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Has anyone else experienced hair loss with Aimovig?

Since beginning Aimovig a couple of months ago, I’ve had pronounced hair loss (starting in month two of treatment). It’s my only change in medication and I’ve found other migraneurs online with the same symptoms. My neurologist is aware and we’re in the process of reporting it to the FDA, but I wanted to check and see if anyone here has experienced this.


Community Answers
  • RoseN714
    4 weeks ago

    I’ve been on Aimovig 140mg for 5 mos. it helped my chronic migraines and nummular headaches greatly. I am also on Botox. After the fifth dose, I started to notice my hair was falling out in clumps in the shower and throughout the day. My hair loss is so severe that everyone notices it. I’ve stopped using the Aimovig for two months and my hair is still falling out. I’m guessing it’s going to take about 5 months for my hair to stop falling out. I did some research and learned that Aimovig and other me too drugs like Aimovig causes vasoconstriction, therefore reducing blood flow to the head. Since there is less blood flow, the hair follicle becomes weak and falls out. Aimovig stays in our system for a month but may take up to 5 months for it to be completely out of our system (tissues and organs). My neurologist recommended Biotin and multivitamin. My dermatologist recommend Vit D in addition. I’m taking all three and haven’t notice any changes yet. I just purchased a laser hair loss cap that is supposed to increase blood flow to the scalp area. However this may about 52 weeks to see any noticeable change.

    We all need to go on the FDA website and submit a Medwatch report of the hair loss. This is the only way that the FDA and manufacturer will update their list of side effects. Am praying we all get our hair back.

  • Bhart13
    2 weeks ago

    Try using Nioxin shampoo from your hairdresser or I am able to get it at the little Hair salon inside our Wakmart. It isnt cheap but it does help alot with hair falling out!
    I haven’t noticed any increase in my hair loss while on the Aimovig, however, I’ve been using the Nioxin. My hairdresser got me to try it about 2 yrs ago when my hair was falling out by the handfulls after 3 surgeries in 5 months. Evidently, anethesia can also cause hair loss. I just conti ued to use it even after my hair got better.

  • Rachelleburk
    2 months ago

    When I was on Aimovig for several months, my curly hair became straight (NOT in a good way). I switched to Ajovy due to side effects of constipation and insomnia, and the hair on my head went back to normal.
    HOWEVER, since the switch to Ajovy 3 months ago, my normal eyelashes have become extremely short and stubby. There’s barely anything to put mascara onto. I just ordered a lash enhancer product, but am wondering if anyone else experienced eyelash effects with any of the CGRP medications.

  • laurco50
    1 month ago

    I have been on Aimovig now for 5 months. I just noticed two bald patches on the back of my head. I know they weren’t there 6 weeks ago because I get my hair hilighted. I am so freaked out. Everyone is saying they have hair loss. Is anyone experiencing bald patches or is it just thinning? The rest of my hair seems fine. I suggested Aimovig to my sister whose migraines are even worse than mine, and mine are pretty bad. I am worried about her now. She is on month 2.

  • cnc9023
    1 month ago

    Yes! I have a large bald spot in the back of my head now. It randomly showed up about 3 months ago. And just like you, I get my hair highlighted so I know it happened pretty quickly between appts. I’ve been on aimovig 140mg for 9 months now. I went to a dermatologist and he said my bald spot looks like alopecia and he gave me some kind of steroid shot in that spot to help regrowth. It seems to be starting to grow back. Aimovig has been a dream for migraine relief, but all of the other side effects that have developed about 4 months after I started taking it make it totally not worth it to me.

  • dawnybear
    1 month ago

    I’ve been on Aimovig for 4 months and have had a significant amount of hair loss as well. This is my second bout of hair loss (menopause a few years ago I lost half my hair.) I don’t have much more to loose. And it’s falling out fast!!! I just found this post, thank God. 2 weeks ago I went to the dr., Neurologist, dermatologist, had blood work done, etc. and everything is fine. The Dermatologist put me on Minoxidil for women. and I’m stopping the Aimovig! I’m on Topomax as well, that has never caused my hair to fall out, but I’ve heard that is does for a lot of women. This is horrible.

