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About 10 years ago I was having symptoms that no one could explain!!! not even the 3 neurologist I had seen. I now know its called aura. flashing bright lights, spots, my left side of my head goes numb, like pins and needle and I lose feeling even touching it, I feel nothing and this loss of feeling goes down my entire left side to a point I’m paralyzed. It started out just an hour, hours, to days now.

When I first started these symptoms no one ever heard of these hemiplegic migraines around my area. My mother has aura migraines, they were classified seizures when she was 15 so that’s what she states she has.

I am at my wits end here literally. I hadn’t had an episode in a few years. All of a sudden 4 days ago I had one out of the blue. I was actually just laying in bed not feeling too well nauseous queazy and than I felt aura and knew what was coming next. I went to the er who the drs there had no idea what i was talking about, I could barely talk at this point, of course they assume I am having a stroke! This time it had lasted 3 days!! days not hours. it seems they have come back pissed. lol…sorry I have to joke because since that day I have had so many aura attacks, went numb and paralyzed over and over and over again. I do not want to go back to the er, my town sucks literally when it comes to health care, I have great insurance they just suck. I had called every neurologists and quizzed them before i would make an appt, I have an appt in APRIL! ugh I am so frustrated at this point and going limp as I type so I am sorry for typos I am typing fast. through my research I did find articles and studies that narcotic pain meds stop and control these types of rare migraines. has anyone heard of this? I have some pills left as I just had foot surgery 2 months ago just didn’t need the last refill completely. When I felt the aura today I took a half a vicodin, it actually stopped it, however its happened three times today and coming on again. please anyone tell me what I can do to stop these I am willing to try anything, at this point I have accepted they are probably going to kill me before I get medical help.

Thanks,

Totally frustrated

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Comments

  • Maxx777
    2 years ago

    I have been having migraines for three years every day of my life …pills, Botox, didn’t work until last week 2/15/2017 …I was given lidocaine nerve block injections similar to botox.
    It worked that day and it still working…I haven’t taken any meds. since than.
    Ask your neurologist doctor about this ….it works.

  • Tamara
    2 years ago

    You also can have migraines that not even two doses of IV Diaulid AND then 2 perocets every 4 hours for 36 hours didn’t touch AT ALL. That was day 7-9 of my last 10 day migraine. It was literal hell having the docs say there was nothing to do – and I couldn’t sleep at all because the pain was so bad. I literally rolled in bed in agony until it finally let go.

  • tammyz author
    2 years ago

    Tomorrow is day 7 i will pray it doesnt get worst i cant stand the pain right now or sleep sigh

  • DonnaFA moderator
    2 years ago

    Hi Tammyz, I have to echo Jess08 (thanks for weighing int, Jess!), please consult with your doctor. I understand being scared and desperate for relief, but there are dangers inherent in narcotic use for migraine. I urge you to read Why Won’t My Doctor Give Me Percocet? and Expert Answer: Migraine, narcotics, & rebound headaches.

    We also have a couple of articles that can help provide a framework to make your next ER visit a smoother experience: Your TextTips and Tricks for a Successful ER Visit and Emergency Migraine Treatment: Forms to Simplify Matters.

    I’d also like to share a couple of resources for you to connect with headache specialist and peer support in your area.

    Please know that we’re always here to share support and information. I’d also like to invite you to join the conversation on our Facebook page. Please don’t hesitate to reach out if you need us. Please keep in touch and let us know how you’re doing. -Warmly, Donna (Migraine.com team)

  • DonnaFA moderator
    2 years ago

    I absolutely understand, tammyz. I hope the information helps you connect with a doctor who helps you feel heard. We’re sending all good wishes for some relief – Warmly, Donna (Migraine.com team)

  • tammyz author
    2 years ago

    Tyvm for info. I am trying read much as i can. If i can get relief any way besides narcotics ill take it. 4 attacks in one day n not 1 dr ever hear of a hemiplegic migraine or how to help is so darn frustrating.

  • Jess08
    2 years ago

    Please be careful if you are going to self medicate with narcotics. That is not the answer and can cause a much bigger problem than what you are dealing with now. It is also said that narcotics don’t even actually help migraines they just make you numb.. so of course you’re going to feel better but in reality its just covering it up.. as a recovering addict and a chronic migraine sufferer 10+ years please don’t take this offensively I’m only trying to help.

  • tammyz author
    2 years ago

    I am not taking offense as i am very aware of dangers of narcotics. I live in an area with a major drug problem. I go er these drs have no clue what my condition is and if they have they do NOT know how to deal with it. I am not seeking narcotics. After the aura comes pain n paralysis than the pain so bad i cannot hold my head up. I was hospitalized 3 days because of paralysis. 2 dats later happened 4x smh ive taken everything read everything and i have a dr appt tomorrow but cannot see a neuro til april. I am frustrated beyond means n searching for everything ive went tyleno, ibuprofen, excedrin migraine benadryl, cold n wet rags, hot bath, tiger n dragon balm. Topamax and verpamil never worked. Im willing try anything. I went 5 years without an episode. Now theyre back fiercer than ever. Ughhhhh

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