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Does migraine impact your ability to work?

Understanding you may not have the ability to miss work for numerous reasons and that there is a BIG difference between how many days you actually miss work due to migraine versus how many you could & should be missing. However, if you could, how many days a month do you think would miss due to migraine?

How about your career path, has it changed or has been impacted due to migraine?

Are you open about your migraine disease with your employer? Are they understanding?

Have you had to use FMLA? Are you on disability due to migraine?

We’d love to learn & hear more about your personal journey with migraine & work.

Community Answers
  • Mpapuc1
    4 months ago

    I have daily migraines, 10-15 times a day for past 9 years. The headaches were diagnosed as migraines, mini-strokes, new daily persistent headaches, hema crania continua, type 2 trigeminal neuralgia, depending on the doctor I was seeing. I went through every FDA approved prophylactic, without any positive response. 4 months ago, I started a treatment to remove heavy metals from my body. I am improving for first time. I went from 0% of normal to 50% of normal. There are all kinds of heavy metal chleation remedies on the internet. You can speak to a doctor about getting on board. I use ALA-DMSA 75mg, It works for me, and it worked for an autistic boy I know who could not talk until he started following the dmsa protocol. It takes time. Improvement is subtle. Triggers will go away one at a time. Once you have no response to the triggers, you will be better. Removing heavy metals takes away poison from your body which is holding you back from healing. The supplement removes the heavy metals / poison. The body then heals itself. Good luck to all. I wish you all get well faster.

  • Rachael
    4 months ago

    I have been extraordinarily lucky to have had bosses who have family with migraine, so they are pretty understanding. I don’t get mine particularly often (2 per month at worst), but they last nearly three days each, and I am so wiped out and exhausted the day or two after that, I am not going to get as much accomplished as I would like.

    But I have a coworker who had migraines onset in her early 60’s and had to go on short term disability for a month and half after using up her leave with the sudden and frequent episodes. She is very close to wanting to retire, I believe, and migraine might push her to it ahead of schedule.

    My mom also has migraine, and has been a homemaker for nearly 20 years. It is fortunate that it was possible for that to work out because hers are far more frequent than mine, and don’t respond well to medication. Holding a job might have been hard, or she might have had to find a way to work through that pain.

  • MllePHX
    4 months ago

    Chronic migraine ruined my ability to work; it ruined my life as I knew it. My career path was totally destroyed by a socially unaccepted disease and socially stigmatized medications.
    And why should any employer invest time and money in an employee who is unreliable?
    In the years leading up to onset of chronic migraine, I worked through migraines: medicated and wearing sunglasses. It was very difficult to do my job. I’d often work extra hours to make up for those ‘migraine hours’.
    Migraine took away my livelihood; it controls my life.

  • 0403
    5 months ago

    To all who still work and suffer migraines. You really need an FMLA for work if you have migraines. Just keep it current. You don’t just get one and then it is good forever. Migraines are disabling while you are experiencing one. It is considered a temporary disability. The FMLA keeps you from being fired for unexcused or unscheduled absences.

  • ylu6w9
    5 months ago

    My doctor filled out an fmla form and submitted it to my school district (my employer) where I am a teacher because of my severe migraines. I’m currently in topomax twice daily, an abortive (naratriptan) and now ajovy. With all of that I still have migraines that are strong enough to really put me out of commission about twice a month. My last paycheck (May) I noticed that it was a few hundred dollars less than usual. I contacted my hr department to inquire. I was emailed back saying that my fmla only secured my job and my employer portion of my health insurance but that I must still use any remaining days/docks for the duration of my time off. Needless to say I was pretty ticked off that I was being docked pay for the day and a half I had beyond my sick leave, especially considering the numerous days I already came in to my classroom with a migraine and just suffered through the day. I was definitely under the impression that fmla covered me from being deducted wages from my salary. Needless to say, I’m pretty upset, definitely makes me feel like teachers are undervalued even more.

  • Rachael
    4 months ago

    Unfortunately, FMLA doesn’t protect wages; it mostly just protects jobs. You can’t lose your job while protected by FMLA, but there is no guarantee of wages. America is a little cruddy in that department. But perhaps your employer offers some kind of short term disability that could work with you?

  • pigen51
    5 months ago

    I am currently on disability due to migraine headaches, plus a back injury from an auto accident in 1981.
    The migraines escalated until they became so intolerable that my employer began to look for a way to get rid of me, even though I was covered under FMLA, and had been there for 35 years.
    They sent me for a random drug test, and said that I had alcohol in my system, which they never proved, but I was in no position to fight a huge corporation, who had a history of hiring lawyers from the biggest firms in the country to fight employees suits.
    I was able to draw unemployment, for about 18 months or so, and then worked part time until my disability was finally approved.

  • glassmind
    5 months ago

    I was already medically retired before I began to experience Migraine.

    However, I had to quit volunteer work due to migraine. The environment and stress were triggers.

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