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I called my migraine “Freddie”

I got my migraine since i was eight, i got diagnosed wrong many times and i got so many mixed medications. Now i am 27 years old, married, having one baby boy and i am on topamax 50. I have a chronic migraine with aura .. the whole package with everything, the lights, the dizzy, the numbness and the nausea and the feeling of heavy weight in half of your body and your tongue. I can’t talk to any one, i can’t form a sentence, i can’t think straight.

Lately i am having an episode everyday and sometimes twice a day. My doctor told me that i should be aware of too much sleeping, like i have to wake up every day at a certain time, maybe earlier but never late .. so i try my best to sleep less or sleep exactly each and everyday the same periods of time, so “Freddie” doesn’t reach out his clews and grasps my brains out .. grrrrrrrrr!!!

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  • Katie M. Golden moderator
    5 years ago

    Congrats on the baby! But I’m sure that having these chronic Migraines doesn’t help your stress level.

    How long have you had the symptoms of not being able to think or talk straight? How long have they been an almost everyday occurrence? And how long have you been on Topamax? Some of the symptoms you mention are often side effects of being on Topamax. If it is a fairly new med for you, you may want to talk to your doc about reducing the dosage. Here’s some more info on Topamax:

    Your doctor is also right about maintaining a consistent sleep schedule:

    However, being pregnant can also change your hormones and either increase or decrease your Migraines. It’s possible that after birth, the headaches could decrease. Here are a couple of links that discuss how Migraines change during pregnancy:

    I hope this helps you.
    Best Wishes!
    -Katie Moderator

  • Sarah Farag author
    4 years ago

    Thanks for your reply. I think i am better now. My episodes decreased after my doctor raised the dose of topamax to 100. Also i am on Inderal 40 because i have high blood pressure. I am a healthy person, i eat well and i exersice. The cade of my high blood pressure is genetic.
    During my pregnancy i almost had no episodes at all and i was off topamax then for a year and half just 2 migraines only. Then it hit me everyday so hard, so serious, when i wake up twice aday .. I couldn’t think straight of how much pain i had. And i stopped my medication before because of the pregnancy and the breastfeeding. But i was always on topamax 100 then reduced to topamax 25 each night before sleep.
    But when migraine hits back again after years of non treatment, it is harsh. So i am on ( Topamax 100 + Inderal 40 + Tryptizol 10).
    I just lately feel heaviness in my tongue that spread to my jaw and all my body like i am paralyzed. It’s just a feeling of heaviness over all. and it’s not during one of the episodes. It’s on a normal day.
    Thanks again. You were such a help. The links were great and helpful.

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