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Lifelong Illness

I stumbled on this site and thought I’d post my life with this illness and see if anyone else has the same experience as I’ve had/have. I believe I’ve been suffering with my “dizzy spells” since birth. As long as I can remember at least, pre-school thru 58 years. My mother would mark on the calendar because I was so frequent. As I grew older it became farther apart to almost completely ending. But then in 2002 they began coming back to almost how it was when I was a child. I’ve never officially been told this is a migraine, but symptoms are so similar. As a child I was taken to our local hospital and had so many tests. I even went with my throw-up pail while sick, but they couldn’t find anything to cause it.

My history:

Childhood: I always woke up with them around 3 am, give or take (still do). Dizziness so bad I would throw up. I would yell to my mother to say I was sick, but if she turned on the light, I couldn’t open my eyes it was so bright, which would make me even dizzier. The first day was throwing up all day. Dry heaves. I couldn’t walk because of the dizziness. Day two. No throwing up, just dizzy. Actually the dizziness was worse. But I was able to control it better. I would have to move real slow. It would last about a week. Then I’d wake up and it was like it never happened. Until 6 weeks later and BAM! Repeat. Then as I grew the episodes grew longer apart. By the time I was a young adult, it was 16 weeks. I moved away from home and I didn’t track them. They got less and less then in about 2002 they started to return. I’m sick now for 1/2 day, for 2 days in a row. The nausea is returning. I do notice now that odors are magnified. I can’t watch TV until I begin to feel better. No medicines have ever worked. Oh and I don’t have pain with this, just dizziness. Light bothers me, sounds, smells, movement. Just the thought of getting up to go to the restroom, kitchen, anywhere, will cause my dizziness to get worse, hence, throwing up.

I hope this makes sense. I’m really hoping there is someone out there who has similar history. I recently tried Imitrex but that doesn’t do anything either (works great for a regular pounding headache, but not my illness.

Thanks for listening

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Comments

  • Alan78
    4 months ago

    After suffering a bout of vertigo i thought was migraine related as i do get dizziness as a symptom, i went googling in desperation which is not always a good idea but i found some exercises for vertigo that i found very helpful especially the manoeuvre to treat BPPV you can find more on this link.

    https://www.webmd.com/brain/home-remedies-vertigo

  • MeinTC author
    4 months ago

    Thank you for your reply. I will attempt these the next time I get sick although it is very difficult to even move during my sickness.

  • Alan78
    4 months ago

    It is probable the vertigo is related to migraine i know i get it from time to time and my life story sounds similar to yours. I had a bout of terrible vertigo a couple of years ago and thought it was migraine related, it was so bad in the morning’s i couldn’t stand and the room was spinning.

    You may have tried some head positioning techniques to tackle vertigo but if not i would look into them you are in the age bracket for bits coming loose in your inner ear and the various exercises help to settle the floaters in the inner ear and can remove the false signals that cause the dizziness.

    If it is wholly migraine they won’t work but if it happens to be a more classic vertigo you may be as lucky as me and after a couple of attempts rid yourself of vertigo and get back to a more normal level of migraine associated dizziness.

  • Alan78
    4 months ago

    Moderator – please delete this comment i was not able to and it may breach rules.

  • Allyson.Ellis moderator
    4 months ago

    MeinTC, thank you so much for sharing your story with the community. You have certainly endured a lot with vertigo symptoms throughout your life! I hear how miserable those attacks feel for you. You are certainly not alone experiencing these types of symptoms. We cannot offer medical advice or diagnostics over the internet (for your safety!) but I thought some of these articles might resonate with you:
    https://migraine.com/blog/migraine-comorbidites-migraine-associated-vertigo/
    https://migraine.com/migraine-types/vestibular-migraine/
    https://migraine.com/blog/benign-paroxysmal-vertigo/
    I’m glad you have found the community here and hope others will join the conversation and share their stories with you. Please know we are here to listen anytime you need support or a safe space to vent frustration. Wishing you a gentle night. ~Allyson (Migraine.com team)

  • MeinTC author
    3 months ago

    Thank you so much for your replies. I’ve pretty much had a miracle since. My wife uses 2 of the medications listed in a link you provided. I tried them both. One didn’t work, per usual. However the second one worked. For the first time in my life I took a pill and it worked. However, the pill, according to my physician shouldn’t be taken on onset. So, I may have to go to a neurologist first to get a prescription, as our doctor doesn’t like to prescribe this kind of medication. But, thank you very much. I knew there was a reason I was compelled to post my story.

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