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Journey with severe migraines

Well my story starts about 12 years ago. I suffer from severe migraines. I was in a severe car accident 12 years ago, but I don’t know if that it is the cause of my migraines or not. About 6 months after the accident is when the migraines started getting really severe. I have been to several neurologists and even went to the Diamond Headache Clinic, but no one knows why I suffer from migraines.

I have been on several different medications and even got addicted to oxycontin and had to be detoxed from it. Every since the first of May I have had some sort of Migraine. Right now my preventive medications are Namenda, Verapamil, and Zanaflex. When I get a migraine I take Tramadol, Treximet or Vicodin. Also right now I’m on 20 different medications. Also, I’ve been hospitalized several times for my migraines.

Right now I’m unemployed because there is no way I could work with these migraines. I get periods where I get very depressed and emotional from having migraines all the time. I’m getting really desperate for help.

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  • scrapbookcindy author
    8 years ago

    It’s hard to live with migraines lately when I’m spending most days in bed. I am seeing a neurologists right now, but she hasn’t been much help lately. I’ve been in a bad spot the last couple of weeks and have an appt. on the 11th and they haven’t been able to work me in early. I also have Complex Regional Pain Syndrome and have a nerve stimulator implanted to control that pain and I was talking to my doctor on that and he said it might be possible to put another one in to control my migraines. Actually when I was at Diamond when I left my migraines were worse.

  • Ellen Schnakenberg
    8 years ago

    scrapbookcindy –

    It’s baffling to me why we don’t understand more about Migraine attacks than we do. Although it’s possible that trauma from your accident may be the cause of your Migraines, it’s also possible it could be simple genetics. Someday maybe researchers will figure it out, but until then we’ve got to use what’s at our disposal to get through them. We’ve got Migraine, we can’t change that. We need to learn to live our lives well despite Migraine. This really is possible. No, you are not alone – not at all. And you are certainly not alone here. Hang in there, okay?

    First, are you seeing a Headache Specialist for your Migraines? I know you did at one time, but I’m wondering who’s treating you now? Were they able to lower the frequency or intensity of your Migraine attacks when you were at Diamond?

    Another question that might be important to look at – do you have any comorbidities? A comorbidity is another health problem you might have going on at the same time. These other health issues can complicate the disease and the treatment. Sometimes finding other Migraineurs with similar comorbidities is helpful. The Forums would be a fabulous place to begin a discussion about your comorbidities and Migraines!

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