3 Weeks Straight and Counting

Hello, I’ve had a very severe migraine for over 3 weeks straight now.  It has gotten so bad my jaw is killing me on top of the Migraine. I did go to a TMD specialist last week and again today and he gave me 6 muscle relaxant injections 4 in my jaw and 2 to a muscle in my neck.  I didn’t expect immediate relief, but I expected either some kind or as the day went along it would get better.  It hasn’t.  Later today I went and got a jaw and neck massage, stem therapy and a chiropractic adjustment.  I DON’T KNOW WHAT TO DO NEXT.  You would think the hospital, but what can they do that I already haven’t had done?

Migraine pills don’t work on me, acupuncture and Botox injections resulted in getting double vision.  I need immediate relief, I need to be able to function!!!!  My neurologist is out of options, he basically said to me we have tried every type of migraine medication and pain pills – nothing is working I don’t know how to help you.  Since these are mostly Sinus Migraines my Ear, Nose and Throat specialist is out of ideas.  I just got another MRI of my head, it shows no anomalies.

My appointment at John Hopkins Headache center is not till the end of August.  That is the soonest they can get me in.  And my biggest concern is it going to be a waste of time, and I have to take off work to go there.

I’ve worked the three weeks straight at work, but finally gave in after a 1/2 of day today and probably will take off again tomorrow.  I am now using up vacation days to cover my sick days.  I tried to apply for FLMA but you have to be with the company for at least a year, it’s been 8 months and before that I was unemployed due to my problem for three and half years.

I’m now having trouble sleeping and having nightmares.  I do have to take prescription medication to even get to sleep and have been for about 12 years.  My mind doesn’t want to stop.  I have the sensitivity to light and sound, rarely I get auras and nauseas.  But at levels 8-10 for three weeks straight and I am about to break mentally.  It puts added stress on me when I can’t really afford to have it.

I know I’m forgetting things more often and messing everyday normal stuff I do at work.  I can’t remember what I did an hour ago. And, I didn’t take any days off within this time frame because of the disappointment on my bosses face and the fact I now have to use up my Vacation days.  My mental status is down in the dumps, I’ve gained 5 pounds in the last 3 weeks due to lack of energy and physical activity.  I do go to a Physiologist also.  I feel like every week I have 2 or more appointments with doctor and it’s exhausting and getting futile.

Thanks, I really needed to vent for the most part.  I know many of you share my struggles and my heart goes out to you.

 

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