • DadOhio
    2 weeks ago

    I found it to be a toy. I got one of the first edition and got no relief.

  • TiffanySB
    2 weeks ago

    Anyone order one, get charged and then not receive? Just realized mine has still not arrived and it’s been 6?weeks!

  • Allyson.Ellis moderator
    2 weeks ago

    I would definitely call and follow up with the company, TiffanySB. Perhaps they have a back-order, but with that sort of delay it seems they should let you know! Please keep us posted. Wishing you a gentle day. ~Allyson (Migraine.com team)

  • glassmind author
    2 weeks ago

    Update.

    Well, it’s been 11 days of using Cefaly.

    I had a migraine the day it arrived. Migraine came before the mail. Tried using it then and found it was intolerable.

    I tried then using it twice as a preventative at bedtime, but as I would drift to sleep and move, the loose connection causes a painful spike in the electrical current.

    I switched to using it midday as a preventative. I usually run two twenty minute cycles.

    I have had one other migraine since beginning treatment with cefaly. This is a reduction in frequency for me as previously I was averaging 5 or more migraines in an 11 day period.

    I also began taking clonozapam at night to treat REM behavior disorder. I already was prescribed it for panic, aggitation and migraine. Since using it for sleep (14 days) I have used it only once for mood (down from an average of 6-12 doses for mood) and did take it for each of the migraines, but waiting until close to the evening dosage time.

    So, my overall use of clonozapam has increased slightly, but both mood disturbance and migraine attacks have decreased.

    I would be hard pressed to tease out the effectiveness of cefaly from clonozapam for sleep as I began the therapies very close together.

    I do like the cefaly. I find the buzzing soothing. Except during an attack. I tried using it again at my second migraine since receiving the device and found it intolerable.

    Why is cefaly soothing as preventative and excrutiating as an abortive? Who knows. I feel Similar about sandalwood soap. Lol. I love the scent when migraine free, but find it exaccerbates my head pain and nausea when I have a migraine.

    I’m overall sleeping more than I ever have in my life except during severe depression. I find the increased sleep disorienting in some ways, but if it means better mood and less migraines, I guess I will just have to sleep 10 hours a night. Beats going to bed at 3pm with a migraine and not sleeping because of the pain, vertigo and nausea.

    Thanks for reading.

  • glassmind author
    2 weeks ago

    Thanks. So do you have the headband version? And you use only as abortive?

    Did you begin both therapies at the same time?

    Thanks

  • glassmind author
    2 weeks ago

    Thanks. I did read through these. It seemed most of the information was years old. Was hopeful for some newer feedback.

  • Nancy Harris Bonk moderator
    2 weeks ago

    Hi glassmind,

    I’ve been using mine since 2016 and I believe it helps in conjunction with Botox.

    I use it from time to time to try and abort a migraine attack, but have to catch it early, at the first sign I’m getting one. If I can do that, the device sometimes seems to help stop the progression of the attack. But not always.

    Have a good day!
    Nancy

  • Allyson.Ellis moderator
    3 weeks ago

    Hi glassmind, thank you for reaching out! I thought this particular forum discussion might provide you with a few perspectives on your question:
    https://migraine.com/topic/celafy/
    Additionally, we have several articles on the site that discuss Cefaly you may want to peruse, along with any comments at the end of the articles!
    https://migraine.com/?s=Cefaly
    I hope this is helpful while you wait for others to share with you here. Wishing you a gentle day. ~Allyson (Migraine.com team)

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