  • Sportsfan
    2 months ago

    I am on my third month of Emgality and I started to notice clumps of my hair coming out and my hair stylist noticed it today. There are no changes to any other meds, medical conditions or hair products. This has never happened to me.Thankfully my hair is growing but I was concerned the hair loss was due to Emgality and after reading these posts I am calling my headache specialist tomorrow. Emgality so far is not making much of a difference with my migraines and Aimovig did not work at all for me. I noticed a slight change with hair loss with Aimovig but it’s very noticeable with Emgality. I am also concerned that there could be other side effects that we don’t know about yet. Thank you to everyone who has shared their experiences with these medications.

  • Diane A
    1 month ago

    Thanks to everyone for their input. I experienced hair loss with Emgality after 3 months and after reading the comments on this forum, discovered that Emgality was the source. I’ve stopped the injections and gone back to Botox and also trying nerve blocks,
    Good luck everyone.

  • bwex25
    2 months ago

    I started using Emgality in December and didn’t realize I was losing my hair right away. I continued taking it all the way until March and have basically lost half my hair. It definitely helped the migraines, but I’m devastated over my hair. I have let my neurologist office know. It seems like all of you have taken Aimovig, but basically they are all similar. I’m really hoping our hair grows back and I’m angry at myself for not researching this better…

  • sikomax
    2 months ago

    I had the same response with Emgality. I have lost half my hair in one month. The were no other changes with meds or stress or anything else. Only thing different was Emgality. I reported it thi then and the FDA. I’ll tell my doc when I see him in May. I’m so bummed because it has helped my migraines but it’s not worth going bald. Unfortunately I didn’t figure it ot until after I took another dose. I hope my hair grows back!

  • Elielio
    4 months ago

    I concur. I started Aimovig on Dec 23, 2018 and had a series of the most severe migraines I’ve ever had started day 2 post injection. They were debilitating and reoccurred every other day for nearly three weeks. I did a quick search about hair loss as a side effect back then but didn’t see anything. My neurologist said the migraines should decrease and to keep with it. I took the second shots in January and the hair loss increased significantly. I had already been living with hair loss and thinning due to past medications, so my once long, thick hair was already gone. The the last few weeks the hair loss increased significantly and yesterday in the shower it was falling out in clumps. I decided to search online for a correlation between the drug and hair loss today before taking my third shot and saw this post. Needless to say I’m NOT taking my third shot today thanks to your post and all your experiences. When I see my Neurologist to follow up next week, I’m going to relay this information. Thank you for helping by posting in this forum!!

  • piper53
    3 months ago

    I have been using Aimovig for 6 months. After seeing more hair in the sink tonight, I decided to see if anyone else thought Aimovig was responsible. Like many of you, I have suffered with migraines for my entire life. Although this drug has been helpful, I will discontinue using. Botox works great along with Maxalt.

  • emmieh
    4 months ago

    I, too, have experienced hair loss with Aimovig. I started it in August, 2018. 140 mg and had no side effects and complete migraine relief. I was reluctant to attribute hair loss to Aimovig because of migraine relief and also because supposedly Aimovig had no side effects. However, 11 days ago I got a terrible migraine that has persisted. It is the worst migraine situation I have had in 48 years of all kinds of migraine treatment including 6 years of successful treatment with Botox which eventually stopped working. I am waiting for Aimovig to get out of my system and will not try any of the other CRPG drugs because of my current migraine crisis and their similarity to Aimovig and also because of hair loss. I intend to report hair loss and also the violent migraines which might also be the result of Aimovig to the FDA.

  • Shoshana Lipson
    5 months ago

    I definitely experienced hair loss with Aimovig and we’re seeing a lot of reports about this particular side effect in my CGRP group. I have never had hair loss before and have a lot of thick shoulder length hair… after a few weeks in Aimovig my husband and I were seeing masses of hair all over our home and clumps of it on the floor. 6-8 weeks after stopping Aimovig the hair loss stopped!

