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It’s winning but I am not giving up

Hi my name is debbie and I am new but have taken part in botox discussion.

I live in ireland. I last told you that I was getting my 7th session of botox. 6th did not take and I went down very quickly and was in bed 24/7 . I can maybe keep down toast or some cereal but that’s it. Fortunately I can keep hydrated (this was my big problem and after 3 visits to my gp in as few days I would then be admitted to hospital for hydration and pain relief)one year I was admitted six times and one stay was for a month. I can now stay hydrated and have not been in hospital for the past two years but have come very very close at times.if needed I can call my consultant in the hospital or my gp and they will arrange admission for me.

I started botox March 2013 and it gave me back a life. I could do small things like shopping and making dinner to start with and day by day it go better so much that I could go out with my husband or go shopping with my teenage girls. It seems a small thing to some people but if you live with migraine you will know how big it is. Got more botox two weeks ago and I can feel it working but I went down again like a ton of bricks and am only coming back to me now. I am at the horrible hangover stage. This time it has got me down.

Normally I am so strong fighting it. I don’t complain always say it will be better tomorrow. Guilt as well as my 17 year old daughter is on school holidays and has ended up cooking etc. What I should be at and my 15 year daughter is doing her state exams and I am in bed. I have let everybody down and it’s tearing me apart.

My neurologist advises 100% oxygen for 15 mins then inject sumatriptan with stematal for nausea. Has any one ever tried this. I have also booked a family cruise in the med for a week and a weekend stay over in Venice in Italy in 7 weeks time as I was doing so well and we deserved it. Now I am scared stiff And am working myself up into a tizz although I am so looking forward to it. I am already sorting outfits.i apologize for the long story but I can see hope going out the windows and a depression and hopelessness coming in the door. It’s winning but I am not giving up.

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Comments

  • Katie M. Golden moderator
    5 years ago

    Skinnydebs,
    So sorry to hear about your hospital stay. I’m sure you’re exhausted from the recovery. Have you been diagnosed with cluster headaches? Oxygen typically helps with those types of headaches. And clusters tend to have different treatment protocol than classic or common Migraines, so it’s important to have a proper diagnosis. See if these symptoms match your headaches:
    http://migraine.com/headache-types/cluster-headaches/

    I hope you recover in time to enjoy your vacation to Italy!
    -Katie

  • Katie M. Golden moderator
    5 years ago

    Skinnydebs,
    Don’t give up hope! Don’t let this become a self-fulfilling prophecy. You should look at this as an opportunity to really focus on taking care of yourself so that you and your family can enjoy this vacation.

    Take a water bottle with you to keep around at all times. Take the abortive medications as the first sign of a headache and don’t wait for it to get worse. Take time to rest. You may also want to ask your doctor about taking a steroid while you are on vacation. My doctor does this for me when I’m going to be away and it can really help.

    Enjoy this time, you deserve it! And here are some tips of things to have with you to help you deal with the Migraine when it hits and you’re away from home.

    http://migraine.com/blog/what-should-i-put-in-my-migraine-tool-bag/

    -Katie

  • skinnydebs author
    5 years ago

    Dear Katie
    Thank you so much for replying to me. I will definitely ask my neurologist about taking a steroid for the duration of the holiday. I usually have a migraine bag but it only has medication in it so thanks for your suggestion for one, it is excellent. Since I last spoke I have now been put on 100% oxygen when needed. (Hospital admission last week) I use it for 10 to 15 mins when I feel migraine coming on and so far it is very good but I am only using it a week. I have oxygen delivered to my house so I can treat myself now.it is called blast technique. I can also use my sumatriptan injection if needed with anti sickness medication

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