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When Heart problems limit your migraine relief options…..

Hi there, I have been a migraine sufferer since the age of 5. So I have have suffered with them now for 38 years. I have tried many things over the years to get relief. I have done pressure point injections, Left Occipital Nerve burned in half, and Botox. I have taken all of the Triptan’s out there over the years. I have done the Topamax as well.

In 2015 I had to have a 6 heart by pass surgery. I did not have a heart attack, the Dr said that I inherited the problem from my late father. Here is where the worst part for the migraine suffer comes in. The triptan’s on the market cause issues with your vascular system so if you have heart surgery or heart disease guess what? You can no longer take ANY of them. I am only allowed to take Fioricet, and I get Botox every 3 months. The worst part is, that the Botox is not working for me and I have Chronic migraines. I am in pain daily. Some of the meds I take now for the heart and things can actual make the migraines worse.

I am sure for many of you, people are always offering advice and anything they see on the news. I know they are just trying to help and I am always grateful. However, some times you just are over it. I get it. My family has watched me suffer through many things. Its only my daughter and I now. She is a teenager and has migraines as well (yeah I know thanks mom!). I hate that she has to deal with it. She is on a low dose of Topamax now, she is on Imitrex nasal only because she can’t keep the pill down during a migraine. She is also on depo shots to help because she has hormonal migraines.

Mine are what the Neurologist call “true Migraine”. Basically it means that I have no warning, I hit the brick wall and am in full blown migraine. I also don’t have a specific trigger, except for weather! That is my big one, then of course, odors, sound, and light. The only food trigger I have found that specifically has caused mine is Bananas and I love them but oh well.
I just want everyone of you to know that you are not alone. I promise I know at times it feels that way. We get depressed and sad and want to scream and cry but we know that will make us hurt worse. I am praying for us all. God Bless each and everyone of you.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Falcon6
    2 years ago

    This and so many of the articles here make me want to cry. It is so nice to know I am not alone and that I am not going crazy (some of these symptoms make me feel like I am). BUT, on the other hand, I hate for people to suffer. I don’t want others to experience this. I have chronic headache when I don’t have a migraine. Even on the rare days when I am headache free, it seems my symptoms are still there – can’t find words or use the wrong words, off balance, extremely forgetful. I have lost myself. Many days I do want to cry – but I know I will pay dearly if I do. I truly hope that you and others on this site find relief. This disease is a bugger to live with.

  • Joanna Bodner moderator
    2 years ago

    Hi there Tigerlilly,
    I just wanted to say that I really enjoyed reading your story and to thank you so much for taking the time to share it with us. You share a very important message and that is that so many who live with migraine also live with a comorbid condition and it becomes terribly challenging to effectively treat migraine. I think this story will resonate well with many in our community and I again thank you for your willingness to share your journey with us.

    Thanks for being here & helping to provide support.
    Joanna (Migraine.com Team)

  • Luna
    2 years ago

    “We get depressed and sad and want to scream and cry ”
    Sometimes when that depression hits me I want to run screaming down the road. I can just see it.. my neighbor arriving with his gun ready to save me from my demons. lol.
    I live in the country. What I do is go into a room away from the cats and scream. The look on their faces when I return is just really hilarious. So then I get a good laugh and feel better for a little while anyway. Courage to us all.

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