  • tealine
    5 months ago

    I have taken three doses of aimovig and have experienced hair thinning and bald spot on my head. My neurologist said he has not heard of this side effect before. I called the FDA and they said no on has reported this side effect either. I just went online and reported this. Please, if you experienced this side effect go online to http://www.fda.gov and report this adverse effect. Otherwise, no one will do anything about it.

  • zencorinne
    4 months ago

    Hi tealine, I just reported this to the FDA as well. We are the guinea pigs as the medication is now being mass marketed. So we are early reporters of this side effect. I experienced it after 2 doses of 70 mg. and have stopped it. It wasn’t making a big difference in my migraines so the hair loss was a deal breaker for me. After every shower, lots and lots of hair in the tub and visible thinning in front. I had the same thing happen with Topomax.

  • zencorinne
    4 months ago

    Just an update. Since stopping the Aimovig, my hair loss stopped pretty quickly. I have areas where it has thinned in front and I am using a shampoo and conditioner with biotin. I think it will all come back. After I had hair loss with Topomax (among many other side effects), my hair all grew back after a few months. Not sure about trying any of the other similar meds to Aimovig. I think the same hair loss will happen.

  • Joanna Bodner moderator
    4 months ago

    Hi there @zencorinne, Thank you greatly for sharing this update. Hair loss as a side effect has been a major factor & I know others have questioned this after stopping of what they might be able to expect. I am very glad to hear that it has subsided. Thankfully they have great shampoos/conditioners out there that can help. Keep us posted & thanks again!

  • Helen G
    5 months ago

    I started Aimovig Aug 2018 doing 2 injections a month so 140 mg because I suffer from chronic migraines for 50 years. I feel much better ( I also do Botox injections at my neurologist quarterly and take triptans daily as a preventative- fro atriptan or imitrex) almost feel cured and even the migraine vertigo seems to be gone. I also have experienced great hair loss since Aimovig and that is how I ended up on this website forum. I just got my blood lab results trying to figure out why my hair is falling out and the results are normal. The only new thing I am doing is Aimovig. My hair is thinning out all over but mostly in the crown and front where my bangs are I am afraid I may go bald! I will buy minoxidil rogaine next, am taking biotin and May have to buy bangs made of real hair at a wig store. I also feel fatigued and have trouble waking up in the morning to go to work and feel to tired to go to the gym at night. I am not so worried about fatigue as I am about losing my beautiful Greek and Colombian hair! I also felt weird arthritis pain in my left foot and my left knee but Thank God it was temporary and not permanent pain. I guess I should stop Aimovig to see if my hair stops falling out?! What a bummer! Help!

  • noaimovig
    6 months ago

    I started Aimovig 70 mg in July. Took it two more times. In September I noticed I had lost a lot of hair at my front hairline. I had blood work done and everything came back fine except slightly low in Vitamin D. The Aimovig did not help me at all. My doctor wanted me to try 140 mg dosage but I suspected the hair loss may be from the Aimovig so stopped.

  • sumamax
    6 months ago

    I have experienced severe hair loss since starting Aimovig 6 months ago. It took me a while to make the connection to Aimovig. I was relieved to hear that I am not the only one having this problem and it confirms that it is the Aimovig since that is my only new medication and I have eliminated any other causes.

  • Elizabeth Roberts-Zibbel moderator
    6 months ago

    Hi @emi346, I just wanted to let you know that there was a comment recently on one of my articles (“The other side of the spoon”) stating that the poster’s daughter had severe hair loss with Aimovig. That was the first I had heard of it, and that is certainly a distressing side effect. Thank you for making sure to contact the FDA!

  • Joanna Bodner moderator
    6 months ago

    Hi there @emi346, Thanks so much for your question & reaching out. This is very frustrating to hear that you may be experiencing this as a side effect from Aimovig. Personally, I do not specifically recall anyone else sharing that they have experienced this, but that of course does not mean for certain that is the case. We do have a forum dedicated to the topic of Aimovig & side effects if you want to explore some of the conversations in there. I quickly combed through some of the feedback and didn’t see any reports of hair loss. Here is the link nonetheless, so you can dig a little deeper. https://migraine.com/topic/experienced-side-effects-aimovig/. Good luck & keep us posted if you can.

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