Getting sad, and sadder

I have an appointment with my Neurologist in about an hour. Since my migraine medication has totally failed and I have tried everything else, I do not know what to do. I have had these life stoppers for 29 years.

My friends (what few I have left) pretty much treat me like I am crazy or obsessed by migraines. I say, “if you are living or trying to live with constant pain in your head, with a myriad of other troublesome symptoms, can’t make any plans and have nothing to treat it, how should one feel?

Last month I was accepted into a CGRP trial about 50 minutes away from where I live. I was overwhelmed with hope and joy. Yesterday I received a call that the study was suspended. Back to square one.

I was not even sure I could drive my car to these trials since my medication has failed, I usually end up in bed unable to stand or walk that day followed by 4 more days of being dizzy, sick and terrified.

I decided not to talk to my friends right now. Just this site.

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