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Migraines all my life

I had my first migraine when I was four. Also at that age I found out I had NF1. Which causes cyst to grow everywhere there is a nerve. They also grow on the outside. I’ve been suffering migraines all my life. Imtrex didn’t help so a doctor I went to put me on naproxen that’s not helping either. I’m trying to find a new drug that would help.

I will have a migraine that will last for three days it starts with pain in my neck but only on one side and then the pain will go to my head I will get sick to my stomach and for three days I’m in bed. This happens about 4-5 times a month. The headaches have ruined my social life as I don’t go out much cause I never know when they will hit me.

Does anyone have any suggestions on what kind of meds will work on migraines.


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  • Katie M. Golden moderator
    5 years ago

    I’m so sorry you’re suffering. There are so many different drugs and combinations that you haven’t tried yet (based on what you mentioned). Since you are having 4-5 Migraines a month, you might want to take a preventative medication every day such as Inderal or Amitriptyline.

    You said that Imitrex didn’t work for you when you got a Migraine, but there are other drugs in that same class (triptans) that may work for you such as Frova or Maxalt.

    And if you want to try a more natural approach sometimes supplements such as butterbur, feverfew and Magnesium can make a difference.

    But I am not a doctor and all of these suggestions are just things that I have tried in the past and seen work for other Migraineurs. The link below gives an overview of the various types of medications and treatments for you to start some research:

    Also, what kind of doctor are you seeing? A general practioner is not going to have the depth of knowledge you need to work with you through these tough Migraines. A neurologist is who you should see, but a Headache Specialist is preferable. They are a neuro who only deals with Headache patients (while a neuro will also deal with patients who have sleep disorders, Alzheimer’s and Parkinson’s).
    If you can find one in your area, it’s worth making an appointment. Here’s a list:

    I hope this helps to give you a start!
    Take care!

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