Hope Lost

My update is pretty much straight forward. After many doctors and trying everything I have to live with this for the rest of my life. I’ve tried everything from Botox to Radio Frequency Ablation. Now after having all these things done they have only gotten worse. It’s extremely difficult to live with pain everyday, the ice pick headaches that I get and the chronic migraines on a daily basis this is no way to live. So if anyone as any ideas please let me know. Thanks.

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Comments

View Comments (6)
  • Not-Again
    2 years ago

    Hi Pamela Sue,
    My experience sounds similar to yours. I just had the RFA three weeks ago and it was a rougher experience than I was told post-procedure. I’m still waiting to see if it will work for me or not. I’ve tried the Botox for years, but after many, many hundreds of dollars and no real lasting relief, I am going to stop the Botox and see what happens. I am working with a new pain management specialist and if the RFA does not provide a good respite from the pain, we have planned the next step to investigate a nerve stimulator. I also take oral vitamins D3, Riboflavin, B12, and magnesium by infusion once a week. I don’t know if you have had any success with the vitamins. Honestly, the best thing I have found is to have a plan of some kind, that if “this” doesn’t work, I have something “else” to keep trying. I sure hope you find something that works for you and encourage you to keep fighting the good fight and be kind to yourself.

  • Pamela Sue author
    2 years ago

    We’ve tried everything and nothing is working. From changing meds to all types of surgeries and I’m tired of the daily pain and suffering I go thru everyday.

  • DonnaFA moderator
    2 years ago

    Hi Pamela, I hear your frustration. Please know you’re not alone, and that we are here to share support. I wanted to share this article to help you find support in your local area. Have you connected with a doctor that helps you feel heard?

    Please don’t hesitate to reach out to us here of on our Facebook page if you need support, or just to chat. We’re glad you’re here. -Warmly. Donna (Migraine.com team)

  • Tim Autry
    2 years ago

    We right in there with you Pamela Sue. I could go on with stories, but I’m (we’re) just too tired, worn out, disappointed and disgusted with the Federal and State agencies whom are supposedly provide assistance when you lose everything. I guess our sanity will be next.

  • Pamela Sue author
    2 years ago

    It’s miserable, and your right it’s crazy. And or sanity is probably next. Guess we are all in it together I just wish I could get some relief. I’m exhausted.

  • Joanna Bodner moderator
    2 years ago

    I am sorry Tim Autry. It sounds like you have been through some very rough times. Thanks for taking a minute to comment to help & let others they are not alone in this struggle. Please know we are always here for support and always feel free to reach out out. We understand what you are going through & we hope to help you & others stay as “sane” as possible through this! 🙂 Take good care, Joanna (Migraine.com Team)

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