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Frustrated

I am 30 years old and have been dealing with migraines since I was 15. For the last couple of years I have been seeing a pain management Dr and having blocks and rfa procedures done on my neck. I’m currently in the middle of needing to have one and weeks away from my appointment. I have been missing work and have had to make several trips up to our local Clinic where they have been giving me Demerol, fluids and zofran. I basically go home and try to sleep it off.

Today I called the pain clinic to see if I could possibly get a short term script for Demerol tablets. Not only would it be cheaper but it would save me from having to bug family members to come pick me up at the Clinic. After talking to the nurse I thought she probably thinks I’m just a drug seeker. When truly I just want relief and to be able to function and go to work. I don’t know what to do, I constantly worry about what the doctors and nurses think of me and if they just think this pain is made up. I wish it was, I’m so tired of dealing with it. I’m 30 and feel like I’m 80.

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Comments

  • Holly Baddour moderator
    10 months ago

    Thank you so much for sharing your story with us. It sounds like you are trying to do the best you can while in the midst of such a tough cycle with your pain and that is incredibly challenging on multiple levels.

    You mentioned that you are seeing a pain management specialist, and I wondered if you’ve ever seen a Migraine Specialist? These are often the best trained to be able to navigate the complex neurological disease that IS migraine. Here is a link to help you find these kind of specialists in your area: https://migraine.com/blog/the-mrf-directory-of-headache-and-migraine-specialists/

    Being made to feel like a drug-seeker when you are simply desperately seeking relief from severe pain and related symptoms is an awful thing to encounter, and yet it is a common dynamic for many of us. This article provides some good tips about ways to go into emergency/urgent care appointments to offset that opinion in others: https://migraine.com/blog/tips-and-tricks-for-a-successful-emergency-department-visit/. And the comment section that follows this article will show you that you are NOT alone and gives some great ideas from our community about how to navigate appointments like the ones you describe: https://migraine.com/living-migraine/do-you-have-any-tips-for-a-respectful-effective-er-visit/

    Lastly, you are not alone in feeling aged beyond your years by migraine. This is also a very common experience (unfortunately!). https://migraine.com/living-migraine/when-migraines-age-us/

    We are so glad you are a part of our community. Please stay in touch.

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