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My 13 year struggle

At the age of 8 I was diagnosed with bacterial meningitis. Thankfully, I lived but with two major debilitating defects. The first was neuropathy. Hurt like no other. Sharp pains in the nerves that struck anywhere at any moment and were crippling. We tried all medications but nothing worked. Over the years the pain didn’t get better but I got used to it. Second factor was migraines. Now these bad boys, I never got used to. Til the age of 19 it just affected my head. Had me on the ground, screaming, crying, begging for some type of relief. All tests possible were done. Nothing.

They started Botox every 3 months which scratched the surface but I was still in urgent cares very often. I couldn’t hold a job or barely function. I was on a preventative medicine, and multiple medicines that were strong grade to kill one if was stubborn. None of it worked; even with Botox. At the age of late 19 to now; I’m 21, my migraines changed. They started to damage my eyes, especially my left. My vision decreased rapidly, and every time I had one come on; one of my eyes went blind and would get lazy. Couple times both eyes went blind and went different ways. I couldn’t control them. It just felt like the pressure behind my eyes would make them pop out. It happens each time now. Usually just one eye but occasionally both. They’ve checked my eye pressure before and it’s normal. Even looked behind with a picture. Everything’s good. It for sure is making my vision worse however. The slightest light or sound or movement is like jackhammers to my head. Even the air around my head hurts. Laying down makes it ten times worse.

If anyone else goes through the same symptoms and has found a solution or just has support, please let me know. It’s very frustrating and feels like no one else understands the type of pain.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Tracy Grant
    3 years ago

    Hi there. So sorry to hear you are in such pain. I too have searched for years and have finally found something that has helped amazingly. I still can’t believe it. But it works for me, and has worked for lots of others. I was pretty skeptical at first, as someone is always promising cures etc… this take a bit of work, but its free, and I have not had to take ANY drugs since being on the protocol. The woman’s name who has created this protocol is Angela Stanton and you can find her on face book if you search for “Migraine sufferers who want to be cured”. She would say it’s not a cure, it’s a way to stop migraines from happening by getting the chemical balance right in your brain. And hydration. So simple yet it works. She is a migrainer herself and she is a scientist – a neuroscientist so she understand how our migraine brains work. It’s been freedom for me as i got them each week at least. I hope this can help you too. And others who might read this.

  • dmitry
    3 years ago

    IANAD but I know vision may deteriorate because of high BP, which is comorbid with migraine attacks. You might want to check your BP in general and during attacks.

  • alice john
    3 years ago

    Yeah sure, it really hurts.. But the eyes going blind is the worst of all pains for me.. when it starts my eyes start deacrese vision from the margin (become blurred) specially starts from left and gradually spread to right..
    Then it turns to become terrible with severe headache. Vomitting and all follow after. I tried using the pain killer diclofenac sodium but it made the pains even worse. I think it’s a relief to face it other than trying to control it and keep it inside. Even the hands go numb when i get one and the whole day turns out to be a hell…
    But i identified some food items that caused migraine that i have reduced consuming and i have successfully controlled the bad boy(now i don’t get one for months)…
    The pain’s terrible but the best way to keep it down is to identify the triggers and avoid them..!

  • Anne
    3 years ago

    I’m so sorry. I starting getting migraines at 12 and would lose my eyesight. Have they ever diagnosed you with cluster headaches? Migraines are incredibly painful – like unimaginable. I prop my head up on pillows when I sleep as it seems to help. I’ve also been taking a blood pressure medication as a preventative – it seems to be helping.

    It took me years to finally find a neurologist who could treat me properly – regularly doctors may be well-meaning, but they don’t have the expertise.

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