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Feeling Better Means Feeling Feelings

I’ve been on Aimovig for close to a year. It was working okay – down to four to six migraines a month (from 12 a month) but I was still having a lot of fatigue. At my visit to the neurologist a couple of months ago he asked how I was doing. Okay, I said. We talked and he decided to include my old preventative of candesartan into the mix with the Aimovig. As of today, I haven’t had a single migraine with head pain episode. I have had a few days of migraine-like exhaustion that come with nausea and feel like the pain is coming, but it never does.

I am very lucky and very excited but also sad, stressed and tired (usually things that went hand in hand with migraines for me). I was hit with the realization that migraines can be a mood regulator. When I get overly worked up, or push myself too hard a migraine was sure to hit making me bedridden. With a migraine, I was so focused on my pain and crushing fatigue and dizziness that I didn’t have space for anything else. When I was done with an episode, I was so happy to that it was over that I threw myself back into life.

Today, I am depressed and really tired. I’m in a conflict with a friend and I’m in grad school and I’m working. I’m not surprised that I’m tired, but I am surprised that I’m tired with no migraine. I feel sad and overwhelmed, but I feel sad and overwhelmed without kicking into a migraine. It’s a really weird feeling. I am definitely not saying that I in any way caused my migraines, they run heavily on both sides of my family, but I guess what I am saying is that I’ve grown used to them helping me to regather and recoup when I feel stretched thin. I just called a therapist, because I think this is good to talk through with someone.

As a migraineur, I work a lot on self care. I’m interested to learning more about walking through this new chapter of my life for as long as it lasts.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • DianeM2
    5 months ago

    I am experiencing something similar with the successful use of Ajovy after six months of use. I have reduced my migraines from three or four a week to about twice a week and their intensity have greatly decreased. But to my surprise, now when I get a migraine I feel “unfinished” for the lack of a better word. I still experience the fatigue, the brain fog, confusion, and desire to go to bed- but very little pain. Because my pain level is so low I feel like I should continue working on whatever project I am doing, but my concentration is not there and I am so tired. Before, the pain would send me to bed and I had an excuse to rest thru the migraine episode. Now I don’t know what to do when the other symptoms hit me. The pain relief from the Ajovy is welcome but I no longer know how to deal with the rest of the migraine. Is anyone else feeling this way?

  • Allyson.Ellis moderator
    5 months ago

    Anne, thank you for sharing your experience with the community. I hear how welcome but strange this new phase of life without migraine pain feels for you. It is interesting how, once the frequent pain is suspended, you have the ability to see and process many other feelings that have been left unattended as migraine has taken center stage for so long. I’m glad you are reaching out to begin work with a therapist as it can be incredibly valuable to process feelings with the help and guidance of a professional.
    Graduate school can be incredibly exhausting and draining! Try to extend compassion toward yourself for this phase of your life. Please check back and let us know how you are managing. We are always here to listen when you need support. Wishing you a gentle day. ~Allyson (Migraine.com team)

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