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I get migraines too!

It’s the sentence that drives me nuts when people say it! They are the people who mean well and are trying to sympathize, I think, when I am having a bad migraine or symptoms pre migraine that are making me withdraw from the conversation or main event I am attending. Lay people who barely have head aches, take aleve or ibrouprophen and it actullay works, and do not have a neurologist on speed dial do not get migraines too! I think I can safely say we all have this pet peeve! I understand we all have different levels of pain thresholds but if you don’t have to plan everyday with your migraine survival kit and alternate plan if the big one hits today you really can’t understand what real people who suffer daily weekly or even monthly migraine actually go though! We know most of you mean well just don’t say that sentence ever! Lol my close family and friends require no explanation now and I tend to surround myself with them. When someone new enters the group I am very open about my unique medical situation. Rather than empathize just treat us like everyone else. If we need something we will ask because as we here all know there are times when moving and thinking hurt and we need help! Hang in there everyone. Take it one day at a time or one hour at a time when necessary!

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  • Luna
    2 years ago

    I mostly don’t get the head pain now but have been there and done that for many years and may again in this ever changing neurological dysfunction . My body does Not Respond well to drugs. So, no, I do not have “a neurologist on speed dial”. But I do have an interesting and ever changing combination of these and probably more every day. Please don’t judge others. You do not know their story.

    Some of the symptoms: unusual fatigue, stiff neck, blurred vision, excessive yawning, pale skin, trouble concentrating, difficulty finding words, understanding words, inability to think clearly, visual disturbances, slow awareness/reactions, numbness, tingling, weakness or heaviness, clumsy, nasal congestion, anxiety, hyper, fatigue, depression, dizziness or balance problems, tinnitus, cycling cold to hot, nausea, slow digestion, either whole body or traveling discomfort, changes in blood chemistry, heart rhythms and blood pressure, brain on fire, . I don’t even know how to explain the strange head symptoms that float in and settle then move on but they make functioning/thinking a struggle.

  • Joanna Bodner moderator
    2 years ago

    Hi there TBIandstillgoing,
    We greatly appreciate you sharing your thoughts! It certainly can be discouraging to learn and hear from another person living with migraine they are fortunate enough to respond to OTC medication, but it is also important to remember that there is a migraine spectrum. Different treatments work for different people and it doesn’t mean ones migraine pain is any less excruciating if they respond to aleve or ibrouprophen. I truly think this is a very natural reaction, feeling and you are absolutely NOT ALONE in feeling this way…I think one of our contributor’s, Holly has a great article related to this topic on why we tend to judge each other. Thank you again for your willingness to share your story and thank you especially for being part of our community. Wishing you a gentle day. Warmly, Joanna ( Team)

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