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Am I having pre-seizures?

Am I having pre-seizures?! Migraines are just part of life for me. I’ve had typical migraines nausea light sensitivity vomit sleep feel better since age 14ish. About 3.5 years ago I experienced my first aura migraine. My blood pressure was off the chart (not really but you get what I mean). I couldn’t stand up the floor was moving. I thought I was going to die. My head didn’t hurt anyways er sent me home I just had a migraine! For the past year they have progressed to something far more alarming! I can’t talk, communicate, walk-I trip over everything my vision goes in and out. Sometimes I can’t hear!

But about 6 months ago migraines meant something new I got all of my migraines together pain and everything crazy and my head just started shaking violently a tick I couldn’t make stop. And the urge to make my head stay straight makes it so much worse. My neck becomes stiff from the shakes I get. It lasts for about ten-20 min and then starts to taper down I guess once the overload of ibuprofen starts to take affect. But seriously aggravated at people saying It’s all in my head! My poor husband having to walk me around so I don’t fall. Or having to take care of the kids because I’m too sick to come out of my room. I’m down to working part time now but I still struggle. I have a migraine about 4 days out of the week. I might have a five day break in between them and then they come right back. Ibuprophen only helps them not come full force with the throbbing but never seems to prevent the aura. Although I may not be experiencing throbbing in my head when the aura comes on.

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  • janell
    2 years ago

    I”m so sorry to hear about your pain and struggle karleyg. I obviously can’t provide a diagnosis, but I definitely understand where you’re coming from. I’ve struggled with migraine since I was little. They were few and far between and mostly due to lack of sleep or high stress situations. (i.e., Studying) But, they came on strong with my first pregnancy. Then progressively got worse with my second pregnancy. 90 days after my second pregnancy, I had a seizure. After a full year of tests in an out of state, they still can’t tell me what causes my seizures or migraines. Like you, my seizures have been nearly unbearable, causing a pain that can’t be soothed, nausea, vomiting, light sensitivity, etc. Ibuprofen and some of the strongest meds don’t work. I’ve even tried medical marijuana in an attempt to ease the pain and nausea, to no avail. After suffering 20-25 days a month of migraines and several trips to the ER for IVs, I had almost lost hope. I also made a trip to the ER recently thinking I was having a stroke, only to learn I was having a seizure. (The left side of my face had gone numb, and I could not speak – the not speaking thing during a seizure is normal) The only thing to date that has worked is CBD Oil – specifically CBD. I’ve gone from 20-25 per month, to 1-3 days per month. They haven’t gone away completely. I won’t lie. But, I can function again. I can think again. I can live again. I got my life back. I would definitely see a neurologist. Not being able to speak, and losing control, sounds like a seizure – not a “pre-seizure.” They come in many forms. I take Topamax for my seizures and it’s been AMAZING to control my seizures, as long as i take them. And, to some extent it reduces the migraines as well. Good luck! And, if you’re able to reach out to me at all, I would love to hear how everything works out.

  • karleyg author
    2 years ago

    I go to a neuroligist tomorrow. Yay! I can’t wait to hear what he has to say to me. Thank you for all your support. Reading this made me not feel crazy! And I actually have a little bit of hope

  • petitemathilde
    2 years ago

    I unfortunately can’t tell you why it is happening but maybe bring the comfort of knowing you are not alone with this. It has happened to me a few times mostly for a short period of time except for the last one that had me in bed shaking uncotrolably from the waist up for a whole morning. I hope that somehow an explaination will come

  • DonnaFA moderator
    2 years ago

    Hi, KarleyG! We’re not able to offer medical advice for your safety. We recommend that you discuss any new or changing symptoms with your doctor. I would like to share What is a Migraine Emergency? which talks about signs and symptoms that require immediate medical care. Please know you’re not alone. We’re here to share support or just to listen when you need a friendly ear. -Warmly, Donna ( team)

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