Has anyone else experienced hair loss with Aimovig?

Since beginning Aimovig a couple of months ago, I’ve had pronounced hair loss (starting in month two of treatment). It’s my only change in medication and I’ve found other migraneurs online with the same symptoms. My neurologist is aware and we’re in the process of reporting it to the FDA, but I wanted to check and see if anyone here has experienced this.

Community Answers
  • Helen G
    2 days ago

    I started Aimovig Aug 2018 doing 2 injections a month so 140 mg because I suffer from chronic migraines for 50 years. I feel much better ( I also do Botox injections at my neurologist quarterly and take triptans daily as a preventative- fro atriptan or imitrex) almost feel cured and even the migraine vertigo seems to be gone. I also have experienced great hair loss since Aimovig and that is how I ended up on this website forum. I just got my blood lab results trying to figure out why my hair is falling out and the results are normal. The only new thing I am doing is Aimovig. My hair is thinning out all over but mostly in the crown and front where my bangs are I am afraid I may go bald! I will buy minoxidil rogaine next, am taking biotin and May have to buy bangs made of real hair at a wig store. I also feel fatigued and have trouble waking up in the morning to go to work and feel to tired to go to the gym at night. I am not so worried about fatigue as I am about losing my beautiful Greek and Colombian hair! I also felt weird arthritis pain in my left foot and my left knee but Thank God it was temporary and not permanent pain. I guess I should stop Aimovig to see if my hair stops falling out?! What a bummer! Help!

  • noaimovig
    3 weeks ago

    I started Aimovig 70 mg in July. Took it two more times. In September I noticed I had lost a lot of hair at my front hairline. I had blood work done and everything came back fine except slightly low in Vitamin D. The Aimovig did not help me at all. My doctor wanted me to try 140 mg dosage but I suspected the hair loss may be from the Aimovig so stopped.

  • sumamax
    1 month ago

    I have experienced severe hair loss since starting Aimovig 6 months ago. It took me a while to make the connection to Aimovig. I was relieved to hear that I am not the only one having this problem and it confirms that it is the Aimovig since that is my only new medication and I have eliminated any other causes.

  • Elizabeth Roberts-Zibbel moderator
    1 month ago

    Hi @emi346, I just wanted to let you know that there was a comment recently on one of my articles (“The other side of the spoon”) stating that the poster’s daughter had severe hair loss with Aimovig. That was the first I had heard of it, and that is certainly a distressing side effect. Thank you for making sure to contact the FDA!

  • Joanna Bodner moderator
    1 month ago

    Hi there @emi346, Thanks so much for your question & reaching out. This is very frustrating to hear that you may be experiencing this as a side effect from Aimovig. Personally, I do not specifically recall anyone else sharing that they have experienced this, but that of course does not mean for certain that is the case. We do have a forum dedicated to the topic of Aimovig & side effects if you want to explore some of the conversations in there. I quickly combed through some of the feedback and didn’t see any reports of hair loss. Here is the link nonetheless, so you can dig a little deeper. https://migraine.com/topic/experienced-side-effects-aimovig/. Good luck & keep us posted if you can.

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