Life changes with chronic migraines.

I had to retire from teaching Health Care at the University Level because of my migraines. I couldn’t predict when I would have one, and would let people down – I hated being undependable, and I hated retiring.

I spent the next six months in bed with one almost every day. I am 66 yrs old, and have been told many times that I am too old to have migraines – thus it must be in my head. I have had them since childhood, but then only rarely. They have increased in the last 10 – 15 years.

I tried everything! I have seen over 20 neurologists, went to a clinic, still no relief. I am so excited because my insurance finally approved Botox for migraines. I am scared, and it took me a long time to finally decide to go for it.

I have 20-22/month, so basically my life sucks! My poor husband, I know how frustrated he gets with me, and not to make me feel bad, just because we make plans and then I have to cancel. The effect on family causes so much guilt. I know that Botox is not a cure for migraines, but anything that will decrease the intensity/duration/frequency is definitely worth trying. I want my life back. I was volunteering at the hospital in their Tea Room on the cash register and really enjoying it, until I had to miss a few scheduled work times, so I took a leave of absence.

I pray every night for anyone who suffers from these awful, debilitating headaches. If you are fortunate enough to only have them rarely – then take advantage of the good times, and just carry your cell phone with you incase you need assistance. I am blessed by having a primary care physician who also suffers from migraines, so he understands. Fortunately for him, he responds to triptans, usually. I have faith that God has a reason for everything that happens to us, and I sure have a list of questions to ask him if I am fortunate enough to make it to heaven. Keep the faith, keep praying, keep getting up, and doing something in the form of moving every day.

DO NOT GIVE UP! They are coming out with more things to try every day. Make a list of things that you are grateful for in your life – even if is as benign as having a pet to talk to, a roof over your head, just anything. Start with 5 and each day add 5 more. Watch funning movies, laughter increase the endorphins which decrease the pain.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (3)
  • elaine
    6 years ago

    It’s difficult to do things to someone else’s timed schedule so better to think about other ways you can share your skills/socialise.

    I have had the botox 4 times now. It really varies a LOT how much it helps, there are so many other variables, but it’s still better than not having it. I am currently paying £500 a quarter to get them, and attempting to get funded through my PCT (UK) which would take some financial pressure off… I had a week in Spain recently and not only was I triptan free but also dropped my naproxens… I seriously need to work out how to spend more time in less cloudy climes.

  • flojo
    6 years ago

    Lynda your comments came just as I feel at my lowest ebb your story is very similar to mine I’m 50 and have had chronic migraines for two years now although I’ve had migraine since I was a child. My work life is being seriously affected , I don’t go out socially in case I have to cancel.
    Your comments about the guilt hit home with me as well, I keep hoping that something will start to work I’ve tried nerve block injections with poor results and now they’ve upped my does of topiramate and naproxen . It just seams endless.

  • Ellen Schnakenberg
    6 years ago

    I love your spirit! You’re so very right – there are wonderful scientists working every day to help us have a better life. We just have to be strong enough to hang in there and do our part to maximize our health and well-being so when the next treatment comes down the pike we can take advantage of it.

    Thank you so much for sharing your story of encouragement here!

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