Chronic Migraineur with chronic vertigo

Hi all, I was first diagnosed with migraine in my early 20’s. They came at end of menses monthly. At 20 I had a partial hysterectomy due to endometriosis. Mid 20’s I had a continuous bout of severe migraine pain that lasted 6 weeks and sought my first neurologist. I was put on Amitriptyline at that time as a preventive and I started feeling better. I was pretty controlled for 14 yrs. until I had to have a complete hysterectomy at 38 yrs. of age. About a year after my hysterectomy I developed Epstein Barr Virus that turned into mononucleosis that made me pretty ill and then several months of yeast infections.

Since my 40th birthday I have been chronic with migraine and vertigo ever since. I am now 61 yrs. old. It has been totally devastating and changed my life totally. I used to work full time, danced, played sports, traveled with husband, etc. I have been on total disability for 20 yrs. now with not much improvement after seeing 14 neurologists, PT’s, chiropractors, holistic practitioners, done colonics, Botox, have been on several different meds. had upper teeth pulled to remove mercury, had cervical spine surgery, massage therapy, acupuncture, you name it I’ve done it. I’m struggling still to this day. I drive only about a 5 mile radius. I’ve gained 40 pds. since I used to be rather thin and very active. It’s extremely difficult for me. Thank GOD we don’t have any children. I wouldn’t have been able to take care of them. I’m in bed daily but get out as soon as I have any let up. I’ve tried several different diets with no benefit. I’m a very proactive person and do as much research as I possibly can on my condition. It’s very difficult for me to read too much because of the vertigo. I wanted to say I’ve heard from doctors and have read that after having several viruses it can change your brain chemistry and I may have to live this way. Well that’s not sitting too well with me. I’m still trying new avenues the best way I can.

I cannot give up hope even though this has been very draining on me. I realize I’m not terminal but it sure feels as if I’m dying at a very slow pace. Thanks for listening. I hope someone has similar symptoms that I may be able to get any information possible. I feel for all of us sufferers. People really don’t understand unless they walk in your shoes. Thanks. Diane

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